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Hi Lizzy!

You found the right place here. We all know what your going through. It seems

most people around us have no idea what we go through each day. If they could

feel it just for a day, they would change how they react to us for sure. But

since that won't happen, we are stuck feeling alone in this nasty disease. But

your not alone here. :-)

Have you tried finding an article that describes how serious and painful this

disease is and having them read it? Stick it in front of your boyfriends nose.

It may not help, but you never know. I did that with my hubby and it made a

little bit of a difference. Sometimes loved ones don't want to face the

seriousnness of this disease or are just ignorant and think of it as just

arthritis. So it wouldn't hurt to make a little noise if you know what I mean

and make them aware of this horrible disease. Just a few tips. May not help. but

you never know! :-)

Your new pal,

lisreg <lisreg@...> wrote:

My name is Lizzy and am 33 years old. I am from Texas and was

diagnosed with arithritis 10 years ago, but diagnosed with RA about 2-

1/2 years ago. Of course, I have my good days and my bad ones. What I

cannot stand is how some of my family even my boyfriend don't seem to

have any understanding as to how I feel with this thing I have. They

seem as if they think I am over-reacting. And I cannot stand it. As the

days go by, I feel myself getting more and more depressed. I try to do

what I can to keep myself busy (I have 4 girls), but at night, it is

the worst. I try to sleep but can't sometimes. It seems the only time

I am able to sleep is when I take pain medication. I don't want to

become dependent on those. I guess I just need someone to talk to and

I am hoping this is where I can do that. This is where I know people

will understand what I am going thru.

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Hi Lizzy: Sorry to hear you are feeling so down. Yes, this is the right place

to come for understanding...........I can relate to the nighttime thing. There

are nights that I am awake off an on all night and then before I know it I have

to get ready for work..................rarely do others understand how we feel.

Taking pain medication does not mean you will be dependent on it and no one

should have to be in pain. My rheumy also prescribes xanex at bedtime to help

with sleep............I would hate to think how I would feel without

it................I go all week on little sleep and then seem to crash on the

weekends.,,,,,

Do not be afraid to take pain medication....you need to.........and feel free to

email me anytime if you would like to talk...............Hang in there

girl..........we all understand and I know there are others way worse off than

me.

Gentle Hugs

Pat in So Ore

lisreg <lisreg@...> wrote: My name is

Lizzy and am 33 years old. I am from Texas and was

diagnosed with arithritis 10 years ago, but diagnosed with RA about 2-

1/2 years ago. Of course, I have my good days and my bad ones. What I

cannot stand is how some of my family even my boyfriend don't seem to

have any understanding as to how I feel with this thing I have. They

seem as if they think I am over-reacting. And I cannot stand it. As the

days go by, I feel myself getting more and more depressed. I try to do

what I can to keep myself busy (I have 4 girls), but at night, it is

the worst. I try to sleep but can't sometimes. It seems the only time

I am able to sleep is when I take pain medication. I don't want to

become dependent on those. I guess I just need someone to talk to and

I am hoping this is where I can do that. This is where I know people

will understand what I am going thru.

---------------------------------

Everyone is raving about the all-new .

---------------------------------

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Pat: Thank you so much for your advice. I never thought about asking

my doctor for some med to help me sleep. Just like you, by the time

I fall asleep, it is time for me to get up. And sometimes getting up

is so painful. Right now I have Tramadol and Loratab. I try to stay

away from them as much as possible. I have an appointment with my RA

doctor next week. And I am going to ask her. Thanks again. It is

good to know that there is somewhere I can get support.

My name

is Lizzy and am 33 years old. I am from Texas and was

> diagnosed with arithritis 10 years ago, but diagnosed with RA

about 2-

> 1/2 years ago. Of course, I have my good days and my bad ones.

What I

> cannot stand is how some of my family even my boyfriend don't seem

to

> have any understanding as to how I feel with this thing I have.

They

> seem as if they think I am over-reacting. And I cannot stand it.

As the

> days go by, I feel myself getting more and more depressed. I try

to do

> what I can to keep myself busy (I have 4 girls), but at night, it

is

> the worst. I try to sleep but can't sometimes. It seems the only

time

> I am able to sleep is when I take pain medication. I don't want

to

> become dependent on those. I guess I just need someone to talk to

and

> I am hoping this is where I can do that. This is where I know

people

> will understand what I am going thru.

>

>

>

>

>

>

> ---------------------------------

> Everyone is raving about the all-new .

