Re: Anyone's child had a spinal tap?

[Guest guest]

Nick had one done when he was 8 months old. It was very traumatic for us,

thankfully he doesn't remember it. We were not in the room but it took forever.

All I can remember is wanting to break down the door of the room he was in and

rush him out of the hospital. I am not sure if they gave him versed or not but

he was crying. I hope if this is the road you are headed down that it goes

smoothly, my prayers are with you.

Amy, mom to Nick (will be 6 in two days!! CVID)

Anyone's child had a spinal tap?

has anyone's child had a spinal tap? Can you tell me about it? How traumatic

was it for the

child? Do they sedate them? What do they usually use? How painful was it?

Thanks. It looks

like we're headed that direction and I wanted to know what to expect. Kim

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10:09 AM

[Guest guest]

Amy, He's only 3 and there's no way he's going to stay still. Do they stay in

the hospital or is he going to have to remain sedated the whole time? My mother

told me when she had one as an adult, they made her lay flat for a long period

of time. This will JUST NOT happen with my 3 year old. He's " too well "

(meaning he's not laying around lethargic) and too hyperactive. KimTo:

@...: mom2lilnick@...: Fri, 19 Dec 2008

17:58:01 -0600Subject: Re: Anyone's child had a spinal tap?

Nick had one done when he was 8 months old. It was very traumatic

for us, thankfully he doesn't remember it. We were not in the room but it took

forever. All I can remember is wanting to break down the door of the room he

was in and rush him out of the hospital. I am not sure if they gave him versed

or not but he was crying. I hope if this is the road you are headed down that

it goes smoothly, my prayers are with you.

Amy, mom to Nick (will be 6 in two days!! CVID)

Anyone's child had a spinal tap?

has anyone's child had a spinal tap? Can you tell me about it? How traumatic was

it for the

child? Do they sedate them? What do they usually use? How painful was it?

Thanks. It looks

like we're headed that direction and I wanted to know what to expect. Kim

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG.

Version: 7.5.552 / Virus Database: 270.9.19/1857 - Release Date: 12/19/2008

10:09 AM

[Guest guest]

Macey had one when she was 5. She was sedated. They were looking for certain

cells seen with MS.

Ursula - mom to (16) and Macey (13,CVID)

www.caringbridge.org/visit/maceyholleman

@...: kmay77@...: Fri, 19 Dec 2008

23:51:54 +0000Subject: Anyone's child had a spinal tap?

has anyone's child had a spinal tap? Can you tell me about it? How traumatic was

it for the child? Do they sedate them? What do they usually use? How painful was

it? Thanks. It looks like we're headed that direction and I wanted to know what

to expect. Kim

[Guest guest]

Our son has had so 5-7 spinal taps.  He is only 3 1/2  so he was sedated for

each one.  They used two different drugs to sedate, one was called fetanol(sp?)

and I can't remember the other, but they are used as a combination, maybe a

nurse on here would know.  However most of his spinal taps were preceded by a

MRI that was about 30-45 minutes so the sedation drugs might have been a little

stronger than what is normally used.  One time they used propofol to sedate him

and he had an allergic reaction to it, this was the only time it was done

without an MRI and the sedation drug was different, needless to say the other

drugs were better for him, he had no reaction, woke up pretty quickly although

he was slightly groggy, he would eat and drink enough that everyone was happy

and then usually fall asleep again on the way home.  Since our child was asleep

throughout all of the spinal taps it was not traumatic for him at all.  But

depending on age, they

might do it differently for everyone. 

 

Kali- 8

Jack- 3 CVID

Gabe-2

Casey- 4 weeks

From: Ursula Holleman <uahollem@...>

Subject: RE: Anyone's child had a spinal tap?

Date: Friday, December 19, 2008, 7:48 PM

Macey had one when she was 5. She was sedated. They were looking for certain

cells seen with MS.

Ursula - mom to (16) and Macey (13,CVID)

www.caringbridge. org/visit/ maceyholleman

groups (DOT) comFrom: kmay77hotmail (DOT) comDate: Fri, 19 Dec 2008

23:51:54 +0000Subject: Anyone's child had a spinal tap?

has anyone's child had a spinal tap? Can you tell me about it? How traumatic was

it for the child? Do they sedate them? What do they usually use? How painful was

it? Thanks. It looks like we're headed that direction and I wanted to know what

to expect. Kim

[Guest guest]

Hi

 

My child had one but she was soooo out of it to begin with she did not move

during the procedure.  I was ready for her to scream in pain but it never

happened.  To tell you the truth that was when I thought things were serious.  I

knew I was close to losing her when she did not respond to the spinal tap.  It

freaked me out!  thank goodness things worked out and she bounced back.

 

I can tell you that she had pain as a side effect after the procedure.  She was

in the hospital and she was fine one minute and the next she was screaming in

pain.  They told me it was from the spinal tap.  I have no idea what was

happening to her to make her feel that way.  She could never explain what she

was feeling during the pain.  I could barely get her to talk when the pain

occured.  She just screamed.  It was horrible.  They medicated her to make her

feel better.  I don't remember what they gave her.  She was five when this

happened.

