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Hi Jeannette,

This group is mainly made up of patients with rheumatic illnesses who

are treating them with antibiotics, a treatment we call " AP " , which is

short for " antibiotic protocol " . I firmly believe in this treatment

because I've seen people not only improve, but also manage to get off

other, toxic arthritis medications, like prednisone and methotrexate and

keep their illness in better control than when they were on the more

toxic drugs. If you go to the rheumatic.org website and read through

it, you'll find a wealth of information on the treatment, the research

that has been done on it, patient testimonials, information for your

doctor, etc. I would also recommend you read the book " The New

Arthritis Breakthrough " by Henry Scammel, which clearly explains in

English rather than " medicalese " the theory behind the treatment, how it

works, how to do it and case histories of actual patients. Also, ask

this group any questions you have and we'll do our best to answer them.

You'll find many of us have had really good results from the AP, while

others are in the beginning stages of the treatment and working their

way to improvement so someone is usually able to help with just about

any question you have.

Hugs

a Peden

ednettieolson@... wrote:

>

> Hello folks:

> >...Tell me about your group. Thanks.

>

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Hello ,

Welcome to the group :) Dr. Brown said that a very large percentage of

osteoarthritis

cases have a rheumatoid component, so the antibiotic approach may also be

applicable

to you.

You might like to look at Dr. Gabe Mirkin's radio broadcasts on his website

at www.drmirkin.com - Dr. Mirkin treated his wife successfully for

osteoarthritis

with doxycycline.

Let us know how we can help,

Chris.

>Hello,

>

>My name is and I am 37years old in Dallas, Texas. I was diagnosed wit>h

OA in June of this year and am currently on Aleve. I just wanted to say h>ello

and intro- duce myself. Thank you!

>

>

>Arthritically Yours,

>

>arthritic2000@...

>

>

>

>

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and Chas Adlard wrote:

>

>

> You might like to look at Dr. Gabe Mirkin's radio broadcasts on his website

> at www.drmirkin.com - Dr. Mirkin treated his wife successfully for

osteoarthritis

> with doxycycline.

>

Yes, she's right, , and that reminds me -- I have a friend with

osteo. who's also being successfully treated with doxy. In fact, she's

the reason I started to look into the antibiotic protocol to begin with.

(Unfortunately, I have psoriatic arthritis and that seems to be a little

tougher nut to crack than osteo.)

Good luck with your search for treatments; welcome!

--Louise

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Hi , welcome aboard! Love your addy.

Rheumatically yours,

Kimmie

rheumatic NEWBIE

Hello,

My name is and I am 37years old in Dallas, Texas. I was diagnosed with OA in June of this year and am currently on Aleve. I just wanted to say hello and intro- duce myself. Thank you!

Arthritically Yours,arthritic2000@... To unsubscribe, email: rheumatic-unsubscribeegroups

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Hi,

My name is Tina, I'm dx CFS, have a 12 yr old daughter dx ADHD/CFS/Learning

Disability, and a 10 yr old daughter dx autism. I've posted a couple of

times before introducing myself...life has been very busy preparing for an

upcoming event. Our family has always been very active in advocacy and

promoting progress for healing our diseases. I am looking forward to

learning from and sharing with you all.

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

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Hi,

My name is Tina, I'm dx CFS, have a 12 yr old daughter dx ADHD/CFS/Learning

Disability, and a 10 yr old daughter dx autism. I've posted a couple of

times before introducing myself...life has been very busy preparing for an

upcoming event. Our family has always been very active in advocacy and

promoting progress for healing our diseases. I am looking forward to

learning from and sharing with you all.

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

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I don't know if this qualifies as 'the real truth',

but my mother and her parents have always believed

that her only sister died of tetanus contracted from a

cut she got while on a family picnic. She was dead

within within a few days of getting that cut. This

was back in Germany in 1946, just a year or so after

the family survived WWII and the #$%$ Nazis...

By the way, tetanus is also known as " lock-jaw "

because it causes severe muscle tightness.

Max

--- SelahDream@... wrote:

> I am new to the list and I have a question.

>

> I am wondering if anyone can tell me the real truth

> about Tetanus--the

> disease.

>

> Thanks.

>

> (I have twin boys, age 7, with autism.)

