Medication question

[Guest guest]

nathan soon to be 9, has tried all of those, with no help at all, but kids

are different, for nathan they caused increased agitation, and agression,

some hallucinating which was noticable to others even, i know our kids often

sef stim make look like halluc. but it was different way out there. shawna

>From: Loren Spina <salori@...>

>Reply-egroups

>egroups

>Subject: medication question

>Date: Sun, 23 Jul 2000 11:30:04 -0700

>

>Hi,

>

>I haven't posted in a while, but I am desperate for some medication help.

>We have been trying several meds to try to get a handle on n's (age 6)

>extreme hyperactivity, impulsiveness, and aggression. We are also trying a

>lot behavioral things as well. After several months, if anything, n

>seems somewhat worse. Currently, n is on 40mg of Paxil. He began on

>10mg, went to 20, and now has been on 40mg for a little less than a week.

>He seems worse to me, however I read somewhere (don't ask me where) that

>lower doses of Paxil can cause aggitation in children but can be helpful in

>higher doses. Does anyone have experience with this drug? If so, how long

>did it take for it to be helpful? I'm willing to wait it out if it will

>eventually help, but if it isn't I want to try something else. Prior to

>Paxil, we tried Clonidine, which overly sedating, and Propranolol which

>caused aggitation.

>

>Thanks a lot,

>

>Loren

>

>

>------------------------------------------------------------------------

>Remember four years of good friends, bad clothes, explosive chemistry

>experiments.

>1/7077/13/_/691668/_/964377611/

>------------------------------------------------------------------------

>

>

[Guest guest]

SEveral months seems long enough to know if a drug will work. TAlk to the

physician in charge of the medications.

Andy takes a combo of Buspar and Risperdal. We used the Buspar for a year

before adding the Risperdal and the jury is out on Risperdal mostly because

of illnesses....

Sorry you're having trouble finding what you need.

j

At 11:30 AM 7/23/00 -0700, you wrote:

>Hi,

>

>I haven't posted in a while, but I am desperate for some medication help.

>We have been trying several meds to try to get a handle on n's (age 6)

>extreme hyperactivity, impulsiveness, and aggression. We are also trying a

>lot behavioral things as well. After several months, if anything, n

>seems somewhat worse. Currently, n is on 40mg of Paxil. He began on

>10mg, went to 20, and now has been on 40mg for a little less than a week.

>He seems worse to me, however I read somewhere (don't ask me where) that

>lower doses of Paxil can cause aggitation in children but can be helpful in

>higher doses. Does anyone have experience with this drug? If so, how long

>did it take for it to be helpful? I'm willing to wait it out if it will

>eventually help, but if it isn't I want to try something else. Prior to

>Paxil, we tried Clonidine, which overly sedating, and Propranolol which

>caused aggitation.

>

>Thanks a lot,

>

>Loren

>

>

>------------------------------------------------------------------------

>Remember four years of good friends, bad clothes, explosive chemistry

>experiments.

>1/7077/13/_/691668/_/964377611/

>------------------------------------------------------------------------

>

>

[Guest guest]

In a message dated 7/24/00 3:09:33 PM Central Daylight Time,

jcantonwine@... writes:

<< My son, Tanner, is on Paxil. He takes 10 mg. Now, however, it seems to

not be working so well. >>

Jill, the same thing has happened to with Ritalin, Risperdal, Depakote

and other meds. She starts out on them with wonderful results and then

several weeks or months later the effectiveness reduces greatly. It sure

seems like there is some kind of phenomenon with kids with DS metabolizing

meds differently than other kids and becoming immune to them more quickly. I

wish someone would study this. I spoke with an MD/neuropharmacologist at the

Univesity of Chicago about this last year and he told me he has seen

anecdotal evidence of this phenomenon with people with DS, and he agreed that

a study needed to be done. Gosh, our kids are complicated, aren't they?

Maureen

[Guest guest]

Hi Loren,

My son, Tanner, is on Paxil. He takes 10 mg. The

last time I spoke with his doctor, he asked if we

wanted to increase the dose; we said we were

satisfied. Now, however, it seems to not be working

so well. Also, the doc. said 30 mg. was an adult

dosage (I *think* I remember him saying that.....maybe

I'm wrong). I figured we had lots of time (he's 8)

before we reached adulthood and adult dosages of meds,

so I didn't want to increase the dose after being on

it for only a few months. When we started on Paxil,

his stimming was reduced a bit, masturbation (we had a

BIG problem here) was DRAMATICALLY reduced and he

seemed much less fearful in crowds and social

situations. His stimming (finger flipping and weird

sounds) are back to where they were before, maybe even

more so. We have also had problems with Tanner

pushing children, although I don't think it's

aggression, I think it's more attention-getting.