>

> ---------------------------------

> Low, Low, Low Rates! Check out Messenger's cheap PC-to-

Phone call rates.

>

>

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: Those sound like some very good ideas. I never thought about

that. I am going to try it. I just don't think he will become more

sympathic or not. If not, he is gonna have to go. But you are right.

It is a nasty disease and no one can understand what we are going

thru without them having it. I really don't wish this on anyone, but

I just wish they would understand. What I hate sometimes is how I

have to tell my girls no hugs because it hurts mommy. My girls and I

are very close to where we hug each other day and night...lol..and I

hate telling them no to hug me because it hurts. At least they

understand. I think they are about the only ones who do. I am glad I

found this group. Now I know where to go for support! Thank you,

. Thank you very much!

Lizzy

> My name is Lizzy and am 33 years old. I am from Texas and

was

> diagnosed with arithritis 10 years ago, but diagnosed with RA about

2-

> 1/2 years ago. Of course, I have my good days and my bad ones. What

I

> cannot stand is how some of my family even my boyfriend don't seem

to

> have any understanding as to how I feel with this thing I have.

They

> seem as if they think I am over-reacting. And I cannot stand it. As

the

> days go by, I feel myself getting more and more depressed. I try to

do

> what I can to keep myself busy (I have 4 girls), but at night, it

is

> the worst. I try to sleep but can't sometimes. It seems the only

time

> I am able to sleep is when I take pain medication. I don't want to

> become dependent on those. I guess I just need someone to talk to

and

> I am hoping this is where I can do that. This is where I know

people

> will understand what I am going thru.

>

>

>

>

>

>

>

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Lizzy,

Hello, I am also from Texas. You are not alone. My husband has no clue.

However my daughters are very in tune. He just thinks I am lazy or whatever.

You can not educate those that are not willing to learn...so I just ignore

him. you could try taking him to the doc with you so he can see and learn

what is going on. But if he refuses...well there is not much more you can do.

Toni

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Hi Lizzy,

Are you still living in Texas? I am in Texas close to Houston.

I understand how you feel and family and friends, will never

totally understand arthritis, esp. rheumatoid. What really

gets me is some of the commercials that say the person

can take a certain over the counter pill and almost turn flip flops.

It just does not happen.

We are here if you need to talk.

Khaki

---------------------------------

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Guest guest

Hi Lizzy, dont feel alone. We all understand how you feel. You can

email me at anytime to just vent if you would like :)

Have a good day!

>

> My name is Lizzy and am 33 years old. I am from Texas and was

> diagnosed with arithritis 10 years ago, but diagnosed with RA

about 2-

> 1/2 years ago. Of course, I have my good days and my bad ones.

What I

> cannot stand is how some of my family even my boyfriend don't seem

to

> have any understanding as to how I feel with this thing I have.

They

> seem as if they think I am over-reacting. And I cannot stand it.

As the

> days go by, I feel myself getting more and more depressed. I try

to do

> what I can to keep myself busy (I have 4 girls), but at night, it

is

> the worst. I try to sleep but can't sometimes. It seems the only

time

> I am able to sleep is when I take pain medication. I don't want

to

> become dependent on those. I guess I just need someone to talk to

and

> I am hoping this is where I can do that. This is where I know

people

> will understand what I am going thru.

>

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Guest guest

Hi Lizzy. Please know you're not alone! this bunch has certainly

helped me so much, just by being here.

Have a good night.

In , " lisreg " <lisreg@...> wrote:

>

> My name is Lizzy and am 33 years old. I am from Texas and was

> diagnosed with arithritis 10 years ago, but diagnosed with RA about

2-

> 1/2 years ago. Of course, I have my good days and my bad ones.

What I

> cannot stand is how some of my family even my boyfriend don't seem

to

> have any understanding as to how I feel with this thing I have.

They

> seem as if they think I am over-reacting. And I cannot stand it. As

the

> days go by, I feel myself getting more and more depressed. I try to

do

> what I can to keep myself busy (I have 4 girls), but at night, it

is

> the worst. I try to sleep but can't sometimes. It seems the only

time

> I am able to sleep is when I take pain medication. I don't want to

> become dependent on those. I guess I just need someone to talk to

and

> I am hoping this is where I can do that. This is where I know

people

> will understand what I am going thru.

