Newbie

[Guest guest]

Paige,

Welcome to our group.

I doubt if anyone is ever truly cured of RA, but with proper medications,

diet and exercise, RA symptoms can be decreased for many people to the

point that RA pain is mostly a memory and the disease is no longer a factor

in daily life.

My RA was diagnosed in 1999, and I was in extreme pain initially. In June

2001, I learned about the antibiotic protocol (AP), and started on it one

month later. I have gotten better ever since to the point that I have been

able to drop all prescription drugs except for minocycline. Even there I

have been able to reduce my dosage from 100 mg every day to 100 mg every

other day (odd calendar days).

Some practical advice:

1. Find a doctor who is familiar with the AP. Our group can provide a list

of doctors in your area.

2. Go with brand name Minocin, not generic minocycline.

3. Eat lots of salmon. On days when you are not eating salmon, take fish

oil supplements, for a daily dosage of 10 g of Omega-3 fatty acids.

4. Go to www.google.com and do a search on + " rheumatoid arthritis " +diet .

Avoid foods which are known to aggravate RA, such as beef.

5. Keep any painful joints warm.

6. Avoid harmful medicines if you can, such as prednisone and methotrexate.

This is just a start.

Sincerely, Harald

At 08:15 PM 4/21/03 -0400, you wrote:

>Hi all,

>

>I'm a new member here, have been lurking for a couple of weeks and

>thought I'd speak up and say hi. I'm 35, newly diagnosed with RA. I've

>had joint pain, slowly increasing with severity, for the past 18 years.

>I've been trying to find out why for about as long, and have been told

>that its stress, depression, anxiety, repetative motion disorder, and my

>personal favorite, gee I don't know, lets just try this and see if it

>helps! I have little redness or swelling, all tests have come back

>negative except for a positive rheum. factor. Several months ago I

>started seeing an acupuncturist who recommended the book The Arthritis

>Breakthrough and a local doctor who believes in the minocin protocol.

>I'm getting ready to start on my minocin in the next few days.

>

>If you will be so kind as to indulge me, I have a few questions. First

>of all, what is the difference between rheumatoid and reactive

>arthritis? My doc, as well as other info sources, refer to my arthritis

>as both, but I've seen on the list that some people refer to them as

>separate conditions. And I'm having trouble figuring out some of the

>acronyms used here: AP=antibiotic protocol? Lots of names of meds I've

>never heard of, have no idea what they do, but I guess I'll keep reading

>along and see what I can learn! Someone asked about Rheumax - is that

>the same as RheumaPlus? I've been taking that - seems to be helping a

>little. I'm taking a whole cocktail of herbal supplements, but no other

>drugs besides the mino.

>

>I feel fortunate in that it seems I may have caught the RA early enough

>to actually do something about it... cure it? So, here's my next

>question: has anyone here, or does anyone know of someone, who has

>actually been CURED by antibiotics? I'm hopeful, but I'm a skeptic by

>nature.

>

>Thanks much, and I look forward to learning from everyone here, and I

>hope I can contribute in a positive way to your health as well!

>

>Blessings,

>Paige

[Guest guest]

I do not know if anyone has been cured, but many of us have been put in a

total remission....that is no symptoms (pain, swelling) and all negative

bloodwork. I think a CURE could be found if this was really researched, but

since many people in our health care industry make a great deal of money

treating symptoms, there does not seem to be a lot of incentive into real

research on what combo on antibiotics would really wipe this disease out!!

It is sad to say but a lot of money is made on other peoples misery.

Eventually enough family docs and general practitioners will learn about AP

and they seem to have less of a problem in giving it a try. Then maybe it

will become the treatment of first choice in people diagnosed with various

arthritic conditions.

It is interesting to note that 18 months after going into remission, I

sent a long letter to my old rheumy (the one who said it would not work). I

sent the copies of my monthly lab tests as I went on the Minocin therapy.

You could see them going slowly into the normal range. I pointed out I had

no pain or evidence of RA and was hoping she would now be more willing to

continue me on with this treatment. She NEVER answered. Kinda makes you

shudder to think this person was suppossed to be concerned for my

welfare!!!!!! Martha

[Guest guest]

Welcome to the group, ! Sorry about your RA diagnosis and that you

are feeling down.

Do you have a rheumatologist? Do you have a physician who is experienced

in alternative/complementary medicine?

I believe that diet modifications and alternative therapies are worth a

try. Unfortunately, such strategies may not be enough to control your

RA. But they often can bring about improvement.

Do you have any joint damage?

