Re: (unknown)

[Guest guest]

So glad you are going! My husband went last year with our daughter (age 11) and

met Kerry and her daughter there. Our daughter loved meeting the other girls.

Since then, our son has been diagnosed with OCD so we will make it a family

affair this year. It is so good for them even if they won' t go alone.....they

still get to meet other kids and I think that does something good for the soul.

 Plus, you get to meet others and get a wealth of knowledge all in one place.

Look forward to meeting you there!

(unknown)

 

Thanks so much,Kerry. My hubby and I talked about it last night and we are going

to go. DD may be upset about it at first,but I think in the end she will be

happy we went!

I am going to go look at flights now!

Thanks,

Jo

[Guest guest]

WELCOME,GIGI.

Subject: (unknown)To: autism-georgia Date: Saturday, April 17, 2010, 10:37 AM

Hi, I am a mother of 6 and a grandmother 0f 3 1/2. I gave birth to 5 ages 27g, 19b, 15b ,9g and 6g. I was blessed with my 6th in November of last year, he is 22 years old with Autism. I am also a special needs provider in Gwinnett County. GiGi

[Guest guest]

Wow, You sure did a very comprehensive research. Is there anyway you can put this in some kind of workable framework or what do you suggest. My thinking is just to research each topic one at a time and then proceed to go about trying as many as possible. Where did you get this information or is it just a compilation of things you had come Accross? Am very interested. VinnyOn TCA 22 years, Benzo off 122 days, Lamictal 200 mg off 1 month. (TCA currently at half dose tapered since 1 month ago)Subject: (unknown)To: "SSRIsex "

<SSRIsex >Date: Saturday, May 29, 2010, 2:48 PM

Here's a list of random ideas of things to try for pssd. I just read stuff online and in this group. I don't take responsibilty for anything here, please research well b4 u try anything. I hope this list helps somebody here

Traditional Chinese medicine

Amantadine

amineptine

Wellbutrin

Extacy

Hypnosis

Fish oil

Ginkgo

Flibanserin

5HTP

niacin

ultra pure EPA

tumeric

Zinc

Testosterone pellets from Dr. Goldstein

San Diego sexual medicine

Deprenyl (Seligiline)

L-dopa

Yohimbe

Cyproheptadine

Buspar

Periactin

Dexedrine

Symmetrel

Cylert

Dextrostat

ProCentra

Yocon

Vanspar

Liquadd

CNS stimulants

Yohimex

Aphrodyne

Erex

Yohimar

Testomar

Excersice

Melatonin

MDMA

Serequel

L-arginine

Pycnogenol

Sent from my iPod

[Guest guest]

what is the screwing of the receptors are not affected?

the only real solution seen from the western medical school is an antagonist at

the serotonin receptors. All other " drugs " have the risk of a loess problem

Maybe, but then very probably create two new ones.

http://www.ncbi.nlm.nih.gov/pubmed/19435548

TCM helps me personally more just enormous!

>

>

> Subject: (unknown)

> To: " SSRIsex " <SSRIsex >

> Date: Saturday, May 29, 2010, 2:48 PM

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> Here's a list of random ideas of things to try for pssd. I just read

stuff online and in this group. I don't take responsibilty for anything here,

please research well b4 u try anything. I hope this list helps somebody here

>

>

>

> Traditional Chinese medicine

>

>

>

> Amantadine

>

>

>

> amineptine

>

>

>

> Wellbutrin

>

>

>

> Extacy

>

>

>

> Hypnosis

>

>

>

> Fish oil

>

>

>

> Ginkgo

>

>

>

> Flibanserin

>

>

>

> 5HTP

>

>

>

> niacin

>

>

>

> ultra pure EPA

>

>

>

> tumeric

>

>

>

> Zinc

>

>

>

> Testosterone pellets from Dr. Goldstein

>

>

>

> San Diego sexual medicine

>

>

>

> Deprenyl (Seligiline)

