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Audra,

I hurt everyday. I never know from one day to the next. I've been

asked to participate in a new study at Vanderbilt University. I'm

trying to keep my job but don't know how long I'll be able to.

Recently the worst thing has been the fatigue...God it's horrible.

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Hi Audra,

You are not losing you mind.Fibromyalgia is for real

and you got to be really strong to cope without

'losing you mind'or sanity.I know because i have been

dealing with it for many years-the

pain,stiffness,brain fog,depression,bowel problems etc

etc.The sad thing about this condition is that almost

everybody will doubt the seriousness of you

condition-even your doctors.You really don't look like

you are sick-physically.I have tried many many

programs ,doctors but nothing helped significantly.I

have this appointment with a doctor on the 19th May

($500.00) for a visit.I was told that he's good.I had

to make an appointment four months in advance before I

can see him -that's how much people are seeing this

doctor.

I will keep you up to date if I do see any

improvement.Take care.

--- Audra wrote:

> In April 2005, I went to step out of bed and was

> frozen. Have had my

> tendons cut, been a pharmacy guinea pig, have gained

> 45 pounds, lost at

> least two years in sleep, the jumpy legs, the

> burning skin, the blurry

> vision....this doctor to that doctor before I was

> diagnosed with

> Fibromialgia. A week earlier, my sister was

> diagnosed with it. She

> went the opposite way though. She's down to a size

> one and can no

> longer work. I want to be involved with people who

> go through the same

> thing. I want to know that I'm not losing my mind.

> Find out what we

> can do about this.

>

>

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>

Hi well i agree its so hard to get people to understand this

condition one thing thats is currently present is whenever i go to

talk to someone or explain i find my self in tears. Im not sure if

this is the condition or the frustration..

I have triend three new products

moducare Available on the internet

Active Cherry capsuls Available off the internet

and Q10.

Quite by accident I found doctor on Monday here in manchester UK a

pain specialist based at the

The ek curative centre

Mr ernest King BA(psy) hsychologist,magnetherapist, hynotherapist

hydra therpist bio energy therapist grander water ecoflow/bio flow

rep he charges £80-00 for a 2 hour session and i ahve decided Im

gonna give this a try and will up date after I have been. There is a

website www.curative.freewebsitehosting.com or

ernie@...

Janet

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Hi, my name is Sheryl. I am a 51

year old primary teacher who has been married to Ian for the past 20 months. I

think that Ian has Aspergers which is affecting our relationship. I need advice

for supporting Ian and for myself on how to cope with this. I love him very

much but his attitude towards me is at times unbearable.

Sheryl

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sherylhare@... wrote:

> Hi Cluadia,

> I haven't mentioned it to Ian but I have to his daughter who is a

> social worker / disabilities nurse. She agrees. Let me explain why I

> think this. Ian is an intelligent man who is ill at ease in social

> situations. At first I thought that this was shyness. He doesn't

....

It is a pity there isn't an FAQ for Aspires. What you describe has been

written many times although you put it much better than most.

What to do about it is the tough one.

I think it goes along the lines of look after yourself where that means

find a way to get some emotional support elsewhere, make time to work

out what to do next.

As far as Ian is concerned, don't push, don't trip problems. Either can

be highly counter productive.

In my opinion he needs to grow up but that might not mean quite what you

think it does. This can be a slow process.

If Bill reads this: we need a good text on how to wake up a zombie which

has good end result. Can't think of another way to put this.

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Tim Channon wrote:

> sherylhare@... wrote:

>> Hi Cluadia,

>> I haven't mentioned it to Ian but I have to his daughter who is a

>> social worker / disabilities nurse. She agrees. Let me explain why I

>> think this. Ian is an intelligent man who is ill at ease in social

>> situations. At first I thought that this was shyness. He doesn't

>

> ...

>

> It is a pity there isn't an FAQ for Aspires. What you describe has been

> written many times although you put it much better than most.

>

> What to do about it is the tough one.

>

> I think it goes along the lines of look after yourself where that means

> find a way to get some emotional support elsewhere, make time to work

> out what to do next.

Yes.

>

> As far as Ian is concerned, don't push, don't trip problems. Either can

> be highly counter productive.

Yes.

>

> In my opinion he needs to grow up but that might not mean quite what you

> think it does. This can be a slow process.

Yes.

>

> If Bill reads this: we need a good text on how to wake up a zombie which

> has good end result. Can't think of another way to put this.

>

I'm reading; noting the expressed need... " Real soon now. " <??>

Adding to Tim's wise words -- It's been said here over and over and

over, ...and over:

HE has to " buy into " the notion that he's " on the spectrum " . *And*

he has to _buy into_ the fact(!) that he's NOT mentally ill.

He, and me, ...and Tim, and , and Ron, and Greg, and , and

Jennie and all the other Real Live AS on this list simply have a

different way of thinking than do you.

He has, *we* have, a cognitive style different from yours. A

somewhat different view of the world; a different slant on what goes on

in it; and a different way of handling conflict.

He *must* learn to accept that, ...to *embrace* it. He has to learn how

to use its strength and compensate for its difference.

And so do you!

If he can learn to do that, and you can learn a little of how he's doing

it, the two of you CAN make it.

It's *as though* you come from very different cultural backgrounds, when

in fact probably you don't.

But you're the gay and voluble French lady; he's the phlegmatic but

volatile Russian male. That's going to take a bit of work.

Remember: It *always* takes " Two to Tango " . Neither of you can do it

alone. *Both* of you must bend your best effort to the task(s).

Practical advice:

He's *male*. ALL males have fragile egos!

*AS male* egos are more fragile than others'. Protect his ego; don't

attack it. He's not your enemy, and doesn't *want* to be.

- Bill, older, dx AS; ...40-odd years married (2nd time 'round).

--

WD " Bill " Loughman - Berkeley, California USA

http://home.earthlink.net/~wdloughman/wdl.htm

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