Here's some good reading from the Arthritis Foundation to get you

started:

" Alternative Therapies " :

http://www.arthritis.org/conditions/alttherapies/default.asp

(check out the " Integrative Medicine " section)

a has much good information at her site:

http://rheumatoid.arthritis.freehosting.net/

[ ] Newbie

> Hi

> I just joined yesterday. I have had bursitis for a while but now have

been told I have RA as well. I know they are genetically linked but I

really didn't need both! I'm interested in finding out if anyone has

used alternative therapies with much success as I am hypersensitive to

medication and cannot take anything... I have been using herbal

preparations and diet to take the edge off the bursitis but have read

that with RA there really isn't any foods that make it worse like with

bursitis so I can't control it by cutting things out of my diet

aparently. I am 41 and a single mum and being told this latest news

just about shattered me... I had my cry yesterday and then decided to

look for support groups and get on with things. Thanks.

[Guest guest]

, I found a web site a couple years ago on FIBROMYALGIA and

VITIMANS and MINERAL as alternative " relief " .

I was RELIGIOUS about these! I bought " individual " of these. Good

quality, and followed it to a " T " for several months. Gave up all

caffeine, etc.

I " felt " wonderful. I FELT. Not the pain aspect mind you of the

arthritis, etc.

But just " generally " felt " WELL " .

But I am AWFUL at 'regimine' with pills! And fell off this " SUPPLEMENT

VIT. & MINS. " thing.

I do notice a difference. Though slight. It is noticable.

But I couldn't keep swallowing all those pills and much less " remember "

them all!

I don't have Fibromyalgia. But used this alternative for FMS, anyway.

It DID seem to work to " relieve " my other health symptoms.

Elf

wrote:

> Hi

> I just joined yesterday. I have had bursitis for a while but now have

> been told I have RA as well. I know they are genetically linked but I

> really didn't need both! I'm interested in finding out if anyone has

> used alternative therapies with much success as I am hypersensitive to

> medication and cannot take anything... I have been using herbal

> preparations and diet to take the edge off the bursitis but have read

> that with RA there really isn't any foods that make it worse like with

> bursitis so I can't control it by cutting things out of my diet

> aparently. I am 41 and a single mum and being told this latest news

> just about shattered me... I had my cry yesterday and then decided to

> look for support groups and get on with things. Thanks.

>

>

>

[Guest guest]

Holy moly Deidre!

Welcome neighbor! I'm in Jenison Michigan How bout that huh?

Another of our group moderators also lives in Kentwood, and another

of our members is near Muskegon (or is it Grand Haven Mari?). I'm

assuming you have gone to Free Bed for the scanning in Grand

Rapids right?? Is your orthotist? I hope so, I've heard rave

reviews about her knowledge and has given 's daughter a

beautifully rounded head w/the STARband!! I also brought my daughter

to MFB, but that was almost 3 yrs ago - eeekkk, before they had the

scanner or I'm sure you're in great hands

What insurance do you have? I had Priority Health & they covered

Abby's as durable medical equipment at 50% coverage which was fine by

me

Has she rec'd any physical therapy for her torticollis?

Well it's gret to have another local in our group What a very

small world huh? I've been w/the group darn near 3 yrs and am amazed

(and saddened) by all the Grand Rapids area membrs I've met.

Debbie Abby's mom 3/1/00 DOCgraduate

Jenison, MI

> Hi! I just found you guys and am SO glad you are out there! I have

a

> 7-m-o son, , who has plagiocephaly (or in my opinion

> brachyocephaly) and has been undergoing physical therapy for a few

> months now for torticolis as well.

>

> It was recommended that we invest in a STARband helmut for him

since

> it was not " going away by itself. " We have been scanned (which was

a

> neat process... they scanned his head with this big scanner instead

> of using traditional methods) and are awaiting his helmut to come

and

> for our insurance to come through (pray God it does).

>

> I am nervous about him being in it (a million questions running

> through my mind). As soon as it comes in he will be " fitted " .

>

> I am looking forward to reading your posts and learning more about

> his conditions. We believe our daughter also had torticolis and

> subsequently plagiocephaly, but she was untreated as our ped didn't

> really know much about it then. She looks fine but I can tell one

eye

> is higher than the other.

>

> Here's to crooked noggins!

>

> Deidre Piechocki

> Kentwood, MI

> STARband: coming soon to a noggin near you!

[Guest guest]

Welcome to this great club! I have only been here a month or so and I

have a 3.5 month old son who is getting his DOCband today! This place

is full of wonderful people and tons and tons of info and advice. I

look forward to getting to talk to you and let us know how 's

fitting goes. Where are you located? There might be members who are

near you.

Donna momma to Xavier AZ-

-- In Plagiocephaly , " Deidre Piechocki "

<Blondee10@a...> wrote:

> Hi! I just found you guys and am SO glad you are out there! I have

a

> 7-m-o son, , who has plagiocephaly (or in my opinion

> brachyocephaly) and has been undergoing physical therapy for a few

> months now for torticolis as well.

