this is interesting

[Guest guest]

Ed,

I just went to that blog for a brief moment and saw what it said. So

does Barb12 own this blog? Amazing.

phine

>

> it seems that phine and I are being quoted on a blog.

>

> The quotes are being drawn directly from the bypass support group

> which I belong to and have for years.

>

> There is one particular member on the bypass group who is very

> authoritative and bossy and thinks she runs the group. Many

> of the other group members have written to me outside of the

> group and have told me that her MO is to stir things up and argue

> with people who are sending articles or studies which are against

> what she believes and what she believes the other members of the

> group should learn about.

>

> It is now suspected that she has a blog where she posts quotes

> from the bypass group but are one sided .. she shows the quotes

> from the people who are not in her favor.

>

> She even told phine and I to quit the group since she thinks

> we are pushing the sales of supplements to the members there.

>

> Other members have told her within the group to basically keep

> quiet because they are learning things from what phine and I

> are saying and it is unfair for her to monopolize the group.

>

> The bypass group has no owner or moderator any longer. I knew

> the owner (Anne MacCrae) when I first joined the group but I

> believe she has died since then for her email is bouncing in

> the members list.

>

> Anyway ... here is the link to the blog

>

>

http://coronaryheart-disease.blogspot.com/2008/06/re-bypasssurgeryrecoverysuppor\

t-re-re_15.html

>

> Ed

>

[Guest guest]

I do believe that it is barb's blog for on one of the pages

she called me a hypocrite and it was not a quote from the group

message board. It was the owner of the blog making that

statement.

> >

> > it seems that phine and I are being quoted on a blog.

> >

> > The quotes are being drawn directly from the bypass support group

> > which I belong to and have for years.

> >

> > There is one particular member on the bypass group who is very

> > authoritative and bossy and thinks she runs the group. Many

> > of the other group members have written to me outside of the

> > group and have told me that her MO is to stir things up and argue

> > with people who are sending articles or studies which are against

> > what she believes and what she believes the other members of the

> > group should learn about.

> >

> > It is now suspected that she has a blog where she posts quotes

> > from the bypass group but are one sided .. she shows the quotes

> > from the people who are not in her favor.

> >

> > She even told phine and I to quit the group since she thinks

> > we are pushing the sales of supplements to the members there.

> >

> > Other members have told her within the group to basically keep

> > quiet because they are learning things from what phine and I

> > are saying and it is unfair for her to monopolize the group.

> >

> > The bypass group has no owner or moderator any longer. I knew

> > the owner (Anne MacCrae) when I first joined the group but I

> > believe she has died since then for her email is bouncing in

> > the members list.

> >

> > Anyway ... here is the link to the blog

> >

> >

>

http://coronaryheart-disease.blogspot.com/2008/06/re-bypasssurgeryrecoverysuppor\

t-re-re_15.html

> >

> > Ed

> >

>

[Guest guest]

ANAPHYLAXIS,IGE MEDIATED, NON IGE MEDIATED, COMMENT SECTION,

http://www.medicinenet.com/anaphylaxis/page4.htm

[Guest guest]

Mayleen,

it seems like my throat reaction is quite similar to what you

describe. I also have an epi pen now after a couple scares but

I'm afraid to use it because I'm not sure how I will react to the

epinephrine. I have heart palpitations all the time; my system is

always on overdrive, or, in fight/flight. Certain medications, even

natural estrogen ramp up my system so that I feel I've just taken

speed. Anyway, I was wondering if you have ever tried the epi pen?

All the people I know from Rea's use histamine shots for their

anaphalaxis and, like me, are afraid to use the epi pen. ( I don't

have histamine.) So I've never met anyone with severe MCS who has

actually used the epi pen. Anne

On Dec 16, 2009, at 10:22 PM, dragonflymcs wrote:

>

> Yes it is the kind I have been getting from perfume. I have not

> full anaphalaxis but now have an epi pen since my throat swells so

> much I may get there. Non-allergy mediated.