>

> Karla Akins

> <A

>

__________________________________________________

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In a message dated 9/18/2002 12:45:24 AM Eastern Daylight Time, ljm78@... writes:

She has just started physical therapy

to see if we can avoid getting "the helmet".

HI LJM78,

Welcome to the group! My son was dx with tort at 2 months and was in a DOC band at 5 months. There is a great torticollis support group at www.torticolliskids if you haven't checked them out yet- great tips and advice on treating tort. The physical therapy is really done to work out that tight neck muscle, this is what is creating the plagio, but its important to realize that tort can also cause upper scoliosis (they compensate posture imbalance which may shift the spine), and facial asymmetry- if the torticollis is not treated, the plagio can worsen, along with the other conditions secondary to torticollis. If you can effectively reposition your child off that flat spot, you may not need to get a helmet. We were not able to do this, my child had severe tort and was also in daycare, 8 hours of repositioning time we were not in control of. The more pt you can do for the tort, all the better to allow your child the mobility to turn or get off that flat spot physically himself. Many kids with torticollis cannot fully rotate their head left or right, so they favor one side, which creates the flat spot. The problem that you will be facing is deciding whether you feel the severity of the plagio is worsening, or not correcting with pt, and doing this evaluation while still within a good window of opportunity for the band to work- if you feel that it may be necessary. Check into www.cranialtech.com for before and after pics and see if your child resembles the headshapes shown. You'll get great advice from the many members on board, and there are lots of us with kids who have/had torticollis and plagio- so we all know the mixed bag of emotions, decisions, appts. your faced with- and you can count on us all to help you through it with great advice. Good luck and keep us posted on your little one!

' Mom

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In a message dated 9/18/2002 10:43:27 AM Eastern Daylight Time, rella1234@... writes:

The problem that you will be facing is deciding whether you feel the severity of the plagio is worsening, or not correcting with pt, and doing this evaluation while still within a good window of opportunity for the band to work- if you feel that it may be necessary

SORRY- I didn't mean to say that plagio will correct with pt- it will not. Physical therapy will only help to stretch out that muscle and allow more ability to turn in the direction they are not currently using. Either repositioning off that flat spot or the band/helmet are the only means of correction for plagio that I am aware of, unless you count the "it will round out on its own" theory from some Doctors, who also will recommend surgery later down the road for very severe cases- although rare. Sorry for any confusion.

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Hi Lindsey,

I hope you don't mind if I get lazy here. I should be cleaning my

home because I have house guest coming tomorrow, but they are in-laws

and I am not looking forward to it.

Anyways, please read my post from a few days ago. You can find it by

just typing 43162 in the box for Msg #

It is message #43162

From: " wittfamily4 "

Date: Sat Sep 14, 2002 7:26 am

Subject: Re: 4 month old. Too late for repositioning? Referrals in

Fremont California?

If you can't find it let me know. I will paste it over for you.

God Bless,

Heidi - mom to 6, 4, 5 months (tort/plagio)

> Hi all! New here to the group. My 6 month old daughter has

positional

> plagiocephaly and torticollis. She has just started physical

therapy

> to see if we can avoid getting " the helmet " . Any info or suggestion

> would be great!

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Hi & welcome to our group!

Glad to hear your daughter has begun her pt for the tort., how is

that going so far? Would you say your daughter's plagio is mild,

moderate, severe?

Has she been seen by a specialist for her plagio?

Welcome again, please share some more of your daughter's story!

Debbie Abby's mom DOCGrad

MI

> Hi all! New here to the group. My 6 month old daughter has

positional

> plagiocephaly and torticollis. She has just started physical

therapy

> to see if we can avoid getting " the helmet " . Any info or suggestion

> would be great!

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Thanks for that! Rylee will be going to PT every week for the next 2

months for her neck. We have an appt. with a Neurologist next Friday

to go over whatever he does. I am not sure if he would fit the band

or refer us to someone else?? We'll see. I am concerned daily about

her little head but they assured me that her brain is in no way

compromised by this so at least that is one relief! =)

> In a message dated 9/18/2002 12:45:24 AM Eastern Daylight Time,

> ljm78@a... writes:

>

>

> > She has just started physical therapy

> > to see if we can avoid getting " the helmet " .