>

> It was recommended that we invest in a STARband helmut for him

since

> it was not " going away by itself. " We have been scanned (which was

a

> neat process... they scanned his head with this big scanner instead

> of using traditional methods) and are awaiting his helmut to come

and

> for our insurance to come through (pray God it does).

>

> I am nervous about him being in it (a million questions running

> through my mind). As soon as it comes in he will be " fitted " .

>

> I am looking forward to reading your posts and learning more about

> his conditions. We believe our daughter also had torticolis and

> subsequently plagiocephaly, but she was untreated as our ped didn't

> really know much about it then. She looks fine but I can tell one

eye

> is higher than the other.

>

> Here's to crooked noggins!

>

> Deidre Piechocki

> Kentwood, MI

> STARband: coming soon to a noggin near you!

[Guest guest]

Deidre-

Just wanted to welcome you to the group- sounds like you are well on your way to a rounder noggin for your kiddo and resolving the tort! Good luck and hope to hear more along your journey.

' mom

[Guest guest]

Welcome to the group. My daughter wore a STARband from 9 to 12 months. We didn't have the scanner. I have heard it is great! Let us know when his band comes in! Angie and Jenna(STARband grad 1/21/03) newbie Hi! I just found you guys and am SO glad you are out there! I have a 7-m-o son, , who has plagiocephaly (or in my opinion brachyocephaly) and has been undergoing physical therapy for a few months now for torticolis as well. It was recommended that we invest in a STARband helmut for him since it was not "going away by itself." We have been scanned (which was a neat process... they scanned his head with this big scanner instead of using traditional methods) and are awaiting his helmut to come and for our insurance to come through (pray God it does). I am nervous about him being in it (a million questions running through my mind). As soon as it comes in he will be "fitted".I am looking forward to reading your posts and learning more about his conditions. We believe our daughter also had torticolis and subsequently plagiocephaly, but she was untreated as our ped didn't really know much about it then. She looks fine but I can tell one eye is higher than the other. Here's to crooked noggins!Deidre PiechockiKentwood, MISTARband: coming soon to a noggin near you!For more plagio info

[Guest guest]

Hi Cherib,

First, you need to read.

I can give you the premise here but to fully understand it, read the

site www.rheumatic.org.Then, read the site www.immed.org.

Both of these will help.The book The New Arthritis Breakthrough helps

you understand here that most of these diseases are an infectious

cause usually a form of mycoplasma and respond well to low dose

antibiotic therapy. I felt the same as you..better on antibiotics and

that gave me a clue.

We do have resources for docs who prescribe this if you have a

problem with finding one.

I know for me, this worked well and I was able to get off all the GI

meds,all the pain pills,all the pred and the methorexate,

It is almost 7yrs now and I have such a totally different life.

With education, some learning about diet you can also do well.

There are many true stories with email addressses on the medical

histories part of the site. Feel free to use these people.

Hope this has helped

Marge

> Hi

> I am new here. I am trying to find answers to my increasing

multiple

> health problems. I am not quite sure what all this site is about

> actually., but wondered if anyone here might have suggestions for

> me. Ten years ago I got GERD. My health began going down hill.

> seven years ago I got myocarditis, I found a dr. who was able to

> diagnose me as having a recent coxsakie b3 infection, an older EBV

> infection, a mycoplasma infection, hashimotos thyroiditis. I

haven't

> been real well ever since. The only time I DO feel actually well

is

> when I am prescibed a course of antibiotic therapy for sinus

> infection etc.. I never wanted to take prilosec for my GERD, but

> finally a year ago when all I was able to eat was oatmeal I started

> taking Prilosec, it helped but didn't stop the GERD completely, I

> began drinking a fiber shake (Nanci corps Luv-It) with

> arabinogalactan and that and the prilosec together has my GERD

> battened down pretty well., but it is still a constatnt problem, so

> the doc just did an endoscopy and now wants to do a esophageal

> manometery. I am getting infections all the time ear infections,

IV

> phlebitis, sinusitis etc. I have most recently been diagnosed with

> new multiple allergies and can't do my gardening, yard work,

hobbies

> etc.... (I even go into bronchial spasms when cleaning the lint

trap

> on the dryer) anyway I could just go on and on and on,,, but

> basically what I need is any advice and knowledge you all might

> have. I currently am taking premarin, synthroid, prilosec,

allegra.

> I have premature ovarian failure, GERD, Hashimotos, endometriosis,

> hiatal hernia, reactions to many medications (especially to those

> that have HCL tacked on to the end of them I've noticed), cough,

> slightly elevated levels on the liver panel, high thyroid

peroxidase,

> migraines. Thanks for your anticipated help.

