Re: Tricia , intro

[Guest guest]

LOL Tricia, this is all I can think of too!! I like your line of thinking!!

Positive, Positive!

How are you doing? I'm not sure I've seen you peek your head in before. lol I

bet you are one of the old timers who doesn't post much, but lurks? I'm a newbie

as you probably know! lol I just love this group. It's the best thing I could

ever be a part of. Everyone here has helped me so very much. Finally a place

where everyone understands pain and the meds it takes to care for chronic pain.

I've been a part of Chronic Illness groups only to never get the support I

really needed. Here I do and I'm able to give back to everyone as I understand

them as well. I love it!!

What causes your pain, if I may ask? Mine is due to Fibro, Spinal Stenosis in

neck and back, and OsteoArthritis. And I've had a fusion in my neck with a graft

from the hip. I also suffer from Neuropathy, but its well controlled with

Neurontin so it doesn't give me much break through trouble.

I hope to see you around more.

Love, hugs and prayers!

Tommie

Re: Leaving Group

i think we are under investigation for being too caring of our fellow

pain sufferers. it's either that or the aliens that we let in the group.

At 10:46 AM 12/30/2006, you wrote:

.

[Guest guest]

Hi, Tommie. I wouldn't say I was an old timer, but not a newbie to

the group either. I have Reflex Sympathetic Dystrophy, neuropathy,

foot drop, IBS, Restless Leg Syndrome, and a host of other problems.

And presently, I have bronchitis. So I can't wait for 2006 to end!

2007 HAS to be better, right? I was on Neurontin, at the highest

level, but it didn't help me anymore. I now take Gabitril. I am also

on Fentanyl patches for pain, Baclofen (a muscle relaxer), an

anti-nausea medication, Nexium, and others that I can't even think of

right now! It's a good thing that someone invented those pill

organizers because my short term memory is so bad.

At 12:24 PM 12/30/2006, you wrote:

>LOL Tricia, this is all I can think of too!! I like your line of

>thinking!! Positive, Positive!

>

>How are you doing? I'm not sure I've seen you peek your head in

>before. lol I bet you are one of the old timers who doesn't post

>much, but lurks? I'm a newbie as you probably know! lol I just love

>this group. It's the best thing I could ever be a part of. Everyone

>here has helped me so very much. Finally a place where everyone

>understands pain and the meds it takes to care for chronic pain.

>I've been a part of Chronic Illness groups only to never get the

>support I really needed. Here I do and I'm able to give back to

>everyone as I understand them as well. I love it!!

>

>What causes your pain, if I may ask? Mine is due to Fibro, Spinal

>Stenosis in neck and back, and OsteoArthritis. And I've had a fusion

>in my neck with a graft from the hip. I also suffer from Neuropathy,

>but its well controlled with Neurontin so it doesn't give me much

>break through trouble.

>

>I hope to see you around more.

>

>Love, hugs and prayers!

>Tommie

>-

[Guest guest]

Tricia, I noticed you are on the dura-gesic patches. my mama used those. Do they

make you have night sweats?

~:~Jena~:~

My Home Page

My E-mail

Re: Tricia , intro

Hi, Tommie. I wouldn't say I was an old timer, but not a newbie to

the group either. I have Reflex Sympathetic Dystrophy, neuropathy,

foot drop, IBS, Restless Leg Syndrome, and a host of other problems.

And presently, I have bronchitis. So I can't wait for 2006 to end!

2007 HAS to be better, right? I was on Neurontin, at the highest

level, but it didn't help me anymore. I now take Gabitril. I am also

on Fentanyl patches for pain, Baclofen (a muscle relaxer), an

anti-nausea medication, Nexium, and others that I can't even think of

right now! It's a good thing that someone invented those pill

organizers because my short term memory is so bad.

At 12:24 PM 12/30/2006, you wrote:

>LOL Tricia, this is all I can think of too!! I like your line of

>thinking!! Positive, Positive!