>

>

>

> L-dopa

>

>

>

> Yohimbe

>

>

>

> Cyproheptadine

>

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> Buspar

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> Periactin

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> Dexedrine

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> Symmetrel

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> Cylert

>

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> Dextrostat

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> ProCentra

>

>

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> Yocon

>

>

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> Vanspar

>

>

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> Liquadd

>

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> CNS stimulants

>

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> Yohimex

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> Aphrodyne

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> Erex

>

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> Yohimar

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> Testomar

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> Excersice

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> Melatonin

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> MDMA

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>

> Serequel

>

>

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> L-arginine

>

>

>

> Pycnogenol

>

>

>

> Sent from my iPod

>

[Guest guest]

all from different places.. mostly the internet, from this group, and http://www.drugs.com/condition/sexual-dysfunction-ssri-induced.html has a list of meds and info for pssd. im researching some but i dont have time to research all. i showed the list to my psychiatrist but he thinks pssd is bullshit... im gonna see a new doctor maybe he will be able to tell me :/ From: Goldy Landau <cgl1291yahoo (DOT) com>Subject: (unknown)To: "SSRIsex@yahoogroup s.com"

<SSRIsex@yahoogroups .com>Date: Saturday, May 29, 2010, 2:48 PM

Here's a list of random ideas of things to try for pssd. I just read stuff online and in this group. I don't take responsibilty for anything here, please research well b4 u try anything. I hope this list helps somebody here

Traditional Chinese medicine

Amantadine

amineptine

Wellbutrin

Extacy

Hypnosis

Fish oil

Ginkgo

Flibanserin

5HTP

niacin

ultra pure EPA

tumeric

Zinc

Testosterone pellets from Dr. Goldstein

San Diego sexual medicine

Deprenyl (Seligiline)

L-dopa

Yohimbe

Cyproheptadine

Buspar

Periactin

Dexedrine

Symmetrel

Cylert

Dextrostat

ProCentra

Yocon

Vanspar

Liquadd

CNS stimulants

Yohimex

Aphrodyne

Erex

Yohimar

Testomar

Excersice

Melatonin

MDMA

Serequel

L-arginine

Pycnogenol

Sent from my iPod

[Guest guest]

"Seroquel"o.OWat.Subject: (unknown)To: "SSRIsex " <SSRIsex >Received: Saturday, 29 May, 2010, 9:48 PM

Here's a list of random ideas of things to try for pssd. I just read stuff online and in this group. I don't take responsibilty for anything here, please research well b4 u try anything. I hope this list helps somebody here

Traditional Chinese medicine

Amantadine

amineptine

Wellbutrin

Extacy

Hypnosis

Fish oil

Ginkgo

Flibanserin

5HTP

niacin

ultra pure EPA

tumeric

Zinc

Testosterone pellets from Dr. Goldstein

San Diego sexual medicine

Deprenyl (Seligiline)

L-dopa

Yohimbe

Cyproheptadine

Buspar

Periactin

Dexedrine

Symmetrel

Cylert

Dextrostat

ProCentra

Yocon

Vanspar

Liquadd

CNS stimulants

Yohimex

Aphrodyne

Erex

Yohimar

Testomar

Excersice

Melatonin

MDMA

Serequel

L-arginine

Pycnogenol

Sent from my iPod

[Guest guest]

Regarding the posting below by: Goldy Landau <cgl1291@... You say in your posting that your psychiatrist,"... thinks PSSD is bullshit..."And you say you are considering trying a new psychiatrist.Good luck--on trying a new psychiatrist--but, don't be surprised if he/she responds the same way as your present psychiatrist did when you suggested that your sexual dysfunctions are related to your SSRI anti-depressant usage.I have seen several dozen psychiatrists while seeking help for my neurological and behavioral problems going on for over 30 years now. My psychiatrists have resisted considering that any of my physical complaints could be due to a physical cause--without any scientific evidence to support such claims. And, I have experienced and continue to

experience many debilitating side effects from brief trials on both anti-psychotics and on anti-depressants and from ECT (electric-shock-treatment-to-brain)--so PSSD is just my latest injury from psychiatry--and not only was I not warned in advance of any of this (lied to by omission by my prescribing psychiatrist)--but, none of my psychiatrists have acknowledged any of my side-effects from their treatments or from their colleagues treatments. So, I think that denial of side effects from psychiatric treatment is very much an industry wide phenomenon--with few exceptions. And, I have come to the conclusion that psychiatry is most often not based on physical evidence but instead is mostly assumptions, speculation, and conjecture--mixed with a self serving-motivated-fraud and a lot of self deception, in the form of denial of how little if any benefits there are for psychiatric treatments--and much denial for how harmful most of