> Cherib

[Guest guest]

Hi Pody,

Welcome. I am very new to this but wanted to say hello. I am sure you will get great advice from people here. Have you considered filtering the emails into another folder? That is what I do so that it doesn't overflow my in-box.

I have preemie twins - they were 5 weeks premature and have also been blessed with little to no issues.

Just wanted to say hi.

Deb w/ Aidan (DOC ETA 10/21) and Ting Ting

From: Pody

Plagiocephaly

Sent: Monday, October 06, 2003 9:32 AM

Subject: Newbie

Hello All!,I am Pody (Po-dee) mommy to Nick who was born 6 weeks early on 2/9/03. We are living in Southern New Hampshire and my husband Troy and I have been living on the East Coast for 6 years. We have now been in his Starband now for about a month and he is doing great (his head has grown an inch since we 1st went in and were measured!). Nick has very little preemie issues (whew) and is growing like my little baby weed that he is (he is 20lbs). Nick took to the band pretty fast and now we mostly have head scratching when it comes off for his morning free range time. I am worried just a tad as we just had it adjusted last week and he can already move it around (more up and down) on his head again..which seems to me maybe he needs it adjusted again? when they can rock it up and down?. I have been wanting to join here for a while now, but the amount of mail made me nervous! but the other group I joined has so little activity..which is worse?!.My main question now is how do you dress baby's head for winter? is the band enough? a scarf around the face? I am from California and this is my 1st winter dressing a baby (help! lol)I am sure I will get to know a few of you (what 2000 members? lol) but I owuld love to meet up with others who are local? I saw my 1st other fmaily last night in Wal-Mart and we chatted (it was exciting!).Pody and NickP.S. I am dyslexic and I work very hard not to have my usual word turn aorunds..but bear with me if it happens (Like the word 'around' back there) ;-)For more plagio info

[Guest guest]

Hi Pody,

Welcome to the group!! Please don't worry about your dyslexia, we are

not here to judge your grammar.

When my baby was banded we put a child's kint cap on her, over her

band. It worked out well, it fit great over her band.

A little shifting of the band is ok, when they are adjusted the ortho

is also leaving room for growth. Once his head grows the band will

fit more snug. Please keep us posted on your son's progress.

You can set your settings to no email. You'll just have to come to

the group site to read and reply to the posts.

> Hello All!,

>

> I am Pody (Po-dee) mommy to Nick who was born 6 weeks early on

> 2/9/03. We are living in Southern New Hampshire and my husband Troy

> and I have been living on the East Coast for 6 years. We have now

> been in his Starband now for about a month and he is doing great

> (his head has grown an inch since we 1st went in and were

> measured!). Nick has very little preemie issues (whew) and is

> growing like my little baby weed that he is (he is 20lbs).

>

> Nick took to the band pretty fast and now we mostly have head

> scratching when it comes off for his morning free range time. I am

> worried just a tad as we just had it adjusted last week and he can

> already move it around (more up and down) on his head again..which

> seems to me maybe he needs it adjusted again? when they can rock it

> up and down?.

>

> I have been wanting to join here for a while now, but the amount of

> mail made me nervous! but the other group I joined has so little

> activity..which is worse?!.

>

> My main question now is how do you dress baby's head for winter? is

> the band enough? a scarf around the face? I am from California and

> this is my 1st winter dressing a baby (help! lol)

>

> I am sure I will get to know a few of you (what 2000 members? lol)

> but I owuld love to meet up with others who are local? I saw my 1st

> other fmaily last night in Wal-Mart and we chatted (it was

> exciting!).

>

> Pody and Nick

>

> P.S. I am dyslexic and I work very hard not to have my usual word

> turn aorunds..but bear with me if it happens (Like the

word 'around'

> back there) ;-)

[Guest guest]

Welcome to the group. I have heard of memebers buying a bigger size hat. maybe you could try a childs hat instead of a baby or toddlers.

Jenna would also run her head during her hour off.

Angie and Jenna(STAR grad 1/21/03)

Newbie

Hello All!,I am Pody (Po-dee) mommy to Nick who was born 6 weeks early on 2/9/03. We are living in Southern New Hampshire and my husband Troy and I have been living on the East Coast for 6 years. We have now been in his Starband now for about a month and he is doing great (his head has grown an inch since we 1st went in and were measured!). Nick has very little preemie issues (whew) and is growing like my little baby weed that he is (he is 20lbs). Nick took to the band pretty fast and now we mostly have head scratching when it comes off for his morning free range time. I am worried just a tad as we just had it adjusted last week and he can already move it around (more up and down) on his head again..which seems to me maybe he needs it adjusted again? when they can rock it up and down?. I have been wanting to join here for a while now, but the amount of mail made me nervous! but the other group I joined has so little activity..which is worse?!.My main question now is how do you dress baby's head for winter? is the band enough? a scarf around the face? I am from California and this is my 1st winter dressing a baby (help! lol)I am sure I will get to know a few of you (what 2000 members? lol) but I owuld love to meet up with others who are local? I saw my 1st other fmaily last night in Wal-Mart and we chatted (it was exciting!).Pody and NickP.S. I am dyslexic and I work very hard not to have my usual word turn aorunds..but bear with me if it happens (Like the word 'around' back there) ;-)For more plagio info

[Guest guest]

Pody, hi and welcome to the group. Thanks for the introduction.

