new to the group

[Guest guest]

> >

> > Hi. I am new to the group. My adorable almost 10 month old son

> has

> > been in the DOC band for 8 weeks now. He was diagnosed with

> moderate

> > to severe plagiocephaly at 6 months old, though we noticed a flat

> spot

> > since 2 months. The Doc band is working great and he should be

> out of

> > it in 4 to 6 weeks! He also has torticollis and we go to PT

> sessions

> > and do exercises at home, which he hates! Does anyone have

> suggestions

> > for appealing insurance on this? Our insurance only covers out

of

> > network, I am grateful they cover at all, but we still had to pay

> the

> > majority out of pocket. I have heard that alot of people have

> problems

> > with insurance covering. The diagnosing specialist did write a

> letter

> > on his behalf to send to the insurance appeals, and I am sending

a

> > letter. Any more info would be appreciated. Thanks.

> >

> >

>

[Guest guest]

> >

> > Hi. I am new to the group. My adorable almost 10 month old son

> has

> > been in the DOC band for 8 weeks now. He was diagnosed with

> moderate

> > to severe plagiocephaly at 6 months old, though we noticed a flat

> spot

> > since 2 months. The Doc band is working great and he should be

> out of

> > it in 4 to 6 weeks! He also has torticollis and we go to PT

> sessions

> > and do exercises at home, which he hates! Does anyone have

> suggestions

> > for appealing insurance on this? Our insurance only covers out

of

> > network, I am grateful they cover at all, but we still had to pay

> the

> > majority out of pocket. I have heard that alot of people have

> problems

> > with insurance covering. The diagnosing specialist did write a

> letter

> > on his behalf to send to the insurance appeals, and I am sending

a

> > letter. Any more info would be appreciated. Thanks.

> >

> >

>

[Guest guest]

> >

> > Hi. I am new to the group. My adorable almost 10 month old son

> has

> > been in the DOC band for 8 weeks now. He was diagnosed with

> moderate

> > to severe plagiocephaly at 6 months old, though we noticed a flat

> spot

> > since 2 months. The Doc band is working great and he should be

> out of

> > it in 4 to 6 weeks! He also has torticollis and we go to PT

> sessions

> > and do exercises at home, which he hates! Does anyone have

> suggestions

> > for appealing insurance on this? Our insurance only covers out

of

> > network, I am grateful they cover at all, but we still had to pay

> the

> > majority out of pocket. I have heard that alot of people have

> problems

> > with insurance covering. The diagnosing specialist did write a

> letter

> > on his behalf to send to the insurance appeals, and I am sending

a

> > letter. Any more info would be appreciated. Thanks.

> >

> >

>

[Guest guest]

> >

> > Hi. I am new to the group. My adorable almost 10 month old son

> has

> > been in the DOC band for 8 weeks now. He was diagnosed with

> moderate

> > to severe plagiocephaly at 6 months old, though we noticed a flat

> spot

> > since 2 months. The Doc band is working great and he should be

> out of

> > it in 4 to 6 weeks! He also has torticollis and we go to PT

> sessions

> > and do exercises at home, which he hates! Does anyone have

> suggestions

> > for appealing insurance on this? Our insurance only covers out

of

> > network, I am grateful they cover at all, but we still had to pay

> the

> > majority out of pocket. I have heard that alot of people have

> problems

> > with insurance covering. The diagnosing specialist did write a

> letter

> > on his behalf to send to the insurance appeals, and I am sending

a

> > letter. Any more info would be appreciated. Thanks.

> >

> >

>

[Guest guest]

Hi Mark: Welcome to the group. My son was normal developmentally, walked

at 12 months -- but hardly ever talked. I knew something was up.

I contacted Early Intervention (EI) and they come to evaluation my son and

found him to be 9-10 months behind verbally. Then they discovered some motor

skill issues. We received therapy in our home 1x per week for speech; 1 time

for o/t. It worked wonders.

Early Intervention only goes until you turn 3 then you are evaluated again

to see if you are eligible for the special ed preschool in your district.

My son had 1 year through EI and 2 years in the district preschool. He is

now five and speaks fluently. He is not always clear but he has come a long

way.

The way I found out had apraxia was that a friend whose son was

apraxic mentioned it, and I didn't believe her or didn't want to. I had never

even heard of apraxia. Then I asked 's early intervention speech

language pathologist. They are not officially allowed to diagnose but she

thought

he might have apraxia. She told me to see a neurologist, which I did and she

confirmed that he had apraxia.

It's a long road and sometimes daunting. But people on this site are so

informative I'm sure you'll find it helpful.

Patti (Mom to age 4 3/4).