>

>

>

> God Bless !!

> dragonflymcs

> Mayleen

>

> ________________________________

> From: osisposis <jeaninem660@...>

>

> Sent: Wed, December 16, 2009 2:30:46 PM

> Subject: [] this is interesting

>

>

> ANAPHYLAXIS, IGE MEDIATED, NON IGE MEDIATED, COMMENT SECTION,

> http://www.medicine net.com/anaphyla xis/page4. htm

>

>

[Guest guest]

Hi Anne,

Sorry about how you are feeling.  I get a racing heart as well.  I have not

used the epi-pen yet.  I hope not to, but I carry it always just in case.  I

do not have an EI Dr at the moment and am not familiar with the histamine

shots.  Can you tell me about them?? 

I carry baking soda mxed with buffered C everywhere I go.  So if I feel sick

from exposure I start taking it right away and sip on it anyways. 

Two days ago I went out in search of a temporary place to live.  I took off my

mask and was not wearing my 02 because I was outside near the ocean and it was

hot to wear the mask  About 15 minutes into being exposed a had an infection

festering.  It grew as a lunp which is why I knew in my mouth on a molar.  So

right away I ran and got my bottle of bs and c and started drinking it. 

About 2 hours later it started going down.  I kept taking bs I prepared when I

got back and drank a glass and later that evening another.  I took garlic as

well and by the next day it was gone.  TG !!  This works for me as well. 

Can you tell me the name of those histamine shots ??  What brand of b12 do you

take if any ??  Yesterday I went out looking for some idea of a make-shift

bed.  The store had holiday stinks in it.  Today my leg is not working well

and is painful.  This time the BS is not working.  I have drank a glass and

the bottle I always have and my leg is still bad.  Like my nerves were

affected.  I guess I am going to try a detox bath this time.  Do you get this

?? 

 

 Dragonfly ... Breaks illusions, Brings visions of power, No need to prove it,

Now is the hour! Know it, believe it, Great Spirit intercedes, Feeding you,

blessing you, Filling all your needs. By DCarson JSams

God Bless !!

dragonflymcs

Mayleen

________________________________

From: Anne Reach <dravr@...>

Sent: Thu, December 17, 2009 4:49:23 AM

Subject: Re: [] this is interesting

 

Mayleen,

it seems like my throat reaction is quite similar to what you

describe. I also have an epi pen now after a couple scares but

I'm afraid to use it because I'm not sure how I will react to the

epinephrine. I have heart palpitations all the time; my system is

always on overdrive, or, in fight/flight. Certain medications, even

natural estrogen ramp up my system so that I feel I've just taken

speed. Anyway, I was wondering if you have ever tried the epi pen?

All the people I know from Rea's use histamine shots for their

anaphalaxis and, like me, are afraid to use the epi pen. ( I don't

have histamine.) So I've never met anyone with severe MCS who has

actually used the epi pen. Anne

[Guest guest]

what type of testing is done to show non ige mediated anaphalaxis?

is it based on your symptoms and a lack of ige responce ?

yes, I have problems with my throat trying to close up too.

>

>

> Yes it is the kind I have been getting from perfume.  I have not full

anaphalaxis but now have an epi pen since my throat swells so much I may get

there.  Non-allergy mediated.

>

>  

>

> God Bless !!

> dragonflymcs

> Mayleen

[Guest guest]

same here, afraid the epi pen may bring on a heart attack.

>

> Mayleen,

>

> it seems like my throat reaction is quite similar to what you

> describe. I also have an epi pen now after a couple scares but

> I'm afraid to use it because I'm not sure how I will react to the

> epinephrine. I have heart palpitations all the time; my system is

> always on overdrive, or, in fight/flight. Certain medications, even

> natural estrogen ramp up my system so that I feel I've just taken

> speed. Anyway, I was wondering if you have ever tried the epi pen?