>

>How are you doing? I'm not sure I've seen you peek your head in

>before. lol I bet you are one of the old timers who doesn't post

>much, but lurks? I'm a newbie as you probably know! lol I just love

>this group. It's the best thing I could ever be a part of. Everyone

>here has helped me so very much. Finally a place where everyone

>understands pain and the meds it takes to care for chronic pain.

>I've been a part of Chronic Illness groups only to never get the

>support I really needed. Here I do and I'm able to give back to

>everyone as I understand them as well. I love it!!

>

>What causes your pain, if I may ask? Mine is due to Fibro, Spinal

>Stenosis in neck and back, and OsteoArthritis. And I've had a fusion

>in my neck with a graft from the hip. I also suffer from Neuropathy,

>but its well controlled with Neurontin so it doesn't give me much

>break through trouble.

>

>I hope to see you around more.

>

>Love, hugs and prayers!

>Tommie

>-

------------------------------------------------------------------------------

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Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.16.0/609 - Release Date: 12/29/2006

[Guest guest]

Not that I have noticed. I like the fact that I don't have to take a

pill because I have so many problems with my stomach. I find that it

helps to alleviate the pain, but I get a lot of break through pain

that will be addressed at my next appointment. They keep changing my

drugs because I have adverse reactions. They put me on Methadone. I

had absolutely no pain - but they made me so sick that I couldn't

take it. And even after I stopped taking it, I was still 'out of it'

from the pills.

At 05:28 AM 12/31/2006, you wrote:

>Tricia, I noticed you are on the dura-gesic patches. my mama used

>those. Do they make you have night sweats?

>

>~:~Jena~:~

>My Home Page

>My E-mail

[Guest guest]

Mama is on a fairly high dose. Her patches are 75mg. where my aunt that has

fibro. she is on the 25mg just as needed. Mama changes hers every 3 days.

~:~Jena~:~

My Home Page

My E-mail

Re: Tricia , intro

Not that I have noticed. I like the fact that I don't have to take a

pill because I have so many problems with my stomach. I find that it

helps to alleviate the pain, but I get a lot of break through pain

that will be addressed at my next appointment. They keep changing my

drugs because I have adverse reactions. They put me on Methadone. I

had absolutely no pain - but they made me so sick that I couldn't

take it. And even after I stopped taking it, I was still 'out of it'

from the pills.

At 05:28 AM 12/31/2006, you wrote:

>Tricia, I noticed you are on the dura-gesic patches. my mama used

>those. Do they make you have night sweats?

>

>~:~Jena~:~

>My Home Page

>My E-mail

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.16.0/609 - Release Date: 12/29/2006

[Guest guest]

I am on the 50 mcg patches and change them every 2 days. But I think

he is going to up mine to the 75 as the 50's aren't cutting it either.

At 06:01 AM 12/31/2006, you wrote:

>Mama is on a fairly high dose. Her patches are 75mg. where my aunt

>that has fibro. she is on the 25mg just as needed. Mama changes hers

>every 3 days.

>

>~:~Jena~:~

>My Home Page

>My E-mail

>

> Re: Tricia , intro

>

>Not that I have noticed. I like the fact that I don't have to take a

>pill because I have so many problems with my stomach. I find that it

>helps to alleviate the pain, but I get a lot of break through pain

>that will be addressed at my next appointment. They keep changing my

>drugs because I have adverse reactions. They put me on Methadone. I

>had absolutely no pain - but they made me so sick that I couldn't

>take it. And even after I stopped taking it, I was still 'out of it'

>from the pills.

>

>At 05:28 AM 12/31/2006, you wrote:

>

> >Tricia, I noticed you are on the dura-gesic patches. my mama used

> >those. Do they make you have night sweats?

> >

> >~:~Jena~:~

> >My Home Page

> >My E-mail

>

>----------------------------------------------------------

>

>No virus found in this incoming message.

>Checked by AVG Free Edition.