>

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Guest guest

hi lizzy,

I am in texas, and my hubby doesn't get it either, we are here for

you if you need us. Cassy

>

> Lizzy,

> Hello, I am also from Texas. You are not alone. My husband has

no clue.

> However my daughters are very in tune. He just thinks I am lazy

or whatever.

>

> You can not educate those that are not willing to learn...so I

just ignore

> him. you could try taking him to the doc with you so he can see

and learn

> what is going on. But if he refuses...well there is not much

more you can do.

>

> Toni

>

>

>

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Guest guest

Hey Lizzy,

I am 34, and I know what you are going through...I feel like I have

been robbed of everything sane in this world..my friends and family

just don't understand what i am going through either...I'm here if

you need me... In , Alvarez

<bureau97504@...> wrote:

>

> Hi Lizzy: Sorry to hear you are feeling so down. Yes, this is the

right place to come for understanding...........I can relate to the

nighttime thing. There are nights that I am awake off an on all

night and then before I know it I have to get ready for

work..................rarely do others understand how we feel.

Taking pain medication does not mean you will be dependent on it and

no one should have to be in pain. My rheumy also prescribes xanex

at bedtime to help with sleep............I would hate to think how I

would feel without it................I go all week on little sleep

and then seem to crash on the weekends.,,,,,

>

> Do not be afraid to take pain medication....you need

to.........and feel free to email me anytime if you would like to

talk...............Hang in there girl..........we all understand and

I know there are others way worse off than me.

>

> Gentle Hugs

> Pat in So Ore

>

> lisreg <lisreg@...> wrote: My

name is Lizzy and am 33 years old. I am from Texas and was

> diagnosed with arithritis 10 years ago, but diagnosed with RA

about 2-

> 1/2 years ago. Of course, I have my good days and my bad ones.

What I

> cannot stand is how some of my family even my boyfriend don't

seem to

> have any understanding as to how I feel with this thing I have.

They

> seem as if they think I am over-reacting. And I cannot stand it.

As the

> days go by, I feel myself getting more and more depressed. I try

to do

> what I can to keep myself busy (I have 4 girls), but at night, it

is

> the worst. I try to sleep but can't sometimes. It seems the only

time

> I am able to sleep is when I take pain medication. I don't want

to

> become dependent on those. I guess I just need someone to talk

to and

> I am hoping this is where I can do that. This is where I know

people

> will understand what I am going thru.

>

>

>

>

>

>

> ---------------------------------

> Everyone is raving about the all-new .

>

> ---------------------------------

> Low, Low, Low Rates! Check out Messenger's cheap PC-to-

Phone call rates.

>

>

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Hey Lizzy, this is Jane from Texas. I raised four kids on my own,

too. My kids are the greatest, they have all read up on all the

stuff I have and have never complained, especially the youngest who

doesn't really remember ever having a " healthy " mom. She's 19 and

this all started 15 years ago. I broke up with my ex boyfriend in 98

and have not pursued a relationship since that time, I just don't

have the time or the energy between work, church, family and

friends. My children are grown or in college now, so life is a

little easier, I can come home from work and " Crash " most days if I

want to! Feel free to e me anytime you need to rant or w/e, i've

been where you are, hang in there girl, we'll make it through this!

May God bless you and yours.

From beautiful downtown Dallas....

Jane

>

> My name is Lizzy and am 33 years old. I am from Texas and was

> diagnosed with arithritis 10 years ago, but diagnosed with RA

about 2-

> 1/2 years ago. Of course, I have my good days and my bad ones.

What I

> cannot stand is how some of my family even my boyfriend don't seem

to

> have any understanding as to how I feel with this thing I have.

They

> seem as if they think I am over-reacting. And I cannot stand it.

As the

> days go by, I feel myself getting more and more depressed. I try

to do

> what I can to keep myself busy (I have 4 girls), but at night, it

is

> the worst. I try to sleep but can't sometimes. It seems the only

time

> I am able to sleep is when I take pain medication. I don't want

to

> become dependent on those. I guess I just need someone to talk to

and

> I am hoping this is where I can do that. This is where I know

people

> will understand what I am going thru.

>

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I have an 11 year old girl in the same situation. i really feel for you. it is so hard and exhausting. if you ever want a shoulder to cry on, you can call me! :0) we can cry together .On Aug 3, 2010, at 12:54 PM, tvau37@... wrote:

I feel like I am the only person who understands my child...no help from schools...he has New diagnosis of PPD NOS and ADHD, anxiety also interfears. Last 5 years of his life no meds worked for him I now know why. I feel Middle school is going to be too much...he doesn't understand social cues and kids take advantage and make fun. He is sad a lot. He is now 11 years old. I am very scared for him....Tammy

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where are you from?