>

> HI LJM78,

> Welcome to the group! My son was dx with tort at 2 months and was

in a DOC

> band at 5 months. There is a great torticollis support group at

> www.torticolliskids@y... if you haven't checked them out yet-

> great tips and advice on treating tort. The physical therapy is

really done

> to work out that tight neck muscle, this is what is creating the

plagio, but

> its important to realize that tort can also cause upper scoliosis

(they

> compensate posture imbalance which may shift the spine), and facial

> asymmetry- if the torticollis is not treated, the plagio can

worsen, along

> with the other conditions secondary to torticollis. If you can

effectively

> reposition your child off that flat spot, you may not need to get a

helmet.

> We were not able to do this, my child had severe tort and was also

in

> daycare, 8 hours of repositioning time we were not in control of.

The more

> pt you can do for the tort, all the better to allow your child the

mobility

> to turn or get off that flat spot physically himself. Many kids

with

> torticollis cannot fully rotate their head left or right, so they

favor one

> side, which creates the flat spot. The problem that you will be

facing is

> deciding whether you feel the severity of the plagio is worsening,

or not

> correcting with pt, and doing this evaluation while still within a

good

> window of opportunity for the band to work- if you feel that it may

be

> necessary. Check into www.cranialtech.com for before and after

pics and see

> if your child resembles the headshapes shown. You'll get great

advice from

> the many members on board, and there are lots of us with kids who

have/had

> torticollis and plagio- so we all know the mixed bag of emotions,

decisions,

> appts. your faced with- and you can count on us all to help you

through it

> with great advice. Good luck and keep us posted on your little one!

>

> ' Mom

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Hi Ben,

> I've been reading messages here for a couple of days and am VERY

> interested in the process being adopted here. So..

>

> -as a newbie where do i start to get specifics for pre-chelation

> health set up for my 3 yr old son? Currently takes super-nu-thera,

> DMG and cods liver oil (all kirkman)

hummm --- well if you are asking about supplements needed prior

to chelating, you can look here:

/files/ANDY_INDEX

Find the section on " supplements " and then read the 3 or 4

posts (at the beginning of that section) about supplements

to use during chelation.

Here is one about hair testing too:

/files/HOW_TO_hair_test

Many doctors do tests like liver funcion (and maybe kidney

function too) prior to chelation.

> -does the fact that I (his father) have tons of silver fillings

> matter if I am chelating him?

nope. It just means you can't chelate yourSELF yet. No problem

for chelating him. If HE has any amalgam/silver fillings THAT

is a problem (for chelating HIM).

> -I was going to go to a DAN! doctor near here to help. Do we think

> he will adopt Andy's protocol?

no saying. If I were you I'd set the goal as allowing/supporting

you (just you) in using whatever protocol you want (apparently

Andy's). If the doctor is interested, he can adopt whatever he

wants. I would simply focus on your kid and the treatment of

your kid.

>

> Thanks to all for the help. I will buy the book if that's the best

a

> most comprehansive way to get all this..but my pile of ASD books is

> getting very high!

hahahah :) Mine is fairly big too ;)

Actually mine is ASD and metals and also a few books that I

refer to a lot when writing here [e.g. milk thistle book....]

Personally if I had it all to do again I would BOTH buy the book

AND read ANDY_INDEX (URL above). The book goes into a lot of

stuff that is not in ANDY_INDEX, but, then again, ANDY_INDEX is

presented as a bunch of posts that say the same stuff (over and

over) slightly differently each time......

best wishes,

Moria

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HI, is this the same who posted to me on the Buffy and Angel forum

over on Delphi? If so I am glad to see you made it over here! Lots of good

info and advice to be had here. :)

Welsome to all the new folks!!!

Kari & Gracie

North Carolina

newbie

> Hi, I just wanted to introduce myself and tell you about my son. Were

> from australia. My son Blake is a plagio baby. He has flattening on

> the side on head (right side). Right left side of the back of his

> head and bossing on the front right side of his forehead.

>

> I have taken him to 2 family drs and a ped here in Australia. (I'm

> orginally from the US. So a bit confused on how things work here)

> They have all told me not to worry about his head shape it will

> straigthen out on it's own. I have made a appointment for a cranio

> specailist for the 6th of march. So hopefully I will get the

> ansewers I want from there. All the drs I have spoken to told me to

> let him sleep any way he wants and not do ANYTHING. I have kept him

> off that side of his head. It hasn't gotten worse. I actually think

> it looks a little better.