>Version: 7.1.409 / Virus Database: 268.16.0/609 - Release Date: 12/29/2006

>

>

[Guest guest]

Hi Tricia,

I agree with you on the pill organizers. I have 2 of them, weekly ones, my nurse

comes by every 2 wks and fills them up and draws up 2 wks worth of my long

acting Insulin too. This way I only have to handle my short acting Insulin as I

almost put myself in a coma once with the insulin. And have had to call poison

control a couple of other times due to over dosing myself with my other meds. I

take, I think, 28 pills per day, not including pain meds or allergy stuff when

needed. So, no, I don't want to mix my meds up or take too much of anything. lol

The Neurontin, I can only take a small dose of it as it caused too much

sleepiness. I only take 600mg 3x's a day and it helps for what I need it for.

Oh RSD I hear is a really bad illness to live with Bless you. Do you take

Requip for the RLS? I use to take that for mine, but I'm not too terribly

bothered by the RLS anymore, after many years of having horrible times with it.

The Requip helped me when I use to take it.

Yes, 2007 MUST be better! I don't want to see worse. lol

Hugs

Tommie

Re: Tricia , intro

Hi, Tommie. I wouldn't say I was an old timer, but not a newbie to

the group either. I have Reflex Sympathetic Dystrophy, neuropathy,

foot drop, IBS, Restless Leg Syndrome, and a host of other problems.

And presently, I have bronchitis. So I can't wait for 2006 to end!

2007 HAS to be better, right? I was on Neurontin, at the highest

level, but it didn't help me anymore. I now take Gabitril. I am also

on Fentanyl patches for pain, Baclofen (a muscle relaxer), an

anti-nausea medication, Nexium, and others that I can't even think of

right now! It's a good thing that someone invented those pill

organizers because my short term memory is so bad.

At 12:24 PM 12/30/2006, you wrote:

>LOL Tricia, this is all I can think of too!! I like your line of

>thinking!! Positive, Positive!

>

>How are you doing? I'm not sure I've seen you peek your head in

>before. lol I bet you are one of the old timers who doesn't post

>much, but lurks? I'm a newbie as you probably know! lol I just love

>this group. It's the best thing I could ever be a part of. Everyone

>here has helped me so very much. Finally a place where everyone

>understands pain and the meds it takes to care for chronic pain.

>I've been a part of Chronic Illness groups only to never get the

>support I really needed. Here I do and I'm able to give back to

>everyone as I understand them as well. I love it!!

>

>What causes your pain, if I may ask? Mine is due to Fibro, Spinal

>Stenosis in neck and back, and OsteoArthritis. And I've had a fusion

>in my neck with a graft from the hip. I also suffer from Neuropathy,

>but its well controlled with Neurontin so it doesn't give me much

>break through trouble.

>

>I hope to see you around more.

>

>Love, hugs and prayers!

>Tommie

>-

[Guest guest]

Tricia,

One of my sisters takes Methadone and she tells me that it has as " reservoir "

and builds up in your system. This would be why you were still loopy after

stopping it. It takes about 10 days for it to get out of your system on that

level.

Re: Tricia , intro

Not that I have noticed. I like the fact that I don't have to take a

pill because I have so many problems with my stomach. I find that it

helps to alleviate the pain, but I get a lot of break through pain

that will be addressed at my next appointment. They keep changing my

drugs because I have adverse reactions. They put me on Methadone. I

had absolutely no pain - but they made me so sick that I couldn't

take it. And even after I stopped taking it, I was still 'out of it'

from the pills.

At 05:28 AM 12/31/2006, you wrote:

>Tricia, I noticed you are on the dura-gesic patches. my mama used

>those. Do they make you have night sweats?

>

>~:~Jena~:~

>My Home Page

>My E-mail

[Guest guest]

Hopefully that will help. They do Mama. and they do not mess her mind up either.

When she first started going to a pain management dr. he put her on oxycontin.

and she didn't have any idea what was going on. to the fact that I told her if

she could not come to my son's high school graduation without taking one. Not to

come. I didn't want everyone talking about her being stoned. as we live in a

small town. and gossip flies. That may sound cruel but it was not intended to

be. it was truly out of love for my Mama.