> All the people I know from Rea's use histamine shots for their

> anaphalaxis and, like me, are afraid to use the epi pen. ( I don't

> have histamine.) So I've never met anyone with severe MCS who has

> actually used the epi pen. Anne

>

>

[Guest guest]

Mayleen,

I use tri-salts or bi-salts and Vitamin C also. Sometimes I give

myself shots of dephenhydramine. They work better as preventatives,

though. Sometimes Bromelain helps. Strangely zinc lonzenges help

when my throat gets tight. I have no idea why/how this works.

I thought you had been a patient of Dr. Rea's. I guess I was wrong.

The Histamine I was referring to is an antigen that will turn off

reactions. I was never able to get a good " endpoint. " so I don't

have a shot. Unfortunately, the only way to get the shot is to go to

his clinic (or one like it) and test for it.

I use B12 (methylcobalamin) by Thorne as well as Perque Activated

B-12 Guard sublingual tablets.

I also use garlic for sinus or gut infections (or to prevent them)

or if I feel something viral going on. It's sort of a cure-all in my

house. And, yes, I do detox baths with Epsom salts, sea salt and/or

baking soda.

Anne

On Dec 17, 2009, at 12:21 PM, dragonflymcs wrote:

> Hi Anne,

>

> Sorry about how you are feeling. I get a racing heart as well. I

> have not used the epi-pen yet. I hope not to, but I carry it

> always just in case. I do not have an EI Dr at the moment and am

> not familiar with the histamine shots. Can you tell me about them??

> I carry baking soda mxed with buffered C everywhere I go. So if I

> feel sick from exposure I start taking it right away and sip on it

> anyways.

> Two days ago I went out in search of a temporary place to live. I

> took off my mask and was not wearing my 02 because I was outside

> near the ocean and it was hot to wear the mask About 15 minutes

> into being exposed a had an infection festering. It grew as a lunp

> which is why I knew in my mouth on a molar. So right away I ran

> and got my bottle of bs and c and started drinking it.

>

> About 2 hours later it started going down. I kept taking bs I

> prepared when I got back and drank a glass and later that evening

> another. I took garlic as well and by the next day it was gone.

> TG !! This works for me as well.

>

> Can you tell me the name of those histamine shots ?? What brand of

> b12 do you take if any ?? Yesterday I went out looking for some

> idea of a make-shift bed. The store had holiday stinks in it.

> Today my leg is not working well and is painful. This time the BS

> is not working. I have drank a glass and the bottle I always have

> and my leg is still bad. Like my nerves were affected. I guess I

> am going to try a detox bath this time. Do you get this ??

>

>

> Dragonfly ... Breaks illusions, Brings visions of power, No need

> to prove it, Now is the hour! Know it, believe it, Great Spirit

> intercedes, Feeding you, blessing you, Filling all your needs. By

> DCarson JSams

>

> God Bless !!

> dragonflymcs

> Mayleen

[Guest guest]

I do know of any testing done for this, I got the epi pen on only symptom based,

the Dr said I do not know what to write down for it...............but based on

symptoms I was having that kind of reactions. You can get to complete

anaphalaxis from swelling throat.  The symptoms are the same except for how

they are obtained allergy mediated, non-allergy mediated. 

 

 

God Bless !!

dragonflymcs

Mayleen

________________________________

From: osisposis <jeaninem660@...>

Sent: Thu, December 17, 2009 12:45:57 PM

Subject: [] Re: this is interesting

 

what type of testing is done to show non ige mediated anaphalaxis?

is it based on your symptoms and a lack of ige responce ?

yes, I have problems with my throat trying to close up too.

[Guest guest]

We do pretty much the same things.  I was looking for another type of B-12 so I

will look into those.   I also do hydrgen peroxide baths.  I had an EI here

but on medicaid right now and for a while so I have not had one in a few

years.  Others I have do not know anything about it.  One is very receptive

though................ 

