Re: Re: propranolol success

[Guest guest]

Do they check the kids blood pressure before they give it? Made me feel bloody awful, I was stressed and BP was low to start with

Mandi x

Just for the sake of mentioning it, Tom has not done well on Propranolol. It made him withdrawn and more autistic.It didn't work even though he is a stressed kid. I suppose the fact that I would describe it as stress and wouldn't think to use the word 'anxiety' for Tom really might be the clue???I would still say it's worth a try due to the success other kids are having.Sara

[Guest guest]

SaraI was the same as Mandi - I took it for migraines and I felt awful, there was no way I could take it long term.  I could barely move when I was on it, I can see how it would make a child withdrawn.  However, I was like Mandi, I have low BP and stress.  Did they take his BP before prescribing it?

Also, I agree, there is a difference between a child who is stressed and one who is anxious.Darla 

 

Just for the sake of mentioning it, Tom has not done well on

Propranolol. It made him withdrawn and more autistic.

It didn't work even though he is a stressed kid. I suppose the fact that

I would describe it as stress and wouldn't think to use the word

'anxiety' for Tom really might be the clue???

I would still say it's worth a try due to the success other kids are

having.

Sara

[Guest guest]

SaraI was the same as Mandi - I took it for migraines and I felt awful, there was no way I could take it long term.  I could barely move when I was on it, I can see how it would make a child withdrawn.  However, I was like Mandi, I have low BP and stress.  Did they take his BP before prescribing it?

Also, I agree, there is a difference between a child who is stressed and one who is anxious.Darla 

 

Just for the sake of mentioning it, Tom has not done well on

Propranolol. It made him withdrawn and more autistic.

It didn't work even though he is a stressed kid. I suppose the fact that

I would describe it as stress and wouldn't think to use the word

'anxiety' for Tom really might be the clue???

I would still say it's worth a try due to the success other kids are

having.

Sara

[Guest guest]

Whilst I had low BP my heart racing like crazy over 100+ BPM for 5 weeks, it was my adrenals not my heart that needed sorted, my BP is usually normal

Mx

Sara I was the same as Mandi - I took it for migraines and I felt awful, there was no way I could take it long term. I could barely move when I was on it, I can see how it would make a child withdrawn. However, I was like Mandi, I have low BP and stress. Did they take his BP before prescribing it?

Also, I agree, there is a difference between a child who is stressed and one who is anxious.

Darla

Just for the sake of mentioning it, Tom has not done well on Propranolol. It made him withdrawn and more autistic.It didn't work even though he is a stressed kid. I suppose the fact that I would describe it as stress and wouldn't think to use the word 'anxiety' for Tom really might be the clue???I would still say it's worth a try due to the success other kids are having.Sara

[Guest guest]

Following this with interest, big concerns though after googling, especially the heart. Both my boys had heart murmurs, checked out at the Brompton and no reasons found. I myself have a lot of palpitations and thumping heart but that could be down to my previous lifestyle, who knows, but maybe something genetic, so I would be way too scared to try this even though the successes here make it very tempting, wish I could have proper medical monitoring for the boys, that would make me feel a bit happier.

Vicky

Re: Re: propranolol success

Whilst I had low BP my heart racing like crazy over 100+ BPM for 5 weeks, it was my adrenals not my heart that needed sorted, my BP is usually normal

Mx

Sara

I was the same as Mandi - I took it for migraines and I felt awful, there was no way I could take it long term. I could barely move when I was on it, I can see how it would make a child withdrawn. However, I was like Mandi, I have low BP and stress. Did they take his BP before prescribing it?

Also, I agree, there is a difference between a child who is stressed and one who is anxious.

Darla

Just for the sake of mentioning it, Tom has not done well on

Propranolol. It made him withdrawn and more autistic.

It didn't work even though he is a stressed kid. I suppose the fact that

I would describe it as stress and wouldn't think to use the word

'anxiety' for Tom really might be the clue???

I would still say it's worth a try due to the success other kids are

having.

Sara

[Guest guest]

Following this with interest, big concerns though after googling, especially the heart. Both my boys had heart murmurs, checked out at the Brompton and no reasons found. I myself have a lot of palpitations and thumping heart but that could be down to my previous lifestyle, who knows, but maybe something genetic, so I would be way too scared to try this even though the successes here make it very tempting, wish I could have proper medical monitoring for the boys, that would make me feel a bit happier.