Jena

~:~Jena~:~

My Home Page

My E-mail

Re: Tricia , intro

>

>Not that I have noticed. I like the fact that I don't have to take a

>pill because I have so many problems with my stomach. I find that it

>helps to alleviate the pain, but I get a lot of break through pain

>that will be addressed at my next appointment. They keep changing my

>drugs because I have adverse reactions. They put me on Methadone. I

>had absolutely no pain - but they made me so sick that I couldn't

>take it. And even after I stopped taking it, I was still 'out of it'

>from the pills.

>

>At 05:28 AM 12/31/2006, you wrote:

>

> >Tricia, I noticed you are on the dura-gesic patches. my mama used

> >those. Do they make you have night sweats?

> >

> >~:~Jena~:~

> >My Home Page

> >My E-mail

>

>----------------------------------------------------------

>

>No virus found in this incoming message.

>Checked by AVG Free Edition.

>Version: 7.1.409 / Virus Database: 268.16.0/609 - Release Date: 12/29/2006

>

>

[Guest guest]

that's about how long i stayed on the couch! it was horrible. but it

worked very well for the pain.

At 06:35 AM 12/31/2006, you wrote:

>Tricia,

>

>One of my sisters takes Methadone and she tells me that it has as

> " reservoir " and builds up in your system. This would be why you were

>still loopy after stopping it. It takes about 10 days for it to get

>out of your system on that level.

[Guest guest]

I take Mirapex for the RLS. It works well, I just have to be sure

that I am ready to go to bed because if I take it and try to do

something, I walk like a drunk!

At 06:33 AM 12/31/2006, you wrote:

>Hi Tricia,

>

>I agree with you on the pill organizers. I have 2 of them, weekly

>ones, my nurse comes by every 2 wks and fills them up and draws up 2

>wks worth of my long acting Insulin too. This way I only have to

>handle my short acting Insulin as I almost put myself in a coma once

>with the insulin. And have had to call poison control a couple of

>other times due to over dosing myself with my other meds. I take, I

>think, 28 pills per day, not including pain meds or allergy stuff

>when needed. So, no, I don't want to mix my meds up or take too much

>of anything. lol

>The Neurontin, I can only take a small dose of it as it caused too

>much sleepiness. I only take 600mg 3x's a day and it helps for what

>I need it for.

>

>Oh RSD I hear is a really bad illness to live with Bless you. Do

>you take Requip for the RLS? I use to take that for mine, but I'm

>not too terribly bothered by the RLS anymore, after many years of

>having horrible times with it. The Requip helped me when I use to take it.

>

>Yes, 2007 MUST be better! I don't want to see worse. lol

>

>Hugs

>Tommie

>-

[Guest guest]

Wow it kept you on the couch for 10 days? Gosh girl, that had to have been so

frightening and horrible. She say's it really helps her pain too but it isn't a

med to abuse or take more than the doc prescribes. You sure can't self medicate

with Methadone.

Re: Tricia , intro

that's about how long i stayed on the couch! it was horrible. but it

worked very well for the pain.

At 06:35 AM 12/31/2006, you wrote:

>Tricia,

>

>One of my sisters takes Methadone and she tells me that it has as

> " reservoir " and builds up in your system. This would be why you were

>still loopy after stopping it. It takes about 10 days for it to get

>out of your system on that level.

[Guest guest]

Oh no on the Mirapex. lol I bet your family could get a laugh out of that as

long as you don't hurt yourself that is.

Re: Tricia , intro

I take Mirapex for the RLS. It works well, I just have to be sure

that I am ready to go to bed because if I take it and try to do

something, I walk like a drunk!

At 06:33 AM 12/31/2006, you wrote:

>Hi Tricia,

>

>I agree with you on the pill organizers. I have 2 of them, weekly

>ones, my nurse comes by every 2 wks and fills them up and draws up 2

>wks worth of my long acting Insulin too. This way I only have to

>handle my short acting Insulin as I almost put myself in a coma once

>with the insulin. And have had to call poison control a couple of

>other times due to over dosing myself with my other meds. I take, I

>think, 28 pills per day, not including pain meds or allergy stuff

>when needed. So, no, I don't want to mix my meds up or take too much

>of anything. lol

>The Neurontin, I can only take a small dose of it as it caused too

>much sleepiness. I only take 600mg 3x's a day and it helps for what

>I need it for.