 

God Bless !!

dragonflymcs

Mayleen

________________________________

From: Anne Reach <dravr@...>

Sent: Thu, December 17, 2009 12:55:36 PM

Subject: Re: [] this is interesting

 

Mayleen,

I use tri-salts or bi-salts and Vitamin C also. Sometimes I give

myself shots of dephenhydramine. They work better as preventatives,

though. Sometimes Bromelain helps. Strangely zinc lonzenges help

when my throat gets tight. I have no idea why/how this works.

I thought you had been a patient of Dr. Rea's. I guess I was wrong.

The Histamine I was referring to is an antigen that will turn off

reactions. I was never able to get a good " endpoint. " so I don't

have a shot. Unfortunately, the only way to get the shot is to go to

his clinic (or one like it) and test for it.

I use B12 (methylcobalamin) by Thorne as well as Perque Activated

B-12 Guard sublingual tablets.

I also use garlic for sinus or gut infections (or to prevent them)

or if I feel something viral going on. It's sort of a cure-all in my

house. And, yes, I do detox baths with Epsom salts, sea salt and/or

baking soda.

Anne

[Guest guest]

I think some doctors are starting to reconize that theres some dfferences in

allergic and be sensitive,hypersensitive or reactive to something, haveing both

sucks. my skin has became so sensitive my once clear skin is often itchy and

rashy.

>

> I do know of any testing done for this, I got the epi pen on only symptom

based, the Dr said I do not know what to write down for it...............but

based on symptoms I was having that kind of reactions. You can get to complete

anaphalaxis from swelling throat.  The symptoms are the same except for how

they are obtained allergy mediated, non-allergy mediated. 

>  

>  

> God Bless !!

> dragonflymcs

> Mayleen

[Guest guest]

Doesn't the buffered vit c already have sodium in it, to buffer it? If you

drink both sodium bicarb and ascorbic acid at the same time, doesn't that knock

the good of each of them out? The high ph and the low ph? I'm not sure, just

wondering. I would think alternating them would be better. Perhaps an hour or

so apart.

>

> Hi Anne,

>

> Sorry about how you are feeling.  I get a racing heart as well.  I have not

used the epi-pen yet.  I hope not to, but I carry it always just in case.  I

do not have an EI Dr at the moment and am not familiar with the histamine

shots.  Can you tell me about them?? 

> I carry baking soda mxed with buffered C everywhere I go.  So if I feel sick

from exposure I start taking it right away and sip on it anyways. 

>

[Guest guest]

What are tri-salts and bi-salts? I guess bi-salts are sodium bicarbonate/baking

soda, but not sure what tri-salts are.

Do you use garlic tablets or fresh garlic for stomach problems?

>

>I use tri-salts or bi-salts and Vitamin C also. Sometimes I give

> myself shots of dephenhydramine. They work better as preventatives,

> though. Sometimes Bromelain helps. Strangely zinc lonzenges help

> when my throat gets tight. I have no idea why/how this works.

>

> I thought you had been a patient of Dr. Rea's. I guess I was wrong.

> The Histamine I was referring to is an antigen that will turn off

> reactions. I was never able to get a good " endpoint. " so I don't

> have a shot. Unfortunately, the only way to get the shot is to go to

> his clinic (or one like it) and test for it.

>

> I use B12 (methylcobalamin) by Thorne as well as Perque Activated

> B-12 Guard sublingual tablets.

>

> I also use garlic for sinus or gut infections (or to prevent them)

> or if I feel something viral going on. It's sort of a cure-all in my

> house. And, yes, I do detox baths with Epsom salts, sea salt and/or

> baking soda.

