questions

July 24, 2010

lyncia he said if i did have any just a little bit every now and then because it

has guinine in it.so what did they give you instead of tramadol. thanks

lol bev

________________________________

To: livercirrhosissupport

Sent: Sat, July 24, 2010 5:22:04 PM

Subject: Re: questions

Isn't it strange.....my doctor said tonic water might help and it did (I have

end stage liver disease and kidneys functioning at 30% and I am awaiting a liver

and kidney transplant. I guess all doctors are differend. the tramadol did not

work for me either... Sorry.....Lyncia

Thank you God for this day and for my tomorrows .

Love, Lyncia

Subject: questions

To: livercirrhosissupport

Date: Saturday, July 24, 2010, 2:51 PM

hi i am beverly i have cirrhosis i am having a real bad time with legs if anyone

has any sugestions i tried the tonic water put the dr says its not the best

thing to use and he has no clue what i can do i am also having alot of pain in

my stomach the only thing they said i can take is tramadoil.it like taking a

aspirin. ant sugestion .

thanks

bev hstn,tx

July 25, 2010

Nothing after the tramadol.Â Wished I had something last night.....Sicked and

was up all night.Â Lyncia

Thank you GodÂ for this day and forÂ my tomorrows .

Â

Love, LynciaÂ

Â

Subject: questions

To: livercirrhosissupport

Date: Saturday, July 24, 2010, 2:51 PM

hi i am beverly i have cirrhosis i am having a real bad time with legs if anyone

has any sugestions i tried the tonic water put the dr says its not the best

thing to use and he has no clue what i can do i am also having alot of pain in

my stomach the only thing they said i can take is tramadoil.it like taking a

aspirin. ant sugestion .

thanks

bev hstn,tx

July 25, 2010

they are giving me tramodol for my broken arm, presription for 100mg every

4-6 hours. i was told not to take tylenol at the same timeso have been

taking tylenal during the day and 50=100 at bed time. I have beensleeping

most of the time -yesterday until 6 pm. also have upset stomach and whenI

tke tramodol, get allloopy feeling.I feel hungry but the thought of eating

makes me even more nauseous. It feels as if my fall shook up my whole body.

even my kidneys were working worse for a while.

Have blood work on THur. will find out the next tues.Jan H

> Nothing after the tramadol. Wished I had something last night.....Sicked

> and was up all night. Lyncia

>

> Thank you God for this day and for my tomorrows .

>

> Love, Lyncia

>

> Subject: questions

> To: livercirrhosissupport

> Date: Saturday, July 24, 2010, 2:51 PM

>

> hi i am beverly i have cirrhosis i am having a real bad time with legs if

> anyone

>

> has any sugestions i tried the tonic water put the dr says its not the best

> thing to use and he has no clue what i can do i am also having alot of pain

> in

> my stomach the only thing they said i can take is tramadoil.it like taking

> a

> aspirin. ant sugestion .

>

> thanks

>

> bev hstn,tx

>

July 25, 2010

Jan be careful.Â Lyncia

Thank you GodÂ for this day and forÂ my tomorrows .

Â

Love, LynciaÂ

Â

>

> Subject: questions

> To: livercirrhosissupport

> Date: Saturday, July 24, 2010, 2:51 PM

>

> hi i am beverly i have cirrhosis i am having a real bad time with legs if

> anyone

>

> has any sugestions i tried the tonic water put the dr says its not the best

> thing to use and he has no clue what i can do i am also having alot of pain

> in

> my stomach the only thing they said i can take is tramadoil.it like taking

> a

> aspirin. ant sugestion .

>

> thanks

>

> bev hstn,tx

>

July 26, 2010

Hi all,

There are sooo many posts, I can't seem to find answers to all of my questions

without spending hours searching, so I figured I'd put them all down in my own

post, in the hopes of getting some guidance.

My dad is in the end stage, 69 yrs old, currently malnutritioned due to

constricted esophogus (size of straw), ascites buildup frequent, diabetes dx

recently on insulin at night only, groinal hernia, recently beginning to be

painful, sleep patterns irregular, varices significant, recently hospitalized

due to bleeding ulcer that caused high level of ammonia in system (over 180), in

for a week.