their treatments are. I think the whole profession would collapse like a house of cards--if the public new the whole truth about how much of psychiatry is just a facade--for theories that can't bear true scientific scrutiny--and such theories could not meet any request for empirical supportive evidence. Any time I decided to risk alienating my psychiatrist and asked for true scientific proof for their opinions--none was ever given.In conclusion--I doubt you will ever find a doctor--especially a psychiatrist--that will acknowledge you have any permanent effects from any psychiatric treatment--and if you try you will probably be left wondering--like I have many times--does the psychiatrist really believe that my symptoms are psychological and not side effects--or is the psychiatrist just engaged in deception and thus trying to manipulate you into believing in his deception/self-deception. I hope, for your sake, that you

don't experience more of the kind of exasperation like I have--from any future encounters with psychiatry.Shaun From: Goldy Landau <cgl1291yahoo (DOT) com>Subject: (unknown)To: "SSRIsex@yahoogroup s.com"

<SSRIsex@yahoogroups .com>Date: Saturday, May 29, 2010, 2:48 PM

Here's a list of random ideas of things to try for pssd. I just read stuff online and in this group. I don't take responsibilty for anything here, please research well b4 u try anything. I hope this list helps somebody here

Traditional Chinese medicine

Amantadine

amineptine

Wellbutrin

Extacy

Hypnosis

Fish oil

Ginkgo

Flibanserin

5HTP

niacin

ultra pure EPA

tumeric

Zinc

Testosterone pellets from Dr. Goldstein

San Diego sexual medicine

Deprenyl (Seligiline)

L-dopa

Yohimbe

Cyproheptadine

Buspar

Periactin

Dexedrine

Symmetrel

Cylert

Dextrostat

ProCentra

Yocon

Vanspar

Liquadd

CNS stimulants

Yohimex

Aphrodyne

Erex

Yohimar

Testomar

Excersice

Melatonin

MDMA

Serequel

L-arginine

Pycnogenol

Sent from my iPod

[Guest guest]

Thanks for sharing your many experiences and for the wider perspective that you

offer on PSSD.

I think that denial of side effects from psychiatric treatment is very much an

industry wide phenomenon--with few exceptions.

[Guest guest]

your welcome there's alot more. im putting together a new list.. the problem with meds is that i cant get my doctor to let me try anything. he thinks im lying and that pssd is bullshit. does any1 know a psychiatrist in ny area that is familiar with pssd??GOLDY LANDAUSubject: Re: (unknown)To: SSRIsex Date: Friday, June 4, 2010, 11:23 PM

Thanks for sharing your many experiences and for the wider perspective that you offer on PSSD.

I think that denial of side effects from psychiatric treatment is very much an industry wide phenomenon--with few exceptions.

[Guest guest]

I sure dont ,, maybe liz will come along and know something.

jax

Subject: (unknown)To: Hepatitis_C_Central Date: Sunday, June 27, 2010, 1:30 PM

Does anyone know anything about teleprivir and when it will be available?

[Guest guest]

Hello Jax,If you go to Vertex Pharma, you can see that they have completed phase three trials of thisdrug and will submit a request for approval to the FDA. Their stock ha since gone way up.75% hep c knockout rate, even higher among relapsers.MTo: Hepatitis_C_Central Sent: Mon,

June 28, 2010 1:42:18 AMSubject: Re: (unknown)

I sure dont ,, maybe liz will come along and know something.

jax

From: maurice peck <mlpeck55yahoo (DOT) com>Subject: [Hepatitis_C_ Central] (unknown)To: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, June 27, 2010, 1:30 PM

Does anyone know anything about teleprivir and when it will be available?

[Guest guest]



It's not for us type 3 or 4!

[Hepatitis_C_ Central] (unknown)To: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, June 27, 2010, 1:30 PM

Does anyone know anything about teleprivir and when it will be available?

[Guest guest]

Sorry I am not feeling that well so email and research gets behind lol That med is a protease inhibitior and they have not released it yet , it has just finished it's clinicals . But it is supposed to be released by the fda sometime this year .