Sounds like your seeing some wonderful correction with Nick's banding

treatment! YAY!!!! Awesome news. Girl, my daughter was 6.5 weeks

premature and she is going to be 18 months old on the 8th and she

just now weighs 20.11, with THANK GOODNESS, not one preemie issue

except being pigeon-footed. lol Still not convienced that it is

from her being a preemie though. I think she is just too fast and

her little feet can't catch up. hehe..... Nick is growing very

nicely! Good Luck and please keep us posted on how Nick is doing.

Do you have any pictures you could post of him? We love pictures

around here. Oh, I almost forgot, if your worried about the mail

amount, you can go to " no email " and then you can come to the website

to read posts.

Dustie, mom to , DOCGrad'03

> Hello All!,

>

> I am Pody (Po-dee) mommy to Nick who was born 6 weeks early on

> 2/9/03. We are living in Southern New Hampshire and my husband Troy

> and I have been living on the East Coast for 6 years. We have now

> been in his Starband now for about a month and he is doing great

> (his head has grown an inch since we 1st went in and were

> measured!). Nick has very little preemie issues (whew) and is

> growing like my little baby weed that he is (he is 20lbs).

>

> Nick took to the band pretty fast and now we mostly have head

> scratching when it comes off for his morning free range time. I am

> worried just a tad as we just had it adjusted last week and he can

> already move it around (more up and down) on his head again..which

> seems to me maybe he needs it adjusted again? when they can rock it

> up and down?.

>

> I have been wanting to join here for a while now, but the amount of

> mail made me nervous! but the other group I joined has so little

> activity..which is worse?!.

>

> My main question now is how do you dress baby's head for winter? is

> the band enough? a scarf around the face? I am from California and

> this is my 1st winter dressing a baby (help! lol)

>

> I am sure I will get to know a few of you (what 2000 members? lol)

> but I owuld love to meet up with others who are local? I saw my 1st

> other fmaily last night in Wal-Mart and we chatted (it was

> exciting!).

>

> Pody and Nick

>

> P.S. I am dyslexic and I work very hard not to have my usual word

> turn aorunds..but bear with me if it happens (Like the

word 'around'

> back there) ;-)

[Guest guest]

Pody,

kristen had her band during the summer, but I bought an older

child's size sun hat and it fit nicely over the band - I'm sure you

can do the same thing with a winter cap. I view e-mails at the

site instead of having my inbox flooded...

used to rub her head when the band came off too! It sounds

like Nick is adjusting nicely. I remember you posting a while back,

right? Welcome to the board (again!)

Kerri from NY

's mom (DOCgrad)

>

>

> From: Pody

> Plagiocephaly

> Sent: Monday, October 06, 2003 9:32 AM

> Subject: Newbie

>

>

> Hello All!,

>

> I am Pody (Po-dee) mommy to Nick who was born 6 weeks early on

> 2/9/03. We are living in Southern New Hampshire and my husband

Troy

> and I have been living on the East Coast for 6 years. We have

now

> been in his Starband now for about a month and he is doing

great

> (his head has grown an inch since we 1st went in and were

> measured!). Nick has very little preemie issues (whew) and is

> growing like my little baby weed that he is (he is 20lbs).

>

> Nick took to the band pretty fast and now we mostly have head

> scratching when it comes off for his morning free range time.

I am

> worried just a tad as we just had it adjusted last week and he

can

> already move it around (more up and down) on his head

again..which

> seems to me maybe he needs it adjusted again? when they can

rock it

> up and down?.

>

> I have been wanting to join here for a while now, but the

amount of

> mail made me nervous! but the other group I joined has so

little

> activity..which is worse?!.

>

> My main question now is how do you dress baby's head for

winter? is

> the band enough? a scarf around the face? I am from California

and

> this is my 1st winter dressing a baby (help! lol)

>

> I am sure I will get to know a few of you (what 2000 members?

lol)

> but I owuld love to meet up with others who are local? I saw

my 1st

> other fmaily last night in Wal-Mart and we chatted (it was

> exciting!).