Vicky

Re: Re: propranolol success

Whilst I had low BP my heart racing like crazy over 100+ BPM for 5 weeks, it was my adrenals not my heart that needed sorted, my BP is usually normal

Mx

Sara

I was the same as Mandi - I took it for migraines and I felt awful, there was no way I could take it long term. I could barely move when I was on it, I can see how it would make a child withdrawn. However, I was like Mandi, I have low BP and stress. Did they take his BP before prescribing it?

Also, I agree, there is a difference between a child who is stressed and one who is anxious.

Darla

Just for the sake of mentioning it, Tom has not done well on

Propranolol. It made him withdrawn and more autistic.

It didn't work even though he is a stressed kid. I suppose the fact that

I would describe it as stress and wouldn't think to use the word

'anxiety' for Tom really might be the clue???

I would still say it's worth a try due to the success other kids are

having.

Sara

[Guest guest]

I would be hard pushed to know the difference between stressed and anxious?

has an anxiety disorder but he often feels very stressed, looks like one and the same here.

Vicky

Re: propranolol success

Just for the sake of mentioning it, Tom has not done well on

Propranolol. It made him withdrawn and more autistic.

It didn't work even though he is a stressed kid. I suppose the fact that

I would describe it as stress and wouldn't think to use the word

'anxiety' for Tom really might be the clue???

I would still say it's worth a try due to the success other kids are

having.

Sara

[Guest guest]

I would be hard pushed to know the difference between stressed and anxious?

has an anxiety disorder but he often feels very stressed, looks like one and the same here.

Vicky

Re: propranolol success

Just for the sake of mentioning it, Tom has not done well on

Propranolol. It made him withdrawn and more autistic.

It didn't work even though he is a stressed kid. I suppose the fact that

I would describe it as stress and wouldn't think to use the word

'anxiety' for Tom really might be the clue???

I would still say it's worth a try due to the success other kids are

having.

Sara

[Guest guest]

Thanks Natasa, they said at Brompton that they "clicked" no reason they just "clicked" funny to see you use the same word.

Vicky

Re: propranolol success

Hi Vicky, propranolol is often given for palpitations or chest pain. As

for mumurs it probably depends what exactly it is - in this case it was

found very helpful: http://www.ncbi.nlm.nih.gov/pubmed/1258727 - could

you get referral to cardio? was it diagnosed as systolic click murmur

syndrome?

nx

>

>

>

>

>

>

> Just for the sake of mentioning it, Tom has not done well on

> Propranolol. It made him withdrawn and more autistic.

> It didn't work even though he is a stressed kid. I suppose the

fact that

> I would describe it as stress and wouldn't think to use the word

> 'anxiety' for Tom really might be the clue???

> I would still say it's worth a try due to the success other kids

are

> having.

> Sara

>

[Guest guest]

Thanks Natasa, they said at Brompton that they "clicked" no reason they just "clicked" funny to see you use the same word.

Vicky

Re: propranolol success

Hi Vicky, propranolol is often given for palpitations or chest pain. As

for mumurs it probably depends what exactly it is - in this case it was

found very helpful: http://www.ncbi.nlm.nih.gov/pubmed/1258727 - could

you get referral to cardio? was it diagnosed as systolic click murmur

syndrome?

nx

>

>

>

>

>

>

> Just for the sake of mentioning it, Tom has not done well on

> Propranolol. It made him withdrawn and more autistic.

> It didn't work even though he is a stressed kid. I suppose the

fact that

> I would describe it as stress and wouldn't think to use the word

> 'anxiety' for Tom really might be the clue???

> I would still say it's worth a try due to the success other kids

are

> having.

> Sara

>

[Guest guest]

80mg BD SR type, don;t know what POTS ortho intolerance is ???

Mx

Hi Mandy, what was the dose? Do you suffer POTS / ortho intolerance?

[Guest guest]

80mg BD SR type, don;t know what POTS ortho intolerance is ???

Mx

Hi Mandy, what was the dose? Do you suffer POTS / ortho intolerance?

[Guest guest]

No not then, before or after but I could hardly get out of a chair on Propranolol............it was very scarey

Mx

do you suffer any pots-like symptoms, orthostatic intolerance?

[Guest guest]

No not then, before or after but I could hardly get out of a chair on Propranolol............it was very scarey

Mx

do you suffer any pots-like symptoms, orthostatic intolerance?

[Guest guest]

it is a ladder anxiety rolls to stress that rolls into depression , panic attacks , OCD behaviours all depends of the stressor intensity

[Guest guest]

it is a ladder anxiety rolls to stress that rolls into depression , panic attacks , OCD behaviours all depends of the stressor intensity

[Guest guest]

it is a ladder anxiety rolls to stress that rolls into depression , panic attacks , OCD behaviours all depends of the stressor intensity