I don't want to scare you--just prepare you.  Good luck!

Theresa

From: ksteltz77 <kmay77@...>

Subject: Anyone's child had a spinal tap?

Date: Friday, December 19, 2008, 6:51 PM

has anyone's child had a spinal tap? Can you tell me about it? How traumatic was

it for the

child? Do they sedate them? What do they usually use? How painful was it?

Thanks. It looks

like we're headed that direction and I wanted to know what to expect. Kim

[Guest guest]

Conner was 13 at the time of his spinal tap, he was put to sleep for his central

line placement and they did the lumbar puncture at the same time. He didn't

complain of any discomfort afterward and although he took it easy the rest of

that day, he didn't have any restrictions.

(NEMO carrier)

Mom to Hayden (14-unknown PID)

Evan (14-unknown PID)

Conner (14-NEMO; transplanted 8/17/07 - from an anonymous donor)

Kelsey (12-unknown PID and NEMO carrier)

Wife to (unknown PID)

www.caringbridge.org/visit/smithkids

__

[Guest guest]

I have had a couple . It is not particularly painful. But you have to curl up in

a ball and be very still. They also numb the area

BARBIE

________________________________

From: ksteltz77 <kmay77@...>

Sent: Friday, December 19, 2008 5:51:54 PM

Subject: Anyone's child had a spinal tap?

has anyone's child had a spinal tap? Can you tell me about it? How traumatic

was it for the

child? Do they sedate them? What do they usually use? How painful was it?

Thanks. It looks

like we're headed that direction and I wanted to know what to expect. Kim

[Guest guest]

Hi,

My son's had four lumbar punctures. He was sedated for three of them, and fully

awake for one.

It was awful, it was a life and death moment, as he had MRSA meningitis, and

became allergic to Vancomycin, he then developed s Syndrome.

It took four adults, using all of our strength to hold him down (35 lb. 5 year

old). It's amazing the strength a sick little boy has when his adrenalin is

pumping.

I would recommend sedation if possible, it's very tramatic for children to be

held down for a procedure. If you can avoid it, you should. They go through

enough as it is.

All the best and take good care,

@...: kmay77@...: Fri, 19 Dec 2008

23:51:54 +0000Subject: Anyone's child had a spinal tap?

has anyone's child had a spinal tap? Can you tell me about it? How traumatic was

it for the child? Do they sedate them? What do they usually use? How painful was

it? Thanks. It looks like we're headed that direction and I wanted to know what

to expect. Kim

[Guest guest]

Hi,

My son's had four lumbar punctures. He was sedated for three of them, and fully

awake for one.

It was awful, it was a life and death moment, as he had MRSA meningitis, and

became allergic to Vancomycin, he then developed s Syndrome.

It took four adults, using all of our strength to hold him down (35 lb. 5 year

old). It's amazing the strength a sick little boy has when his adrenalin is

pumping.

I would recommend sedation if possible, it's very tramatic for children to be

held down for a procedure. If you can avoid it, you should. They go through

enough as it is.

All the best and take good care,

@...: kmay77@...: Fri, 19 Dec 2008

23:51:54 +0000Subject: Anyone's child had a spinal tap?

has anyone's child had a spinal tap? Can you tell me about it? How traumatic was

it for the child? Do they sedate them? What do they usually use? How painful was

it? Thanks. It looks like we're headed that direction and I wanted to know what

to expect. Kim

[Guest guest]

Hi,

My son's had four lumbar punctures. He was sedated for three of them, and fully

awake for one.

It was awful, it was a life and death moment, as he had MRSA meningitis, and

became allergic to Vancomycin, he then developed s Syndrome.

It took four adults, using all of our strength to hold him down (35 lb. 5 year

old). It's amazing the strength a sick little boy has when his adrenalin is

pumping.

I would recommend sedation if possible, it's very tramatic for children to be

held down for a procedure. If you can avoid it, you should. They go through

enough as it is.

All the best and take good care,

@...: kmay77@...: Fri, 19 Dec 2008

23:51:54 +0000Subject: Anyone's child had a spinal tap?

has anyone's child had a spinal tap? Can you tell me about it? How traumatic was

it for the child? Do they sedate them? What do they usually use? How painful was

it? Thanks. It looks like we're headed that direction and I wanted to know what

to expect. Kim

[Guest guest]

My son had one done recently. He was sedated with propofol (?). It

was a really great experience. It took about 15 minutes; he kept

sleeping for another 30-45 minutes which is really good. The longer

they lay flat after the procedure the less likely they'll get a

headache. It really was a non-event and never complained of any

soreness... The biggest difference is going to a place that does

really well with kids and has a ton of experience.

>

> has anyone's child had a spinal tap? Can you tell me about it? How

traumatic was it for the

> child? Do they sedate them? What do they usually use? How painful

was it? Thanks. It looks

> like we're headed that direction and I wanted to know what to expect.

Kim

>