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Re: - Joyce

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I take 4000 Cellcept per day. Was on 2000 but he doubled it on my last visit.

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Dee,I am on 1000mg Cellcept a day....how much do you take?I did the OLB even though I have Lupus, RA and Sjorgren's. I wonder what his reasoning is? Be well.Hugs, Joyce PF 1997 Bronchiectasis 2004 Indiana>> Update on my condition. Saw my pulm. today at UCLA and told him about Luann. He (Dr. Zisman) wishes you well Luau. Also mentioned to him how helpful and supportive this group is and he seemed please with that.> > Well I was told I do not qualify for the experimental drug program because I have RA and Lupus. If I have a lung biopsy it will kill me, but he is setting me up to see the lung transplant specialist. That part doesn't make sense to me since I thought some of you said you need the

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Dee, Oh, my goodness. How many is that a day. I take eight capsules a day and the cost is $850 a month....insurance has fought paying. They would really get worked up if I took more. My Lupus symptoms are pretty much stable. Sjogren's causes me a lot of grief. I have been through the bad times and I understand your miseries.Hugs, Joyce PF 1997 Bronchiectasis 2004 Indiana > >> > Update on my condition. Saw my pulm. today at UCLA and told him about Luann. He (Dr. Zisman) wishes you well Luau. Also mentioned to him how helpful and supportive this group is and he seemed please with that.> > > > Well I was told I do not qualify for the experimental drug program because I have RA and Lupus. If I have a lung biopsy it will kill me, but he is setting me up to see the lung transplant specialist. That part doesn't make sense to me since I thought some of you said you need the>

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