Subject: Re: (unknown)To: Hepatitis_C_Central Date: Sunday, June 27, 2010, 10:42 PM

I sure dont ,, maybe liz will come along and know something.

jax

From: maurice peck <mlpeck55yahoo (DOT) com>Subject: [Hepatitis_C_ Central] (unknown)To: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, June 27, 2010, 1:30 PM

Does anyone know anything about teleprivir and when it will be available?

[Guest guest]

Thanks Liz,, I know you're not feeling too well and I wish there was something that I could do for you ,, but just know that IM thinking about you and keeping you in my prayers!

love you sistah!

jax

From: maurice peck <mlpeck55yahoo (DOT) com>Subject: [Hepatitis_C_ Central] (unknown)To: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, June 27, 2010, 1:30 PM

Does anyone know anything about teleprivir and when it will be available?

[Guest guest]

Luv u to sistah ! I see a pulmonologist on the 7th and hopefully it will be ok , and in the mean time I am sick of being so tired lol

From: maurice peck <mlpeck55yahoo (DOT) com>Subject: [Hepatitis_C_ Central] (unknown)To: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, June 27, 2010, 1:30 PM

Does anyone know anything about teleprivir and when it will be available?

[Guest guest]

Listen Liz, PLEASE ask your doc to check your "Growth Hormone",, its a simple blood test, it seems that more and more of us heppers are not producing enough of it and that alone can make you really tired and make you ache all over, it affects EVERY system in your body.. PLEASE ask him to check yours... we found mine by accident.. but the endo said more and more ppl our ages and with this virus are really critically low in it and that lone can fix things,,

love you, please keep ME posted!

jackie

From: maurice peck <mlpeck55yahoo (DOT) com>Subject: [Hepatitis_C_ Central] (unknown)To: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, June 27, 2010, 1:30 PM

Does anyone know anything about teleprivir and when it will be available?

[Guest guest]

The reason I have allot of fatigue right now is because they found I am sating at only 84% and may need supplimental O2 . I get tired just walking to the restroom and back , I find that I am to tired to eat so I have lost 40lbs . Nice for weight loss but crappy for getting anything done .

From: maurice peck <mlpeck55yahoo (DOT) com>Subject: [Hepatitis_C_ Central] (unknown)To: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, June 27, 2010, 1:30 PM

Does anyone know anything about teleprivir and when it will be available?

[Guest guest]

Thank you Maurice, I just saw this,, and this IS good news!! thanks!

Jax

From: maurice peck <mlpeck55yahoo (DOT) com>Subject: [Hepatitis_C_ Central] (unknown)To: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, June 27, 2010, 1:30 PM

Does anyone know anything about teleprivir and when it will be available?

[Guest guest]

Hello Jax,When the FDA will approve is now the question. There is another company developing a competing drug. Maybe a combination of that and the vertexproduct could be even better, butthe side effects would be rough. I am following research in Japan, India and Europe. Maybewe we have hope soon.MauriceTo:

Hepatitis_C_Central Sent: Tue, July 6, 2010 1:52:17 AMSubject: Re: (unknown)

Thank you Maurice, I just saw this,, and this IS good news!! thanks!

Jax

From: maurice peck <mlpeck55yahoo (DOT) com>Subject: [Hepatitis_C_ Central] (unknown)To: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, June 27, 2010, 1:30 PM

Does anyone know anything about teleprivir and when it will be available?

[Guest guest]

Hello, I have a 13 yo son, he was also bullied in public school and is

now homeschooled because we couldn't afford private school. If I were

in your shoes I would keep him in the same school and reach out to the

local homeschool community the families are genuinly supportive and he

would probably fit in better. My son struggles with low self esteam

also and has found some close friends in the homeschool community that

have helped him through dealing with OCD. Sometimes it only takes that

one close friend to make all the difference. I hope everything works

out.