>

> Pody and Nick

>

> P.S. I am dyslexic and I work very hard not to have my usual

word

> turn aorunds..but bear with me if it happens (Like the

word 'around'

> back there) ;-)

>

>

>

> For more plagio info

[Guest guest]

Hi Pody,

Welcome to the group! I'm from the east coast too! Where did you

get Nick's band from? We go to Cranial Tech in Connecticut. I'm

glad to hear he is doing so well in it. Hannah was born 12/23 and

is just 17 lbs . The band is supposed to " teeter " to an extent.

It is only supposed to be tight against the head in the areas that

stick out the most. The rest has open space to grow into. For

instance, Hannah has back right sided flatness, so her band fits

tight on the back left and front right. This allows her head to

grow in the opposite directions. It does make the band teeter, and

that is a good thing as long as it doesn't do it too much. I can

always fit my fingers into the place where her flat spot is after an

adjustment, but by the time our next appointment rolls around I

ususally can't. How often do you go for adjustments? As for

keeping warm, I bought Hannah some fleece jackets and sweatshirts

with hoods that fit over her band. She has a GAP one with a hood

that fits perfectly. It's just snug enough that the hood doesn't

fall off. I still haven't met any other banded babies except at

NOPCO and Cranial Tech. I have met some grads in my travels

though. Good luck with everything. Oh, and I don't get any email.

I just come to the website to read. My box was always too full!

, mom to Hannah, DOCbanded 5/12 and 8/12

Cape Cod, Ma

> Hello All!,

>

> I am Pody (Po-dee) mommy to Nick who was born 6 weeks early on

> 2/9/03. We are living in Southern New Hampshire and my husband

Troy

> and I have been living on the East Coast for 6 years. We have now

> been in his Starband now for about a month and he is doing great

> (his head has grown an inch since we 1st went in and were

> measured!). Nick has very little preemie issues (whew) and is

> growing like my little baby weed that he is (he is 20lbs).

>

> Nick took to the band pretty fast and now we mostly have head

> scratching when it comes off for his morning free range time. I am

> worried just a tad as we just had it adjusted last week and he can

> already move it around (more up and down) on his head again..which

> seems to me maybe he needs it adjusted again? when they can rock

it

> up and down?.

>

> I have been wanting to join here for a while now, but the amount

of

> mail made me nervous! but the other group I joined has so little

> activity..which is worse?!.

>

> My main question now is how do you dress baby's head for winter?

is

> the band enough? a scarf around the face? I am from California and

> this is my 1st winter dressing a baby (help! lol)

>

> I am sure I will get to know a few of you (what 2000 members? lol)

> but I owuld love to meet up with others who are local? I saw my

1st

> other fmaily last night in Wal-Mart and we chatted (it was

> exciting!).

>

> Pody and Nick

>

> P.S. I am dyslexic and I work very hard not to have my usual word

> turn aorunds..but bear with me if it happens (Like the

word 'around'

> back there) ;-)

[Guest guest]

Hi Pody and welcome! I'm glad you have seen great correction thus far - I wish Nick continued rounding!

Where are you from in Southern NH? I am orginally from Westford, MA (mom moved to Nashua, and brother now in Goffstown, NH). I relocated to NJ 8 years ago.

Kerri and I are currently organizing a get-together for NJ/NY (which will be about 3.5 hours from you), but if you decide to get together with some other locals in NH (and it's on the weekend), I'd love to meet up with you all since we travel up there quite frequently!

Good luck -

Rhonda

Mom to Collin - DOC Band Grad 2003www.collingillespie.comwww.preciousbambino.com

-----Original Message-----From: Pody [mailto:podycat@...]Sent: Monday, October 06, 2003 12:32 PMPlagiocephaly Subject: NewbieHello All!,I am Pody (Po-dee) mommy to Nick who was born 6 weeks early on 2/9/03. We are living in Southern New Hampshire and my husband Troy and I have been living on the East Coast for 6 years. We have now been in his Starband now for about a month and he is doing great (his head has grown an inch since we 1st went in and were measured!). Nick has very little preemie issues (whew) and is growing like my little baby weed that he is (he is 20lbs). Nick took to the band pretty fast and now we mostly have head scratching when it comes off for his morning free range time. I am worried just a tad as we just had it adjusted last week and he can already move it around (more up and down) on his head again..which seems to me maybe he needs it adjusted again? when they can rock it up and down?. I have been wanting to join here for a while now, but the amount of mail made me nervous! but the other group I joined has so little activity..which is worse?!.My main question now is how do you dress baby's head for winter? is the band enough? a scarf around the face? I am from California and this is my 1st winter dressing a baby (help! lol)I am sure I will get to know a few of you (what 2000 members? lol) but I owuld love to meet up with others who are local? I saw my 1st other fmaily last night in Wal-Mart and we chatted (it was exciting!).Pody and NickP.S. I am dyslexic and I work very hard not to have my usual word turn aorunds..but bear with me if it happens (Like the word 'around' back there) ;-)For more plagio info

[Guest guest]

I am in a small town called Mont Vernon, abovre Amherst and between Nashua and

Manchester. Being from CA I have no problem driving and Nick is an angel, so we

are mobil. It would depend on the weather and the month if we went.