Paxil didn't help with this bahavior, but I didn't

really expect it to.

I guess that didn't really answer your questions,

except to say that Paxil is less than we were hoping

for.

Jill

[Guest guest]

PJ I would be very interested in any info you get.......I suffer from

encephalitis a lot and my brain fog is taking over again

Thanks

Amy

a1m1bishop@...

In a message dated 8/17/01 9:04:56 PM Eastern Daylight Time,

PJSNYDERNY@... writes:

> hi guys, i just came back from a visit with a LL psychiatrist. he wants me

> to

> start Provigil, and says it will charge the hypothalamus, in just the

> frontal

> lobe region which is the area affected by encephalitis/lyme. originally

> used

> for narcolepsy, now in studies for lyme and ms, etc. he says he should help

> keep focused, alert, and energized through out the day. anyone have any

> experinces with this med or one similiar? thanx pj

>

[Guest guest]

Hi PJ,

I tried Provigil for several months, my Neurologist

put me on it for the same reasons as you. It did not

seem to work for me and I stopped taking it. But,

give it a try because it has helped some and everyone

is different. Take care, Kim S.

--- PJSNYDERNY@... wrote:

> hi guys, i just came back from a visit with a LL

> psychiatrist. he wants me to

> start Provigil, and says it will charge the

> hypothalamus, in just the frontal

> lobe region which is the area affected by

> encephalitis/lyme. originally used

> for narcolepsy, now in studies for lyme and ms, etc.

> he says he should help

> keep focused, alert, and energized through out the

> day. anyone have any

> experinces with this med or one similiar? thanx pj

__________________________________________________

[Guest guest]

> Is this also an antidepressant, or used primarily/only for the

symptoms described below? If so, I sure could use it...have some

narcolepsy problems occasionally, but need the antidepressant as

well.

Love ya, Rose

> --- PJSNYDERNY@A... wrote:

> > <snip>...Provigil...says it will charge the

> > hypothalamus.......originally used

> > for narcolepsy, now in studies for lyme and ms, etc.

> > he says he should help

> > keep focused, alert, and energized

[Guest guest]

Amy,

I too suffered from encephalitis, the doctor put me on Rocepherin IV for 4wks.

and carbatrol for the seizures.

Sheryl

Re: [ ] Medication Question

> PJ I would be very interested in any info you get.......I suffer from

> encephalitis a lot and my brain fog is taking over again

>

> Thanks

> Amy

> a1m1bishop@...

>

> In a message dated 8/17/01 9:04:56 PM Eastern Daylight Time,

> PJSNYDERNY@... writes:

>

>

> > hi guys, i just came back from a visit with a LL psychiatrist. he wants me

> > to

> > start Provigil, and says it will charge the hypothalamus, in just the

> > frontal

> > lobe region which is the area affected by encephalitis/lyme. originally

> > used

> > for narcolepsy, now in studies for lyme and ms, etc. he says he should help

> > keep focused, alert, and energized through out the day. anyone have any

> > experinces with this med or one similiar? thanx pj

> >

>

>

>

>

>

[Guest guest]

it is actually used as an adjunct to antidepressants in some cases, esp. like

the one i take, Remeron, which can cause excessive daytime sleepiness. but it

is not an antidepressant itself.

[Guest guest]

Thanks, I will ask about it. I don't have as much of a problem now,

but at times in is very bothersome. I also take Paxil and Tegretol. A

few years ago it was really bad, but so was the encephalitis at that

time. We were considering Ritalin then, but my LLMD was very

hesitant...almost ready to try it, things had gotten so bad, but

still very hesitant. Situation improved dramatically, so didn't go on

it after all.

I have not heard of this particular medication, so I will ask if it

would be a possibility in my particular situation.