MELD score currently 13, but irrelevant because he's not a transplant candidate.

oh, did i mention STUBBORN AS HELL???? refuses to do anything that will required

any sort of hospital stay, outpatient only, refuses to have strangers come stay

with him, only family, which is difficult for us, but since this all came to a

head during summer when I'm off, it's been manageable, school starts in two

weeks, so I'm frustrated as hell. Not to mention he is in total denial that his

lifelong drinking caused this!!!

Basically my questions are to try to get an idea of life expectancy. I

understand there no " written in stone " sequence and that it depends on other

issues, but I was able to get more specific info from posts of others in this

situation. Thank you for your help, and God Bless.

July 26, 2010

My liver doctor wasn't real happy about me being on Norco but I think

it's because of the Tylenol in it. He just said he would leave that

between me and my PCP. But they also told me I could take 2 extra

strength Tylenol a day which is 1000 mg of tylenol. I could be wrong

but I think about 4000 mg a day is max dose for normal people. My

norco has only 325 mg of tylenol per pill. They seriously should give

liver patients some sort of medication that is liver friendly that

actually works! I take tramadol 2 times a day and it helps just a

little. It seems to be longer acting and keeps me from feeling like

someone beat me every morning. I have osteo arthritus too and kinda

think I have fibromalgia just from my symptoms. I would have

absolutely no quality of life if I couldn't manage my pain!

Much love,

Roni

> Nothing after the tramadol. Wished I had something last

> night.....Sicked and was up all night. Lyncia

>

> Thank you God for this day and for my tomorrows .

>

> Love, Lyncia

>

> Subject: questions

> To: livercirrhosissupport

> Date: Saturday, July 24, 2010, 2:51 PM

>

> hi i am beverly i have cirrhosis i am having a real bad time with

> legs if anyone

>

> has any sugestions i tried the tonic water put the dr says its not

> the best

> thing to use and he has no clue what i can do i am also having alot

> of pain in

> my stomach the only thing they said i can take is tramadoil.it like

> taking a

> aspirin. ant sugestion .

>

> thanks

>

> bev hstn,tx

>

July 26, 2010

I don't qualify for a transplant, and don't think I would have one if I

did, Jan H

On Mon, Jul 26, 2010 at 5:10 AM, Beverly Hurlock

wrote:

> hi jan,

> yes they did said to take it up to 4 times aday as needed.. have you had a

> transplant or on the list yet.

>

> lol

>

> bev tx

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Mon, July 26, 2010 1:59:00 AM

> Subject: Re: questions

>

> did you give you phenagan when you we re taking tramadol? I hav e some

> they presc. before

> Jan H

>

> On Sun, Jul 25, 2010 at 7:53 PM, Beverly Hurlock

> wrote:

>

> > they gave me phenagan for nausea it seems to work ok.i get the sameway i

> am

> > hungry then i can't eat.

> > maybe tomorrow will be better for us.

> >

> > god bless

> >

> > bev, tx

> >

> > ________________________________

> >

> > To: livercirrhosissupport

> > Sent: Sun, July 25, 2010 4:39:19 PM

> > Subject: Re: questions

> >

> > they are giving me tramodol for my broken arm, presription for 100mg

> every

> > 4-6 hours. i was told not to take tylenol at the same timeso have been

> > taking tylenal during the day and 50=100 at bed time. I have

> beensleeping

> > most of the time -yesterday until 6 pm. also have upset stomach and whenI

> > tke tramodol, get allloopy feeling.I feel hungry but the thought of

> eating

> > makes me even more nauseous. It feels as if my fall shook up my whole

> body.

> > even my kidneys were working worse for a while.

> > Have blood work on THur. will find out the next tues.Jan H

> >

> > > Nothing after the tramadol. Wished I had something last

> night.....Sicked

> > > and was up all night. Lyncia

> > >

> > > Thank you God for this day and for my tomorrows .