>

> I find that drs here don't want to use a helment, and I have a friend

> in New Zealand, her sons head was quite bad and they told her the

> same. His turned out great without any treatment. Just confused on

> why in the US everyone seems to get a helment to straighten out even

> of the most minor cases and here they tell you not to worry. That's

> why I'm worried. I'm confused on whos right and wrong. Just want to

> do the right thing.

>

> Sorry it's so long, just hoping maybe someone can help me with what

> to do?

> I have looked at some of your pictures in the (photos) find some look

> like Blakes and some don't look quite so bad. No one tends to look

> bad to me, does that make sense? like you don't pay too much

> attention to someone elses, but you worry about your own childs head

> shape? Being a mom is hard. lol to say the least.

>

> Ok, thanks for reading and any help.

> mommy to nathan Tyler 8/2/00 and Blake 9/20/02

>

>

>

> For more plagio info

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--- In Plagiocephaly , " Koskela " <jkoskela@n...>

wrote:

> HI, is this the same who posted to me on the Buffy and

Angel forum

> over on Delphi? If so I am glad to see you made it over here! Lots

of good

> info and advice to be had here. :)

>

> Welsome to all the new folks!!!

>

> Kari & Gracie

> North Carolina

> newbie

>

>

> > Hi, I just wanted to introduce myself and tell you about my son.

Were

> > from australia. My son Blake is a plagio baby. He has flattening

on

> > the side on head (right side). Right left side of the back of his

> > head and bossing on the front right side of his forehead.

> >

> > I have taken him to 2 family drs and a ped here in Australia. (I'm

> > orginally from the US. So a bit confused on how things work here)

> > They have all told me not to worry about his head shape it will

> > straigthen out on it's own. I have made a appointment for a cranio

> > specailist for the 6th of march. So hopefully I will get the

> > ansewers I want from there. All the drs I have spoken to told me

to

> > let him sleep any way he wants and not do ANYTHING. I have kept

him

> > off that side of his head. It hasn't gotten worse. I actually

think

> > it looks a little better.

> >

> > I find that drs here don't want to use a helment, and I have a

friend

> > in New Zealand, her sons head was quite bad and they told her the

> > same. His turned out great without any treatment. Just confused

on

> > why in the US everyone seems to get a helment to straighten out

even

> > of the most minor cases and here they tell you not to worry.

That's

> > why I'm worried. I'm confused on whos right and wrong. Just want

to

> > do the right thing.

> >

> > Sorry it's so long, just hoping maybe someone can help me with

what

> > to do?

> > I have looked at some of your pictures in the (photos) find some

look

> > like Blakes and some don't look quite so bad. No one tends to look

> > bad to me, does that make sense? like you don't pay too much

> > attention to someone elses, but you worry about your own childs

head

> > shape? Being a mom is hard. lol to say the least.

> >

> > Ok, thanks for reading and any help.

> > mommy to nathan Tyler 8/2/00 and Blake 9/20/02

> >

> >

> >

> > For more plagio info

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Welcome to the group. You will get alot of good info here. I know

it seems like everyone gets helmets here but alot of people do have

success repositioning. But to do nothing like your drs say I highly

doubt you will recieve results. Alot of our drs told us to do

nothing mine did until she was 8 mths old and it still was a fight to

get a referal. You need to do what you think is right. I do think

it is a good idea to get all the info and opinions you can to make up

your mind. You will find alot of info here and help this is a great

place. How old is your son? The older they are the more likely you

are to need a helmet to get the correction. Welcome again

Debbie-Belles mom

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Hi

Welcome to the group! I can't believe that doctors are telling

parents not to do anything!! I believe your the second Mom this week,

whose doctor told her that. On the Cranial Tech web site in the

parents area, in the library folder is a wealth of information about

plagio.

No one can tell you for sure if your son's head will round out or

not. Some babies do and some babies don't. I am hoping that someone

here will be able to tell you if treatment is available for you in

your area. That is if that is what you are looking for. Here are some

links to help you reposition your son:

http://www.geocities.com/alittleone2000/plagiopage.htm

http://www.cappskids.org/CAPPSRepositioning.htm

http://www.plagiocephaly.org/support/repotech.htm

Good luck and please keep us posted.

> Hi, I just wanted to introduce myself and tell you about my son.