> it is actually used as an adjunct to antidepressants

[Guest guest]

hey, been there done that too!! my 16yr old son with ds has had some

terrible problems with temper and behavior. we had tried everything and

actually all the diff meds he was on made him out of control. so out of

control that we had to admit him to a pshych hospital this summer to get

everything straightened out. he was on about seven diff meds which included

prozac, desyrel, ambian, serroquel, topamax etc. now he is only on depakote.

it has been a miracle drug for us. we have been through in school

suspension, out of school suspension, calls from school practically every day

telling us we had to do something. we have been hit and our alot of things

were destroyed by him during this time. it was obvious he had no control.

i am happy to report that he is having one of his best years ever at school

and is back to being the happy kid he was before.

i guess my advise to you is to do what is best for your child. ( i know,

sounds kinda like " duh " ). but sometimes meds allow them to live a better

life without as much anxiety etc. we also found as he was getting older, the

frustrations and anxiety was getting worse. make the best decisions you can

and always remember not to give up trying. it took us a long time and i can

honestly say i didnt like my son at all during that time. everyday was a

struggle. now we are one big happy family (except for my moody 13yr old

son).

any time you wanna talk, i wanna listen. these groups were her for me when i

needed them and helped me make the right decisions for ben. hopefully you

will also get the help you need!!

kerrie

[Guest guest]

hey, been there done that too!! my 16yr old son with ds has had some

terrible problems with temper and behavior. we had tried everything and

actually all the diff meds he was on made him out of control. so out of

control that we had to admit him to a pshych hospital this summer to get

everything straightened out. he was on about seven diff meds which included

prozac, desyrel, ambian, serroquel, topamax etc. now he is only on depakote.

it has been a miracle drug for us. we have been through in school

suspension, out of school suspension, calls from school practically every day

telling us we had to do something. we have been hit and our alot of things

were destroyed by him during this time. it was obvious he had no control.

i am happy to report that he is having one of his best years ever at school

and is back to being the happy kid he was before.

i guess my advise to you is to do what is best for your child. ( i know,

sounds kinda like " duh " ). but sometimes meds allow them to live a better

life without as much anxiety etc. we also found as he was getting older, the

frustrations and anxiety was getting worse. make the best decisions you can

and always remember not to give up trying. it took us a long time and i can

honestly say i didnt like my son at all during that time. everyday was a

struggle. now we are one big happy family (except for my moody 13yr old

son).

any time you wanna talk, i wanna listen. these groups were her for me when i

needed them and helped me make the right decisions for ben. hopefully you

will also get the help you need!!

kerrie

[Guest guest]

In a message dated 10/5/01 7:32:46 AM Central Daylight Time,

drf218@... writes:

> Now that you said that, Nic's behavior worsened AFTER he was taken OFF the

> Depekote. I wonder if it was mellowing him out .....

>

> Di, mom to Jake(18,nda) and 4 (DS)

HI Di

So Nic is off meds now?? How's he doing seizure wise? Sara should come of

meds soon. Im hoping she will regain more memory retention and have less

impulsive behavior. I did ask her Neuro if she will go back to normal and in

his foreign accent he said " No. Mrs. , she'll never be normal...she has

DS " I nearly cracked up

Kathy mom to Sara 9

[Guest guest]

In a message dated 10/5/01 7:32:46 AM Central Daylight Time,

drf218@... writes:

> Now that you said that, Nic's behavior worsened AFTER he was taken OFF the

> Depekote. I wonder if it was mellowing him out .....

>

> Di, mom to Jake(18,nda) and 4 (DS)

HI Di

So Nic is off meds now?? How's he doing seizure wise? Sara should come of

meds soon. Im hoping she will regain more memory retention and have less

impulsive behavior. I did ask her Neuro if she will go back to normal and in

his foreign accent he said " No. Mrs. , she'll never be normal...she has

DS " I nearly cracked up

Kathy mom to Sara 9

[Guest guest]

Now that you said that, Nic's behavior worsened AFTER he was taken OFF the

Depekote. I wonder if it was mellowing him out .....

Di, mom to Jake(18,nda) and 4 (DS)

Pennsylvania

Re: Medication question

hey, been there done that too!! my 16yr old son with ds has had some

terrible problems with temper and behavior. we had tried everything and

actually all the diff meds he was on made him out of control. so out of

control that we had to admit him to a pshych hospital this summer to get

everything straightened out. he was on about seven diff meds which included

prozac, desyrel, ambian, serroquel, topamax etc. now he is only on depakote.

[Guest guest]

Now that you said that, Nic's behavior worsened AFTER he was taken OFF the

Depekote. I wonder if it was mellowing him out .....

Di, mom to Jake(18,nda) and 4 (DS)

Pennsylvania

Re: Medication question

hey, been there done that too!! my 16yr old son with ds has had some

terrible problems with temper and behavior. we had tried everything and

actually all the diff meds he was on made him out of control. so out of

control that we had to admit him to a pshych hospital this summer to get

everything straightened out. he was on about seven diff meds which included

prozac, desyrel, ambian, serroquel, topamax etc. now he is only on depakote.