Would if be upstate NY or NJ? my brother moved to Hartford when he had a job

transfer from CA also so that si a normal drive.

Podycat & ~*Nick*~ b. 2/9/03

[Guest guest]

Podycat,

We'd love to have you and Nick join us! It's probably going to be

near Paramus, NJ, since many of us from this area go/went to Cranial

Tech in Paramus, so that seemed like a central point. (but we'd

love to have anyone from the area come, regardless of where they

sought treatment!)

Kerri

> I am in a small town called Mont Vernon, abovre Amherst and

between Nashua and Manchester. Being from CA I have no problem

driving and Nick is an angel, so we are mobil. It would depend on

the weather and the month if we went.

>

> Would if be upstate NY or NJ? my brother moved to Hartford when he

had a job transfer from CA also so that si a normal drive.

>

> Podycat & ~*Nick*~ b. 2/9/03

[Guest guest]

" I have been wanting to join here for a while now, but the amount of

mail made me nervous! but the other group I joined has so little

activity..which is worse?!. "

Pody, Just wanted to let you know you can set it up so that you

don't receive any email.

Edit My Membership -> Message Delivery -> No email

You'll just have to visit the website to read the messages instead

of having them clog your mailbox.

Lori, Mom to Devin

> Hello All!,

>

> I am Pody (Po-dee) mommy to Nick who was born 6 weeks early on

> 2/9/03. We are living in Southern New Hampshire and my husband

Troy

> and I have been living on the East Coast for 6 years. We have now

> been in his Starband now for about a month and he is doing great

> (his head has grown an inch since we 1st went in and were

> measured!). Nick has very little preemie issues (whew) and is

> growing like my little baby weed that he is (he is 20lbs).

>

> Nick took to the band pretty fast and now we mostly have head

> scratching when it comes off for his morning free range time. I am

> worried just a tad as we just had it adjusted last week and he can

> already move it around (more up and down) on his head again..which

> seems to me maybe he needs it adjusted again? when they can rock

it

> up and down?.

>

> I have been wanting to join here for a while now, but the amount

of

> mail made me nervous! but the other group I joined has so little

> activity..which is worse?!.

>

> My main question now is how do you dress baby's head for winter?

is

> the band enough? a scarf around the face? I am from California and

> this is my 1st winter dressing a baby (help! lol)

>

> I am sure I will get to know a few of you (what 2000 members? lol)

> but I owuld love to meet up with others who are local? I saw my

1st

> other fmaily last night in Wal-Mart and we chatted (it was

> exciting!).

>

> Pody and Nick

>

> P.S. I am dyslexic and I work very hard not to have my usual word

> turn aorunds..but bear with me if it happens (Like the

word 'around'

> back there) ;-)

[Guest guest]

Hi Pody:

I'm glad you decided to join us. Glad to hear Nick is adjusting so

well to his StarBand. on used to scratch his head whenever we

took his band off, too. He had skin afflictions...eczema. But ever

since he graduated from his band...he hasn't had itch attacks.

Something to look forward to. I've heard a lot of mommas use child

caps to put over the band or an adult size ski cap could work, too.

Keep us posted with Nick's adjustments.

Lori and on DOCGRAD 9/19

> Hello All!,

>

> I am Pody (Po-dee) mommy to Nick who was born 6 weeks early on

> 2/9/03. We are living in Southern New Hampshire and my husband Troy

> and I have been living on the East Coast for 6 years. We have now

> been in his Starband now for about a month and he is doing great

> (his head has grown an inch since we 1st went in and were

> measured!). Nick has very little preemie issues (whew) and is

> growing like my little baby weed that he is (he is 20lbs).

>

> Nick took to the band pretty fast and now we mostly have head

> scratching when it comes off for his morning free range time. I am

> worried just a tad as we just had it adjusted last week and he can

> already move it around (more up and down) on his head again..which

> seems to me maybe he needs it adjusted again? when they can rock it

> up and down?.

>

> I have been wanting to join here for a while now, but the amount of

> mail made me nervous! but the other group I joined has so little

> activity..which is worse?!.

>

> My main question now is how do you dress baby's head for winter? is

> the band enough? a scarf around the face? I am from California and

> this is my 1st winter dressing a baby (help! lol)

>

> I am sure I will get to know a few of you (what 2000 members? lol)

> but I owuld love to meet up with others who are local? I saw my 1st

> other fmaily last night in Wal-Mart and we chatted (it was

> exciting!).