Were

> from australia. My son Blake is a plagio baby. He has flattening on

> the side on head (right side). Right left side of the back of his

> head and bossing on the front right side of his forehead.

>

> I have taken him to 2 family drs and a ped here in Australia. (I'm

> orginally from the US. So a bit confused on how things work here)

> They have all told me not to worry about his head shape it will

> straigthen out on it's own. I have made a appointment for a cranio

> specailist for the 6th of march. So hopefully I will get the

> ansewers I want from there. All the drs I have spoken to told me to

> let him sleep any way he wants and not do ANYTHING. I have kept him

> off that side of his head. It hasn't gotten worse. I actually think

> it looks a little better.

>

> I find that drs here don't want to use a helment, and I have a

friend

> in New Zealand, her sons head was quite bad and they told her the

> same. His turned out great without any treatment. Just confused on

> why in the US everyone seems to get a helment to straighten out

even

> of the most minor cases and here they tell you not to worry. That's

> why I'm worried. I'm confused on whos right and wrong. Just want to

> do the right thing.

>

> Sorry it's so long, just hoping maybe someone can help me with what

> to do?

> I have looked at some of your pictures in the (photos) find some

look

> like Blakes and some don't look quite so bad. No one tends to look

> bad to me, does that make sense? like you don't pay too much

> attention to someone elses, but you worry about your own childs

head

> shape? Being a mom is hard. lol to say the least.

>

> Ok, thanks for reading and any help.

> mommy to nathan Tyler 8/2/00 and Blake 9/20/02

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,

Welcome to the group! I know we have had members from Australia and New Zealand, and if I can remember, some found treatment in Brisbane- I hope others will chime in there for you (Dr. or Dr. Blecher sound right anyone?). I believe the American epidemic is more prevelant because we are adhering to the Back To Sleep Campaign, whereby putting all babies to sleep on their backs to reduce the risk of SIDS. Are most Docs in Australia advising to do this? We here in the U.S. also have many Docs that feel it is only cosmetic, and that it will round out. I think the reality may lie somewhere in the middle about the round out theory- my friend's son has severe brachy, and although it has rounded out some, its only to the point that its less shocking than it was, and he is turning 3 in May. In our situation, we felt that the facial asymmetry was the real need for banding, the flatness was not as bad as the misaligned ears and facial asymmetry (although it was the cause). Good luck finding answers, please use this Board for any questions you may have, there are literally hundreds of people here willing to help you, and with so many members you will find great resources!

' Mom

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Welcome to the group !

I see Debbie found the Aussie info I was unable to locate! I see

you also got a lot of great repositioning links.

A lot of members have had obstacles on the way to treatment. Plagio

isn't just a cosmetic issue. It is believed to result in TMJ and

migraines, etc. My son had a lot of facial and ear asymmetry. I

think if you have eyes at different levels that can easily result in

vision issues. Also my son was riddled with ear infections until

his ears realigned. Getting the medical community to recognize

this is rather challenging!

Anyhow, basically I wanted to say welcome to the group!

Dane's mom DOC Grad

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Hi

I'm new to the group and I'm also from Australia (Canberra). Are

there any other aussies out there??

My son Ethan (now almost 2) had a torticollis and a severe flattening

on one side of his head. I wasn't able to get much information or

advice at the time I needed it (I wish I'd known about this group!).

After waiting 3 months to see a pediatrician he told us it was just

cosmetic and would round out with time. We asked about helmets

(heard about this from a physiotherapist I saw) and he said he'd

never heard of such a thing and fobbed it off as completely

unneccesary. With very little information and faced with a 3 month

wait to see another pediatrician for a second opinion, we just

followed the advice of the physiotherapist (who was very helpful -

lots of tummy time, excercises etc).

So, my experience with doctors sounds similar to yours!

With the tummy time and excercises and as he became more mobile,

Ethan's torticollis became less severe and now its barely

noticeable. His head shape has improved dramatically and you can't

really notice it unless you look down from the top of his head when

his hair is wet. Its amazing how much it has improved because the

flattening was very severe at 3 months - it looked completely weird!

I've found an osteopath in Canberra who specialises in cranio-facial

problems and we've had further improvement after some sessions with

him.

I think there are still some residual problems from the torticollis

that we are keeping an eye on but there are no apparent developmental

delays and the head shape looks pretty good.

