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My son is 3 and was on Prednisone for 2 years. We just weaned him in

October but he is doing pretty good. What kind of side effects do you get

from the Prednisone? I am wondering if I should really be worrying about

long term effects. Other than being pretty small, he shows no other

apparent signs now. He was on 1 mg per every kg.

Dawn, mommy to Dakota, 6 and , 3 (eosinophilic gastroenteritis, reflux,

fundo, asthma)

Joanne wrote:

>

>

> Hello,

>

> I am new to this list and though have had asthma for a long time, I've

> been steroid-dependent for the past ten years. During most of that time

> the asthma had been under control. I'd been on prednisone for 9 yrs,

> then hydrocortisone, and since recent hospitalization I'm back on the

> prednisone. Also on accolate, albuterol/atrovent HHN and will resume

> flovent & MDI's when prednisone dose can be tapered.

>

> Curious to learn if anyone out there has successfully gotten off the

> steroids after such a long time? I now have no adrenal cortical

> function, though in theory, it should return. But one has to tolerate

> the taper to reach that point! I am a 48 year old female. I have been

> hospitalized but never had to be intubated.

>

> Thanks in advance

>

> ------------------------------------------------------------------------

>

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Guest guest

Dawn,

As far as side effects go, I have had problems with hypotension and

hypoglycemia during the tapers, and also have developed severe

osteoporosis. I have an excellent endocrinologist and apparently the

longer one is steroid-dependent the more difficult it is to tolerate the

reduction.

I am glad your 3-year old is off the prednisone and hopefully if/when he

requires it again, a shorter burst will be effective. When I was

younger, in my 20's, as well as during childhood, a burst of prednisone

did the trick and I'd feel better within 24 hours. Now it takes higher

doses and days and days, or IV solumedrol to achieve any improvement.

Although it is important to note that the character of my asthma has

changed over the years as well. Many years ago it was allergy-triggered

and now it is activity-induced and just plain inflammatory response.

Joanne

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Guest guest

Hi My son is 8 years old and has had asthma since he was5 months old. He has

been on predisone but only for 5 days at a time. He used to average 5-8 times

a year. In the past 4 years he doesn't need it as often. I keep hoping with

age he keeps getting better and better. Right nowhetakes servient, flovent,

and the albuterol inhaler when needed. We have also had alot of success with

the peak flowmeter.Does anyone else use that? I really hate this chronic

illness and can't wait for the day he doesn't need any of his meds.It is so

hard to watch your child struggle to breathe! I have also found that so many

people don't understand the illness. They try but have no idea what the

patient or their loved one is going through.

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yeah i use the peak flow meter. It does seem to tell me when i am dropping

and gonna have a nasty flare up.

Tami

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Guest guest

It must be really hard watching your child struggle for breath. Despite my

allergies and asthma, neither of my daughters has either. I am also on

Serevent (in the Diskus form which is a powder and much easier to get into

the depths of my lungs), Pulmicort (also a powder) and albuterol as a

rescue. I have a home nebulizer prescribed by my family doc, but my

pulmonologist doesn't like them because he feels that people don't get to

the emergency room fast enough because they are treating at home (this is

in an emergency situation, not as part of ongoing preventative treatment).

He told me that if I use it three times 20 minutes apart and had no relief,

then I should go to the ER because asthma still kills. I use my peak flow

meter every day, morning and evening as well as my chronic inhalers. There

are times that I think that I can't breathe, but check my peak flow and it

is ok so I just get on with my life. One of my docs said that this is

common with asthmatics. Actually writing this I feel like I am getting

tight, but I know that I'm ok.

I had major surgery last week and my anesthesiologist was one of my

husband's partners and knew about my asthma. I was in the hospital two

nights and Jerry wrote orders for respiratory to come and listen to me

every four hours. It was a waste of time because I never wheeze and I

never hesitate to tell someone that I am having trouble breathing. It

would have been nice if respiratory could have coordinated with nursing and

done vitals and listen at the same time. I slept the whole day I came home

because I had gotten no sleep in the hospital.

I was on steroids for three weeks in May. I do not ever want to take them

again. I gained 20 lbs and 2 dress sizes in 2 weeks. I have lost 7 of the

lbs, but have 13 more to go. The also made me really nuts. I also have

chronic depression and a medication that mad me nuts was not something that

I needed. I think that depression may be a component of any chronic

illness. I also have fibromyalgia syndrome. All of these are chronic and

life long. I have learned to cope with them, but I keep all my meds in a

plastic shoe box and take most at night and have to count the number I have

in my hand to make sure I didn't miss any.

Hope some of this helps.

WV

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Guest guest

Dot: I just had the pneumonia shot because last year I just had bronchial

pneumonia all winter. I hope it works this year. I am signed up to get the

flu shot in October.

>

>Reply-To: asthma

>To: <asthma >

>Subject: Re: newbie

>Date: Tue, 3 Jul 2001 22:38:07 -0700 (Pacific Daylight Time)

>

>I used to get lots of colds and seemed to have the flu every month until I

>started getting flu shots. Now, I rarely get a cold or the flu and if I

>do,

>it's not near as severe.....Dot

>

>

><<<<My asthma often gets much worse after a cold or bronchitis. The last

>two years I have had terrible bronchitis and really all my time has

>been taken up in ministering to it - taking suppressants during the

>day and expectorants. Look forward to hearing from anyone

>

>

>

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Hi everyone,

I have been reading the posts on using anti-virals for autistic kids

for a while. I have had a recent (most likely) viral issue with my ASD

son (7 yrs old). The last time he had IV chelation he had a rash break

out (and fever) in his mouth and all upper body. It ran its course for

a week or so and subsided. This time, unprovoked (no chelation), he

had a rash outbreak again but mostly in his lips and surrounding area.

The local physician (not my DAN doctor) who took a look prescribed

Acyclovir. He has been on it for a week.

We see some positive changes like better school performance/attention

etc. and some negative: uncontrolled weeping at night for a short

while before he goes to sleep.

The test on the sample came back negative but the physician, by the

appearance, is suspecting that its oral herpes and wants me to

continue the prescription. The rashes are fading.

I have discussed this with my DAN physician and awaiting response, but

does anyone have thoughts on this? Also, what is the difference

between Valtrex and Acyclovir (from an autism point of view)?

Are there suggestions to help prevent future outbreaks?

Thank you

Pramila

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