Naomi

> I dont know what to do for my son. He has been going to a

> progressive private school in Chestnut hill Phila Pa. He ha snot

> been bullied there and since he has been going there his OCD has

> been in remission, but depression has set in and possilbly BDD. we

> were thinking about moving to a area with more kids his age because

> there is noone around here for him to hang out with. That is

> depressing him, the problem is the school district I live in is

> paying for this private school which is near 20,000 a year. So he

> wants to move and go to a public school, problem is he was severely

> bullied in the previous public schools and if we move we forfeit the

> district paying for the private school, if we stay he ha sno local

> friends. He did make friends at the private school but they live a

> hour away and he said he would be embarassed if they came to our row

> hous ebecause most of the kids at that school are wealthy. He has no

> selkf esteem is very fragile and is demanding to move where he can

> have friedns and go to a public school. I understand his need for

> peers to hang out with but if he gets bullied at another school he

> wont be able to handle it so if he stays here no friends, if we move

> loses private school, possible bullying but possible peers to hang

> with,he is 13 so this is very hard.

>

>

[Guest guest]

I agree with Naomi.  We home school our two girls and have for 8 years now. 

Home schooling is HUGE now and there are so many opportunities out there to

connect with others, take once a week classes together with other home

schoolers, field trips, park days, etc.  Perhaps you could check out the home

schooling groups in your area before you make a decision.

We pulled our girls out of private school when they were very little because I

was disappointed in the education they were getting for our money.  I then

checked out all other options and decided that home schooling was the best

choice, and it has been for us.  My girls have no desire to go to school again,

even before OCD reared its ugly head.  You can usually find information on home

schooling in your area by doing a local internet search and enter home

education.

Good luck!

 

Deneen

Austin, TX

[Guest guest]

We also homeschool. Neither of my dc thrived in a school environment,

just survived. Stress was A LOT lower after we started to homeschool.

DO check out homeschooling groups. The one I belong to is an

open,inclusive, secular group. We have all kinds of dc, gifted to

developmentally delayed. We have a version of co-ops, park days, field

trips, a forum, presentation club, special needs group, and more.

If homeschooling by yourself is intimidating, there are online programs

where the dc 'report' to teachers and do everything online.

Neither of my dc wish to return to school, even if I make them school

through the summer [] .

>

> I agree with Naomi. We home school our two girls and have for 8 years

now.

> Home schooling is HUGE now and there are so many opportunities out

there to

> connect with others, take once a week classes together with other home

> schoolers, field trips, park days, etc. Perhaps you could check out

the home

> schooling groups in your area before you make a decision.

>

> We pulled our girls out of private school when they were very little

because I

> was disappointed in the education they were getting for our money. I

then

> checked out all other options and decided that home schooling was the

best

> choice, and it has been for us. My girls have no desire to go to

school again,

> even before OCD reared its ugly head. You can usually find

information on home

> schooling in your area by doing a local internet search and enter home

> education.

>

> Good luck!

>

> Deneen

> Austin, TX

>

>

>

>

>

[Guest guest]

, where will you have the drips done? Will you be going to Cedars?

Subject: (unknown)To: "hep c" <Hepatitis_C_Central >Date: Tuesday, September 14, 2010, 3:28 PM

I just heard that my ammonia is back up to 110 and my ferritin is 12. They want me to go back in and have 4 drips. If it doesnt go up they want to do a bone marrow. Anyone know what they are looking for?

[Guest guest]

No down here at Hoag. How are you? It was so good seeing you. How are you feeling

Subject: (unknown)To: "hep c" <Hepatitis_C_Central >Date: Tuesday, September 14, 2010, 3:28 PM

I just heard that my ammonia is back up to 110 and my ferritin is 12. They want me to go back in and have 4 drips. If it doesnt go up they want to do a bone marrow. Anyone know what they are looking for?

[Guest guest]

I have been feeling pretty good, although I have beeen pretty tired ( that will pass) I still have not made my appointment to see my docs at Cedars but I will soon. Need to speak to them about the swelling and also I would like to discuss the possibilty of treating next year with the new protease drug with the condition that I lose weight first to give myself the best possible chance, knowing that I have done everthing I could. I know that I will be very sick as before, but there would be an end in sight.

It was GREAT seeing you and Sheena!

How are you feeing? When are you going in for your drips?

Steph

Subject: (unknown)To: "hep c" <Hepatitis_C_Central >Date: Tuesday, September 14, 2010, 3:28 PM

I just heard that my ammonia is back up to 110 and my ferritin is 12. They want me to go back in and have 4 drips. If it doesnt go up they want to do a bone marrow. Anyone know what they are looking for?