[Guest guest]

ROTFL..............doctors! ha!

Yes Nic was weaned off in April. we saw neurologist in July had an EEG done-came

back good...

we see him again in Nov and if all is good we are done with him (unless of

course there's a problem), no seizure activity since he's been off....YIPPEE!

Di, mom to Jake(18,nda) and 4 (DS)

Pennsylvania

Re: Medication question

In a message dated 10/5/01 7:32:46 AM Central Daylight Time,

drf218@... writes:

> Now that you said that, Nic's behavior worsened AFTER he was taken OFF the

> Depekote. I wonder if it was mellowing him out .....

>

> Di, mom to Jake(18,nda) and 4 (DS)

HI Di

So Nic is off meds now?? How's he doing seizure wise? Sara should come of

meds soon. Im hoping she will regain more memory retention and have less

impulsive behavior. I did ask her Neuro if she will go back to normal and in

his foreign accent he said " No. Mrs. , she'll never be normal...she has

DS " I nearly cracked up

Kathy mom to Sara 9

[Guest guest]

ROTFL..............doctors! ha!

Yes Nic was weaned off in April. we saw neurologist in July had an EEG done-came

back good...

we see him again in Nov and if all is good we are done with him (unless of

course there's a problem), no seizure activity since he's been off....YIPPEE!

Di, mom to Jake(18,nda) and 4 (DS)

Pennsylvania

Re: Medication question

In a message dated 10/5/01 7:32:46 AM Central Daylight Time,

drf218@... writes:

> Now that you said that, Nic's behavior worsened AFTER he was taken OFF the

> Depekote. I wonder if it was mellowing him out .....

>

> Di, mom to Jake(18,nda) and 4 (DS)

HI Di

So Nic is off meds now?? How's he doing seizure wise? Sara should come of

meds soon. Im hoping she will regain more memory retention and have less

impulsive behavior. I did ask her Neuro if she will go back to normal and in

his foreign accent he said " No. Mrs. , she'll never be normal...she has

DS " I nearly cracked up

Kathy mom to Sara 9

[Guest guest]

it sure has worked wonders for our ben. never swears and does not even begin

to get aggressive. he is real talkative now and laughs alot more. he is one

happy guy (most of the time).

kerrie:))

[Guest guest]

it sure has worked wonders for our ben. never swears and does not even begin

to get aggressive. he is real talkative now and laughs alot more. he is one

happy guy (most of the time).

kerrie:))

[Guest guest]

> I did ask her Neuro if she will go back to normal and in

> his foreign accent he said " No. Mrs. , she'll never be normal...she

has

> DS " I nearly cracked up

Kathy, this is hysterical...I really laughed when I read it. Did you ask

the nuero if she'd be able to play the violin ?

R.

Mom to (7, ds) and Grace (4)

[Guest guest]

> I did ask her Neuro if she will go back to normal and in

> his foreign accent he said " No. Mrs. , she'll never be normal...she

has

> DS " I nearly cracked up

Kathy, this is hysterical...I really laughed when I read it. Did you ask

the nuero if she'd be able to play the violin ?

R.

Mom to (7, ds) and Grace (4)

[Guest guest]

In a message dated 1/16/02 10:29:54 AM Eastern Standard Time,

Jase4567@... writes:

> I am scheduling an appointment for a physical and would like to know if

> anyone out there is on meds to help with weightloss? I would appreciate

> any

> feedback on this. I have been told health ins. will cover xenical.

>

>

I asked my Dr. about medication and she said " NO WAY " in her opinion the

danger from the drugs was far greater than the danger from my fat. I was 250

pounds at the time. I can see where they might be appropriate if your health

is failing and you need a fast fix, but I wonder what happens when you stop

taking the drugs.

260/184/140 I think

[Guest guest]

> feedback on this. I have been told health ins. will cover xenical.

No matter what meds you may get from your doctor, you *still* have to follow

a low calorie food plan and exercise, so why not try it the " natural " way

first?

Be sure to read the warnings and side effects of any medication before

taking it, especially if there's even a slight possibility of you getting

pregnant while taking it.

Sue in NJ

[Guest guest]

> No matter what meds you may get from your doctor, you *still* have to follow

> a low calorie food plan and exercise, so why not try it the " natural " way

> first?

>

Sue in NJ is so right. I have taken Xenical & Meridia.... Xenical didn't do

very much for me because the fat intake is not the problem with me... I went

off of that & onto Meridia... Still didn't see that it helped much... I really

think that the natural way is best because there is no miracle cure... we have

to cut back our intake to loose weight!