I feel like I am the only person who understands my child...no help from schools...he has New diagnosis of PPD NOS and ADHD, anxiety also interfears. Last 5 years of his life no meds worked for him I now know why. I feel Middle school is going to be too much...he doesn't understand social cues and kids take advantage and make fun. He is sad a lot. He is now 11 years old. I am very scared for him....Tammy

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yes he has an IEP the diagnosis of PPD NOS was over the summer...he has an IEP for ADHD and of course they do not follow it until the state test roll around then they cram everything into one week....I am so sick of it all...I was told he could not have one on one help. Can I get it for him now?

From: rushen janice <jrushen@...>Subject: Re: ( ) I feel so alone Date: Tuesday, August 3, 2010, 8:17 PM

You're not alone...we are here. I know how you feel though...cause I feel like that too at times. I think it goes with our "job".

My son is 14 and was dx with ADHD in 3rd grade and then PDD NOS at the beginning of 6th....by the middle of 6th grade it was changed to AS. He is on Adderall XR (but sometimes takes a break in the summer), he is also on Xanax when he needs it for Anxiety. At night he takes a small dose of Geodon for anger and it helps him sleep too!

At school, does your child have an IEP? A case manager? What type of classes is he in? Can he have a Paraprofessional (aide) with him...even if it is for only part of the day?

I know 6th grade can be very difficult...children can be so mean at this stage of life...you might want to consider an Aide for a year to get him thru.

Post any time...I am sure there are others with thoughts too!

Jan

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: "tvau37@..." <tvau37@...> Sent: Tue, August 3, 2010 1:54:34 PMSubject: ( ) I feel so alone

I feel like I am the only person who understands my child...no help from schools...he has New diagnosis of PPD NOS and ADHD, anxiety also interfears. Last 5 years of his life no meds worked for him I now know why. I feel Middle school is going to be too much...he doesn't understand social cues and kids take advantage and make fun. He is sad a lot. He is now 11 years old. I am very scared for him....Tammy

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Yes you can. And, an IEP is a LEGAL DOCUMENT that must be followed or they are breaking the law.

You have to go to wrights law and read up ...you have to speak or shout loudly....make them squirm...you have the upper hand...not them. Remember, the squeeky wheel gets the oil! ADvocate for him or get him an adovcate. And, go to 's Law and read .....you son has RIGHTS! Fight for what he is allowed. It can be a pain...but in the long run worth it.

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: Tammy <tvau37@...> Sent: Tue, August 3, 2010 8:29:26 PMSubject: Re: ( ) I feel so alone

yes he has an IEP the diagnosis of PPD NOS was over the summer...he has an IEP for ADHD and of course they do not follow it until the state test roll around then they cram everything into one week....I am so sick of it all...I was told he could not have one on one help. Can I get it for him now?

From: rushen janice <jrushen (DOT) com>Subject: Re: ( ) I feel so alone Date: Tuesday, August 3, 2010, 8:17 PM

You're not alone...we are here. I know how you feel though...cause I feel like that too at times. I think it goes with our "job".

My son is 14 and was dx with ADHD in 3rd grade and then PDD NOS at the beginning of 6th....by the middle of 6th grade it was changed to AS. He is on Adderall XR (but sometimes takes a break in the summer), he is also on Xanax when he needs it for Anxiety. At night he takes a small dose of Geodon for anger and it helps him sleep too!

At school, does your child have an IEP? A case manager? What type of classes is he in? Can he have a Paraprofessional (aide) with him...even if it is for only part of the day?

I know 6th grade can be very difficult... children can be so mean at this stage of life...you might want to consider an Aide for a year to get him thru.

Post any time...I am sure there are others with thoughts too!

Jan

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: "tvau37att (DOT) net" <tvau37@...> Sent: Tue, August 3, 2010 1:54:34 PMSubject: ( ) I feel so alone

I feel like I am the only person who understands my child...no help from schools...he has New diagnosis of PPD NOS and ADHD, anxiety also interfears. Last 5 years of his life no meds worked for him I now know why. I feel Middle school is going to be too much...he doesn't understand social cues and kids take advantage and make fun. He is sad a lot. He is now 11 years old. I am very scared for him....Tammy

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