>

>Oh RSD I hear is a really bad illness to live with Bless you. Do

>you take Requip for the RLS? I use to take that for mine, but I'm

>not too terribly bothered by the RLS anymore, after many years of

>having horrible times with it. The Requip helped me when I use to take it.

>

>Yes, 2007 MUST be better! I don't want to see worse. lol

>

>Hugs

>Tommie

>-

[Guest guest]

In a message dated 12/31/2006 5:21:21 A.M. Eastern Standard Time,

lafalot7@... writes:

I am also

on Fentanyl patches for pain, Baclofen (a muscle relaxer), an

anti-nausea medication, Nexium, and others that I can't even think of

right now! It's a good thing that someone invented those pill

organizers because my short term memory is so bad.

does the baclofen help the RSd ? my dr asked if i would like to try it with

my other meds I cant use the pain meds often because it depresses my

breathing so I only use it when pain is worse

Rose

[Guest guest]

In a message dated 12/31/2006 4:17:58 P.M. Eastern Standard Time,

lafalot7@... writes:

The Baclofen does help the spasms from the RSD. I was taking

Flexeril, but I had been on that for so long that it no longer worked

for me. I can't say if it makes me sleepy because I take so many meds

that make me sleepy, but I have no adverse effects from it.

I tried flexerill lol I swear I could fall asleep and drown in the gravy on

that 2 years ago I feel asleep floating in the pool and glowed in the dark

for two weeks ... then I started peeling right when I left for Washington dc

I swear I left DNA from Indiana to the white house and back lol

Rose

[Guest guest]

Hiya Tricia,

I know you from another group.

[Guest guest]

It was horrible. I thought I was going to die. I couldn't sit up

because I couldn't support myself. Walking was a nightmare. I had

only taken two - one the night I got the prescription and then one

the next morning and that was it. I didn't move from the couch unless

I absolutely had to. On the plus side, I lost 15 pounds, so that was good!

At 09:26 AM 12/31/2006, you wrote:

>Wow it kept you on the couch for 10 days? Gosh girl, that had to

>have been so frightening and horrible. She say's it really helps her

>pain too but it isn't a med to abuse or take more than the doc

>prescribes. You sure can't self medicate with Methadone.

>----- Original Message -----

[Guest guest]

Isn't it something how a drug will work wonderfully for one thing but

cause such side effects? My RLS was so bad that I couldn't stand it

and the RSD is in my left leg, so the RLS only made my pain worse. I

take the Mirapex then get on the couch, which is my bed. Long story -

but it's the most comfortable place for me to sleep. If only I had a

bathroom downstairs, I would be set!

At 09:27 AM 12/31/2006, you wrote:

>Oh no on the Mirapex. lol I bet your family could get a laugh out of

>that as long as you don't hurt yourself that is.

>

> Re: Tricia , intro

>

>I take Mirapex for the RLS. It works well, I just have to be sure

>that I am ready to go to bed because if I take it and try to do

>something, I walk like a drunk!

[Guest guest]

which one? I am in a bunch!

At 02:24 PM 12/31/2006, you wrote:

>Hiya Tricia,

>I know you from another group.

>

>

>

>_

[Guest guest]

Oh my goodness Tricia! That sounds so terrible

Congrats on the weight loss, but what a way to lose it. lol

Hugs,

Tommie

Re: Tricia , intro

It was horrible. I thought I was going to die. I couldn't sit up

because I couldn't support myself. Walking was a nightmare. I had

only taken two - one the night I got the prescription and then one

the next morning and that was it. I didn't move from the couch unless

I absolutely had to. On the plus side, I lost 15 pounds, so that was good!

At 09:26 AM 12/31/2006, you wrote:

>Wow it kept you on the couch for 10 days? Gosh girl, that had to

>have been so frightening and horrible. She say's it really helps her

>pain too but it isn't a med to abuse or take more than the doc

>prescribes. You sure can't self medicate with Methadone.

>----- Original Message -----