> > >

> > > Love, Lyncia

> > >

> > > Subject: questions

> > > To: livercirrhosissupport

> > > Date: Saturday, July 24, 2010, 2:51 PM

> > >

> > > hi i am beverly i have cirrhosis i am having a real bad time with legs

> if

> > > anyone

> > >

> > > has any sugestions i tried the tonic water put the dr says its not the

> > best

> > > thing to use and he has no clue what i can do i am also having alot of

> > pain

> > > in

> > > my stomach the only thing they said i can take is tramadoil.it like

> > taking

> > > a

> > > aspirin. ant sugestion .

> > >

> > > thanks

> > >

> > > bev hstn,tx

> > >

July 26, 2010

I too have osteo and fibro as well as very low kidney function I have 9

stents, 7 in my heart and a triple bypass as well as carotid artery

surgery.Low thyroid. I have neuropathy in hands and feet. the neuropathy

in my little finger, left hand is driving me crazy with this cast pushing on

my fingers. How long does it take to get the neuropathy out. of your

system. Haven;t had any since Friday night Jan H

> My liver doctor wasn't real happy about me being on Norco but I think

> it's because of the Tylenol in it. He just said he would leave that

> between me and my PCP. But they also told me I could take 2 extra

> strength Tylenol a day which is 1000 mg of tylenol. I could be wrong

> but I think about 4000 mg a day is max dose for normal people. My

> norco has only 325 mg of tylenol per pill. They seriously should give

> liver patients some sort of medication that is liver friendly that

> actually works! I take tramadol 2 times a day and it helps just a

> little. It seems to be longer acting and keeps me from feeling like

> someone beat me every morning. I have osteo arthritus too and kinda

> think I have fibromalgia just from my symptoms. I would have

> absolutely no quality of life if I couldn't manage my pain!

>

> Much love,

> Roni

>

> > Nothing after the tramadol. Wished I had something last

> > night.....Sicked and was up all night. Lyncia

> >

> > Thank you God for this day and for my tomorrows .

> >

> > Love, Lyncia

> >

> > Subject: questions

> > To: livercirrhosissupport

> > Date: Saturday, July 24, 2010, 2:51 PM

> >

> > hi i am beverly i have cirrhosis i am having a real bad time with

> > legs if anyone

> >

> > has any sugestions i tried the tonic water put the dr says its not

> > the best

> > thing to use and he has no clue what i can do i am also having alot

> > of pain in

> > my stomach the only thing they said i can take is tramadoil.it like

> > taking a

> > aspirin. ant sugestion .

> >

> > thanks

> >

> > bev hstn,tx

> >

July 26, 2010

Roni, it is up to US liver patients to hire a doctor who is capable of

prescribing the kind of medication that is liver friendly. There are three

schedules of drugs, 1 2 and 3. Schudule 1 is illegal, period, and can never be

possesed. Schedule 2 and 3 are controlled substances. Schedule 3 includes

tramadol, norco and vicodin. Any regular doc can prescribe them. Schedule 2

requres a pain doctor. Pain doctors are up to date on the latest regulations,

and have to comply with strict federal regulations. We are subject to random

drug screenings, but to make sure we do not take any thing but that which we

are supposed to, and to also make sure that the urine test shows that we are

actually taking the drugs and not selling them. It is quite rediculous, because

vicodin can be abused just like morphine sulfate, but and addict usually

experiences habituation and tolerance, which is when the body gets used to a

lower dose. The tylenol is in the norco only to make the drug deadly at larger

doses!

Sure , it helps reduce pain, but that is not why it is in the drug. A 5-500

vicodin has 5 mg of narcotic hydrocodone, and 500 mg of tylenol. My pain doctor

has prescribed for my the 5 mg of real pain killer for over three years now.

Tylenol is usually considered contraindicated for liver disease.

Only if a patient goes to a good , competent pain doctor will they have a well

rounded approach to thier needs. Pain is a disease separate from the underlying

cause, and no one can expect a good out come unless all aspects of our health

are given equal consideration.

I hope I explained this correctly. I just cringe at the number of people who

take toxic drugs only because of social concerns, and taboo.

Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Mon, July 26, 2010 9:09:30 AM