Re: Re: runs off at the mouth

[Guest guest]

Dear Karin,

I understand your frustrations. Respirologists often

seem to understand very little about bronchiectasis.

Unfortunately, some assume that it is not serious, but

it can be.

Actually, concerning women with CF having children

many are doing just that and raising families. As far

as weight goes people with CF come in all shapes in

sizes. Many are thin or even under weight. CF clinics

also see people with CF who are of average weight and

even treat patients that are over weight. One of my CF

friends actually weights over 200 pounds. CF is a

complex disease with a wide spectrum of symptoms.

You may receive better care at St. Mike's and I'd

encourage you to move now rather than wait.

Hugs:0)

Liz

e-mail:maryholt12@... or lungsformary@...

Pre-Lung Transplant Journey - For updates please visit my carepage and leave a

message. Thank you!:0)

carepages.com name:maryelizabethholt

) " Miracles happen with love..... " ..... Please support your local children's

hospital.... and " Give with all your might! "

http://iwkfoundation.org/

)Visit.... Children's Miracle Network.... http://www.cmn.org/ )

" I don't give in, I don't give up, and I don't take no for an answer. "

~Doris ~

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[Guest guest]

Dear Karin,

That's terrible. One wonders how these doctors want to

be treated as they get older. Noticed the same

scenario with my mother's care even before she

developed dementia. It still bothers me.Everyone needs

treatment and compassion regardless of their age.

Hugs:0)

Liz

--- Karin wrote:

> I've had many respirologists in the last 40 years.

> When I was 20, I

> was given excellent care. I noticed since I turned

> 60, the doctors

> don't seem to care. I'm single, adult son (37).

> They don't need me.

>

> Karin

>

>

>

>

>

> >

> > i had the same problem for a long time! no resp

> that i went to

> thought bronch was anything to worry about and

> glossed over my

> insistant requests to get a cf panel done.

> > so i kept changing resps. i went through 4 or 5

> before i finally got

> to the one i currently have and love.

>

>

>

>

>

>

e-mail:maryholt12@... or lungsformary@...

Pre-Lung Transplant Journey - For updates please visit my carepage and leave a

message. Thank you!:0)

carepages.com name:maryelizabethholt

) " Miracles happen with love..... " ..... Please support your local children's

hospital.... and " Give with all your might! "

http://iwkfoundation.org/

)Visit.... Children's Miracle Network.... http://www.cmn.org/ )

" I don't give in, I don't give up, and I don't take no for an answer. "

~Doris ~

__________________________________________________