>wrote:

>

[Guest guest]

but really sence allergy testing can also show a " allergy " to a chemical or

something like a bee sting, and anaphalaxis effects and MCS effects can be very

simular, it's really hard to know where somethings began and end,hopefully

science will some day be able seperate it all or get rid of the term allergy

alltogether.

kindof hate that word " allergy " but because it's not defined and people can get

very sick from allergies and chronic exposure to a allergen because of the

immune system effects, and the problem with the most common listed affects of a

allergy, it's just a aggervating subject, so I dont go there much anymore.

exactly why some people have ige mediated responces and some dont,

I think theres still unanswered questions there, haven't been researching much

lately so they may have something new on this.

cant say I'm thinking to good right now so I just cant go there.

> >

> > I do know of any testing done for this, I got the epi pen on only symptom

based, the Dr said I do not know what to write down for it...............but

based on symptoms I was having that kind of reactions. You can get to complete

anaphalaxis from swelling throat.  The symptoms are the same except for how

they are obtained allergy mediated, non-allergy mediated. 

> >  

> >  

> > God Bless !!

> > dragonflymcs

> > Mayleen

>

[Guest guest]

These are products that I get from Dr. Rea's clinic, though they are

sold elsewhere. Tri-salts are made up of Calcium Carbonate,

Potassium Bicarbonate and Sodium Bicarbonate. Bi-Salts have just the

Calcium and the Potassium. These are used, along with Vitaminc C

after sauna and for reactions. Sherry also recommends them

being used together. Anne

On Dec 17, 2009, at 10:48 PM, barb b w wrote:

> What are tri-salts and bi-salts? I guess bi-salts are sodium

> bicarbonate/baking soda, but not sure what tri-salts are.

>

> Do you use garlic tablets or fresh garlic for stomach problems?

>

>

> >

> >I use tri-salts or bi-salts and Vitamin C also. Sometimes I give

> > myself shots of dephenhydramine. They work better as preventatives,

> > though. Sometimes Bromelain helps. Strangely zinc lonzenges help

> > when my throat gets tight. I have no idea why/how this works.

> >

> > I thought you had been a patient of Dr. Rea's. I guess I was wrong.

> > The Histamine I was referring to is an antigen that will turn off

> > reactions. I was never able to get a good " endpoint. " so I don't

> > have a shot. Unfortunately, the only way to get the shot is to go to

> > his clinic (or one like it) and test for it.

> >

> > I use B12 (methylcobalamin) by Thorne as well as Perque Activated

> > B-12 Guard sublingual tablets.

> >

> > I also use garlic for sinus or gut infections (or to prevent them)

> > or if I feel something viral going on. It's sort of a cure-all in my

> > house. And, yes, I do detox baths with Epsom salts, sea salt and/or

> > baking soda.

> >wrote:

> >

>

>

[Guest guest]

I do not know that but will look into it.  Seems to work for me

.................I got a big ball of nsty on my molar and it went down

 

God Bless !!

dragonflymcs

Mayleen

________________________________

From: barb b w <barb1283@...>

Sent: Thu, December 17, 2009 10:43:59 PM

Subject: [] Re: this is interesting

 

Doesn't the buffered vit c already have sodium in it, to buffer it? If you drink

both sodium bicarb and ascorbic acid at the same time, doesn't that knock the

good of each of them out? The high ph and the low ph? I'm not sure, just

wondering. I would think alternating them would be better. Perhaps an hour or so

apart.

[Guest guest]

I do not know about tri-salts................I use organic garlic cloves whole

with some water. Then I use garlic pearls from Solgar they have organic

pearls.  I use baking soda  and buffered vit C  

 

 I am moving so sorry for the dalays in the emails.  Apt downstairs got

flooded ceilings caved in and walls, mold again or should I say a lot more.  So

we are on the run, leaving what little we had................

God Bless !!

dragonflymcs

Mayleen

________________________________

From: barb b w <barb1283@...>

Sent: Thu, December 17, 2009 10:48:18 PM

Subject: [] Re: this is interesting

 

What are tri-salts and bi-salts? I guess bi-salts are sodium bicarbonate/ baking

soda, but not sure what tri-salts are.

Do you use garlic tablets or fresh garlic for stomach problems?