>

> Pody and Nick

>

> P.S. I am dyslexic and I work very hard not to have my usual word

> turn aorunds..but bear with me if it happens (Like the

word 'around'

> back there) ;-)

[Guest guest]

Hi Pody and welcome to the group.

The band usually moves a little after it's adjusted, until his head

grows into it a little. If you're really concerned you should have

them check it. My son Jake(15mo.) was banded last winter(we're in

NJ). I never needed to put anything on his head, unless I was going

to be outside for a while, then I wrapped a small scarf over the

top. But short trips in and out of the car, the band was enough.

The band usually keeps them pretty warm. Good luck!

> Hello All!,

>

> I am Pody (Po-dee) mommy to Nick who was born 6 weeks early on

> 2/9/03. We are living in Southern New Hampshire and my husband Troy

> and I have been living on the East Coast for 6 years. We have now

> been in his Starband now for about a month and he is doing great

> (his head has grown an inch since we 1st went in and were

> measured!). Nick has very little preemie issues (whew) and is

> growing like my little baby weed that he is (he is 20lbs).

>

> Nick took to the band pretty fast and now we mostly have head

> scratching when it comes off for his morning free range time. I am

> worried just a tad as we just had it adjusted last week and he can

> already move it around (more up and down) on his head again..which

> seems to me maybe he needs it adjusted again? when they can rock it

> up and down?.

>

> I have been wanting to join here for a while now, but the amount of

> mail made me nervous! but the other group I joined has so little

> activity..which is worse?!.

>

> My main question now is how do you dress baby's head for winter? is

> the band enough? a scarf around the face? I am from California and

> this is my 1st winter dressing a baby (help! lol)

>

> I am sure I will get to know a few of you (what 2000 members? lol)

> but I owuld love to meet up with others who are local? I saw my 1st

> other fmaily last night in Wal-Mart and we chatted (it was

> exciting!).

>

> Pody and Nick

>

> P.S. I am dyslexic and I work very hard not to have my usual word

> turn aorunds..but bear with me if it happens (Like the

word 'around'

> back there) ;-)

[Guest guest]

Hi Tim, welcome! So where are you in the world? How did you find this group?

Filippa (in Australia)

newbie

I just joined this group and just wanted to say hi to everyone.

Tim

[Guest guest]

Hi Tim, welcome : -)

----- Original Message -----

From: essentiale7

I just joined this group and just wanted to say hi to everyone.

Tim

[Guest guest]

In a message dated 05/01/2004 05:14:47 Central Standard Time,

aclavern33@... writes:

> I have been complaining about my eyes being sticky and painful after

> sleeping

> for months now and he has ignorred that too. I want to know if maybe some

> of

> my meds have dry eyes as side effect. He just told me buy tear replacement

> drops from pharmacy and I should be fine. These drops don't work and my

> eyes

> are so dry it feels like glass or something in my eye most of the time and

> my

> vision is getting blurry from time to time.

>

I can help on this.....you may have secondary Sjogren's which can cause those

symptoms. If you can see an ophthamalogist, they can help you with this.

The one I went to had me buy a different kind of natural tears. I had been

using Visine, and it wasn't doing it. He had me get some different ones which

are

also over the counter, but last better. I also got punctal plugs, which

helped a lot. If your insurance covers the eye doc, it's well worth the visit.

Good luck...I hope you feel better soon. Cary

[Guest guest]

Hi Toni,

Welcome to the group, though I'm sorry you or anyone has to suffer to

be here! I have fibromyalgia, OA, and Dercum's disease. I know what

you mean about the expense of prescriptions--between my husband and

me we have 8 prescriptions and if our health insurance didn't cover

part of it, we couldn't get them.

I can't believe your doctor wouldn't approve a handicapped placard

for more than a short time! My doctor actually changed my paperwork

that I had filled out from temporary to permanent. Since there is no

cure for any of these diseases, why would anyone think it is

temporary? My card is good for 8 years, but at the BMV they said

when our license plate is due for renewal in Sept. I could get a

regular handicapped plate. I resisted it for a long time, and

sometimes still park farther away, but it gets harder and harder to

walk even short distances. You have to do what is best for you.

As far as living with the unexpected flares, I try to do what I can

when I'm feeling good, then even if I am feeling good, take a day off

just to conserve energy. My family now knows when I'm down that

there's nothing anyone can do except to wait it out and everyone

pitches in to do stuff. My husband and I are retired and live alone;

our daughter lives nearby and is married with a 3-year old and 10-

month old triplets. All I can say to you, is have patience with

yourself, courage, pray a lot, and avail yourself of the good support

and information in this group!

peace,

Judi