Love to hear from you or any others in Oz. Things seemed to have

worked out OK in our case but I'm concerned about the lack of

awareness of this problem in Australia!

cheers

(Canberra, Australia)

> Hi, I just wanted to introduce myself and tell you about my son.

Were

> from australia. My son Blake is a plagio baby. He has flattening on

> the side on head (right side). Right left side of the back of his

> head and bossing on the front right side of his forehead.

>

> I have taken him to 2 family drs and a ped here in Australia. (I'm

> orginally from the US. So a bit confused on how things work here)

> They have all told me not to worry about his head shape it will

> straigthen out on it's own. I have made a appointment for a cranio

> specailist for the 6th of march. So hopefully I will get the

> ansewers I want from there. All the drs I have spoken to told me to

> let him sleep any way he wants and not do ANYTHING. I have kept him

> off that side of his head. It hasn't gotten worse. I actually think

> it looks a little better.

>

> I find that drs here don't want to use a helment, and I have a

friend

> in New Zealand, her sons head was quite bad and they told her the

> same. His turned out great without any treatment. Just confused on

> why in the US everyone seems to get a helment to straighten out

even

> of the most minor cases and here they tell you not to worry. That's

> why I'm worried. I'm confused on whos right and wrong. Just want to

> do the right thing.

>

> Sorry it's so long, just hoping maybe someone can help me with what

> to do?

> I have looked at some of your pictures in the (photos) find some

look

> like Blakes and some don't look quite so bad. No one tends to look

> bad to me, does that make sense? like you don't pay too much

> attention to someone elses, but you worry about your own childs

head

> shape? Being a mom is hard. lol to say the least.

>

> Ok, thanks for reading and any help.

> mommy to nathan Tyler 8/2/00 and Blake 9/20/02

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> Hi All

> Being new to the idea of chelation therapy,( have known about

Mercury in

> seafood/amalgam fillings etc for a while) would appreciate all

advice, re

> how to go about chelating etc etc etc.

You can start with my general overview page, if you want

http://www.danasview.net/chelate.htm

Dana

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> Hi All

> Being new to the idea of chelation therapy,( have known about Mercury in

> seafood/amalgam fillings etc for a while) would appreciate all

advice, re

> how to go about chelating etc etc etc.

I'd suggest that you look at the files here:

/files/

Poke around and see what is interesting.

Oh, okay, here are a few to look at:

/files/Mercury-Autism%20FAQ

/files/ANDY_INDEX

/files/HOW_TO_buy_DMSA

/files/HOW_TO_find_doctor

/files/Andy_dose_sched

/files/Andy_protocol

/files/Glossary

/files/Books_about_autism

/files/HOW_TO_hair_test

best,

Moria

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hi julie,

nice to see that you found your way here. :)

merlin aka geraldine from tas.

Message: 1

Date: Fri, 18 Apr 2003 20:10:13 +1000

From: " Livesey's " <couzensfamily@...>

Subject: newbie

Hi All

Being new to the idea of chelation therapy,( have known about Mercury in

seafood/amalgam fillings etc for a while) would appreciate all advice, re

how to go about chelating etc etc etc. (anyone in the group live in

Australia??) It seems chelation is not well known here (in regional

Australia anyway)

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Dear Paige,

You're going to be hearing from LOTS of people, but for starters please go

to the rhumatic.org site: http://www.rheumatic.org/ and click on " medical

histories. " Also, I am pasting in here a story that recently came

through--gosh, I don't think it has been more than a couple of weeks ago.

This following story will inspire and encourage you, I guarantee it.

Good luck.

Ellen McCool

Debbie, Sero-Negative Rheumatoid Arthritis

I feel incredibly privileged to be able to post my story on this

website. When you can't bend your knees, make a fist with your hand,

open a bottle of milk or play with your toddler, you need to hear some

good news stories. I hope that my story in some small way gives people

who are suffering from rheumatic diseases some much-needed hope. I

know that the patient histories I read when I first came across the

antibiotic protocol (AP) gave me a great sense of optimism at a time

when I was incredibly despairing and uncertain of my future.

So, here goes:

I am 30 years old, from Melbourne, Australia, with an 18-month-old son.

In August last year, whilst on holidays with my family and a couple of

friends, I started to feel some pain in my groin area, which was

preventing me from getting a good night's sleep. It went away after a

couple of weeks and I forgot about it.

A few months later, in October, just before my son's first birthday, my

whole body started to ache. I am a pretty intense person who needs to

keep busy and at the time I was really pushing myself - looking after

my toddler, doing a few hours of postgraduate university study each

week, as well as some freelance writing work here and there, playing

tennis, doing the mothers' group thing and undertaking lots of other

activities with my little boy. With uni exams looming, I was lucky to

be getting 4 - 5 hours sleep a night.

The day after 's birthday, my body suddenly seemed to pack up. I

could barely squeeze toothpaste out of the tube and changing 's

nappy (sorry ... diaper for all of the Americans reading this post!)

was a real struggle. It hurt to hold a pen and write.

I went to a GP (not my regular doc) who sent me off for some blood

tests and told me to come back in a week. In the meantime, she

prescribed some Celebrex.

That week was hellish and I couldn't wait for my next appointment, to

get some answers. Unfortunately I didn't get any. She didn't know what

was going on, told me to keep up the Celebrex and said to come back in

six weeks if I was still feeling sore.

Five days later I went to see my regular GP. She was extremely

distressed to see what a bad state I was in and ran a host of blood

tests. She told me she hoped it was viral and got me an immediate

appointment with a local rheumy.

For the next month, I was in limbo, with constant blood tests and

doctor's appointments. I was feeling increasingly despairing and

depressed. I was up to about 400 mg a day of Celebrex by this stage and

it wasn't helping a bit.

Finally I was told that I had a form of arthritis - most probably

sero-negative rheumatoid arthritis. My GP and rheumy wanted me to go on

prednisilone immediately to 'turn off the tap' of inflammation, with a

view to starting a disease-modifying drug, possibly methotrexate, soon

after.

I was horrified and asked about side-effects. The rheumy seemed to

resent my questions and basically washed her hands of me when I said I

didn't want to take the cortisone. She told me that the " problem " with

people my age was that we thought we were invincible and that the worst

thing that could happen to us was a cold or flu. She told me that I had

a chronic health condition that was going to impact on my quality of

life and that I would have a shorter life expectancy because I wouldn't

be able to do any physical activity, leaving me vulnerable to a heart

attack. I burst into tears and she kept talking all the while in this

really detached voice, as though I wasn't even there! I felt like my

life was over.

With the support of my wonderful husband, family and some great

friends, I started to look at alternatives. I saw a naturopath who got

me off sugar, caffeine and alcohol and a few other things, and started

drinking lots of water (previously, I would go a whole day without

drinking any water - horrifying when I think about it now!).

Although I could see a few minor improvements, I was still in a lot of

pain and started to worry about doing long-term damage to my joints. At

this time, I had massive nodules on my hands and my feet were extremely

swollen. I didn't have much movement in my knees.

A few days before Christmas I saw my grandmother's GP for a second

opinion and fresh advice - she said he was pretty open-minded and might

be able to suggest some other approach to my condition. Unfortunately

he said he thought very highly of my rheumy and that if she had

suggested cortisone and DMARDs that she wouldn't be doing so lightly.

He said if I didn't take her advice, I could potentially end up

crippled. I felt as though I was on the verge of a panic attack and

felt that I was going to have to go down a path I hadn't wanted to take.

That night my husband went Christmas shopping. The stores were

open 24 hours and he didn't come home until around midnight. The next

day he told me that he had been at Borders book store reading up on

arthritic drugs and that he didn't want me to go down that path - he

was scared of the side-effects they would have on me.

On Christmas Eve he spent hours surfing the Internet and came across

the Road Back site and rheumatic.org. Finally we had some hope! I was

in tears as I read some of the stories and we couldn't wait to get our

hands on Henry Scammell's book.

We posted to the Road Back bulletin board and to Adlard and

immediately had responses from three fellow Aussies.

They were so encouraging and positive about the prospects of AP working

for me and recommended a doctor.

By late January we had an appointment with the AP doctor and a few

weeks later I saw the naturopath she works closely with in Melbourne.

My AP doctor believes that diet is an intrinsic part of antibiotic

therapy. She warned me that unless I was prepared to make comprehensive

lifestyle changes, she couldn't help me.

In early February, I made some pretty radical changes to my diet - no

wheat, no dairy, no products high in sulphur, no pork, and lots and

lots of water. I also had to cut out salicylates for a month, and stay

off sugar, caffeine and alcohol. At first I felt pretty down about it

all ... what was left for me to eat?!!!

I got over this pretty quickly, however, when after 10 days of cutting

out the wheat and dairy the nodules on my hands completely disappeared

and the swelling of my feet drastically reduced. I also started to get

some movement back in my knees. At this time I also started a

homeopathic combination - 15 drops twice a day before meals.

On 17 February, I finally started the antibiotics! First up was

erythromycin - 5 ml on Monday and Thursday mornings. Two weeks later, I

added doxycycline (Vibratabs) - 50 mg on Monday and Thursday evenings.

Since then I haven't looked back! I am completely pain-free and

symptom-free, except for some slight swelling in my left ankle for the

first few weeks I was taking the Vibratabs.

Yesterday I saw my AP doctor and naturopath and they are thrilled with

my progress. All signs point to remission!!!

I have more energy now than I have ever had - I can roll around on the

floor with my son, wear high heel shoes and am enjoying life more than

ever before! With my doctor's support and encouragement I have also

started a new job, working two days per week. My mother and a close

girlfriend recently told me that I look 23 years old!

At my initial appointment with my AP doctor she said I would have to

wait at least 12 months on AP before I could consider having another

child. Yesterday she told me that I could consider pregnancy in six

months, if I felt I was ready! I feel on top of the world.

Now that I am feeling so great, some friends are asking me if I am

going to stop the antibiotics or ease up on the diet. My answer is NO

WAY!!! I have learnt enough from this website and other books to know

that I have a lifelong health condition, and it would be stupid of me

to become complacent. Thanks to the pioneering work of Dr Brown and

other enlightened health professionals, I am able to keep this disease

under control with antibiotics. I know that all medications have

side-effects, but I am happy to live with what I consider to be minimal

or 'safe' side-effects of AP, particularly when I consider the

side-effects of the drugs that my rheumy was pushing.

I hope my story gives others out there some hope. I know that I would

not have gotten through this without all of the wonderful people out

there, who are so generous in sharing their experiences on the various

AP websites.

I know that I have been very fortunate and that not everyone will have

the instant results that I have had with AP. However, please stick with

it and retain your hope - there are many people who were sick for

decades before coming across AP and many have had significant

improvements.

Good health to all of you.

Debbie.

You can reach me at d.fewster@...

rheumatic newbie

> Hi all,

>

> I'm a new member here, have been lurking for a couple of weeks and

> thought I'd speak up and say hi. I'm 35, newly diagnosed with RA. I've

> had joint pain, slowly increasing with severity, for the past 18 years.

> I've been trying to find out why for about as long, and have been told

> that its stress, depression, anxiety, repetative motion disorder, and my

> personal favorite, gee I don't know, lets just try this and see if it

> helps! I have little redness or swelling, all tests have come back

> negative except for a positive rheum. factor. Several months ago I

> started seeing an acupuncturist who recommended the book The Arthritis

> Breakthrough and a local doctor who believes in the minocin protocol.

> I'm getting ready to start on my minocin in the next few days.

>

> If you will be so kind as to indulge me, I have a few questions. First

> of all, what is the difference between rheumatoid and reactive

> arthritis? My doc, as well as other info sources, refer to my arthritis

> as both, but I've seen on the list that some people refer to them as

> separate conditions. And I'm having trouble figuring out some of the

> acronyms used here: AP=antibiotic protocol? Lots of names of meds I've

> never heard of, have no idea what they do, but I guess I'll keep reading

> along and see what I can learn! Someone asked about Rheumax - is that

> the same as RheumaPlus? I've been taking that - seems to be helping a

> little. I'm taking a whole cocktail of herbal supplements, but no other

> drugs besides the mino.

>

> I feel fortunate in that it seems I may have caught the RA early enough

> to actually do something about it... cure it? So, here's my next

> question: has anyone here, or does anyone know of someone, who has

> actually been CURED by antibiotics? I'm hopeful, but I'm a skeptic by

> nature.

>

> Thanks much, and I look forward to learning from everyone here, and I

> hope I can contribute in a positive way to your health as well!

>

> Blessings,

> Paige

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

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