[Guest guest]

Hi Barb, Good on you for researching options and opinions early. From my experience I would suggest you get at least two medical opinions on the serverity of your childs flatness. It sounds quite mild from how you've described it however you're right in thinking that you should do something now before it gets worse. The repositioning tips in the file area are great and I've found tummy time is invaluable! As the stronger their necks become the less time they spend on the back of their head. Good luck Katrina - Queensland Mum to Taj (Plagio - Tort - soon to be banded)Barbara <oreonibbles@...> wrote: Hello, My name is Barb and I'm from Minnesota. My daughter ( ) will be 6

months next Saturday (26th). Two weeks ago my daughter and I were at a music class and one of the other moms there said if I noticed 's head getting flat in the back. I said yes and that I have been positioning her different in her crib. A few days later I talk to her ped on the phone about her sleep and I brought it up. He didn't seem to concerned. Yesterday we went in to the clinic. She has a rash on her cheeks that was getting worse. We didn't see her regular ped. I asked this ped about it. She check it over and said that it really isn't bad yet. That we wouldn't have to see a specialist. It's not flat that her ears or eyes are crooked. It's flat in the middle of her head. She told me to keep her on her tummy (which she hates), use her exersaucer and bouncer, and the boppy. When she is in her boppy she either stretches and looks so uncomfortable. I have some questions. Like will this get better by keeping her on her tummy?, should I be

concerned even if the doctors aren't?, When should I get concerned? I'm glad to have found this group. Barb in Minnesota SAHM to 5/26/05 __________________________________________________

[Guest guest]

Hi Barb, Good on you for researching options and opinions early. From my experience I would suggest you get at least two medical opinions on the serverity of your childs flatness. It sounds quite mild from how you've described it however you're right in thinking that you should do something now before it gets worse. The repositioning tips in the file area are great and I've found tummy time is invaluable! As the stronger their necks become the less time they spend on the back of their head. Good luck Katrina - Queensland Mum to Taj (Plagio - Tort - soon to be banded)Barbara <oreonibbles@...> wrote: Hello, My name is Barb and I'm from Minnesota. My daughter ( ) will be 6

months next Saturday (26th). Two weeks ago my daughter and I were at a music class and one of the other moms there said if I noticed 's head getting flat in the back. I said yes and that I have been positioning her different in her crib. A few days later I talk to her ped on the phone about her sleep and I brought it up. He didn't seem to concerned. Yesterday we went in to the clinic. She has a rash on her cheeks that was getting worse. We didn't see her regular ped. I asked this ped about it. She check it over and said that it really isn't bad yet. That we wouldn't have to see a specialist. It's not flat that her ears or eyes are crooked. It's flat in the middle of her head. She told me to keep her on her tummy (which she hates), use her exersaucer and bouncer, and the boppy. When she is in her boppy she either stretches and looks so uncomfortable. I have some questions. Like will this get better by keeping her on her tummy?, should I be

concerned even if the doctors aren't?, When should I get concerned? I'm glad to have found this group. Barb in Minnesota SAHM to 5/26/05 __________________________________________________

[Guest guest]

Welcome. Where in MD are you?? I'm in Bowie...I'm assuming you are going to ndale CT? My son is also 5.5 mo old and we did the DOC band and graduated last week. He was in 6 wks. We are starting PT next week and I hope that helps b/c his Tort has been out of control this week. Good luck with your rounding...glad you found us. Amie Braxton~ DOC baby banded 10/10 Grad 10/21~ TortLynn <emerald114@...> wrote: hello everyone,My name is Lynn and my son's name is . he is 5.5 months old. We have a similar story of doctors disregarding our concerns about Nick's flat spot and his tendency to always look left. Well after a doctor change she immedately referred us to a cranial specialist and then to Cranial tech. We just had our casting last week

and are due to get our band December 7th. He has Severe Plagio and tort. The tort is gettting better now that I am stretching him everyday. His numbers for his measurments were high, into the 20-30 range. We are also trying to get control his acid reflux that they say may be associated with plagio. I am soooo angry at his previous doctor.I just see red when I think about it.Aetna HMO approved his band in 3 days!!Just wanted to introduce us and say thanks for this support group!!!!You are all a wealth of information.Lynn and NickPlagio and TortBanded 12/7/05land

Music Unlimited - Access over 1 million songs. Try it free.

Personals Single? There's someone we'd like you to meet. Lots of someones, actually. Try Personals

[Guest guest]

Welcome. Where in MD are you?? I'm in Bowie...I'm assuming you are going to ndale CT? My son is also 5.5 mo old and we did the DOC band and graduated last week. He was in 6 wks. We are starting PT next week and I hope that helps b/c his Tort has been out of control this week. Good luck with your rounding...glad you found us. Amie Braxton~ DOC baby banded 10/10 Grad 10/21~ TortLynn <emerald114@...> wrote: hello everyone,My name is Lynn and my son's name is . he is 5.5 months old. We have a similar story of doctors disregarding our concerns about Nick's flat spot and his tendency to always look left. Well after a doctor change she immedately referred us to a cranial specialist and then to Cranial tech. We just had our casting last week

and are due to get our band December 7th. He has Severe Plagio and tort. The tort is gettting better now that I am stretching him everyday. His numbers for his measurments were high, into the 20-30 range. We are also trying to get control his acid reflux that they say may be associated with plagio. I am soooo angry at his previous doctor.I just see red when I think about it.Aetna HMO approved his band in 3 days!!Just wanted to introduce us and say thanks for this support group!!!!You are all a wealth of information.Lynn and NickPlagio and TortBanded 12/7/05land

Music Unlimited - Access over 1 million songs. Try it free.

Personals Single? There's someone we'd like you to meet. Lots of someones, actually. Try Personals

[Guest guest]

I suggest you read the book " Scleroderma - The Proven Therapy That Can Save

Your Life " by Henry Scammell. It is available at www.amazon.com. Then

visit the website www.rheumatic.org and read the stories in the Medical

Histories section of people who have used the therapy covered in the book.

Most of those people have listed their email address where you can contact

them and ask questions.

The Frequently Asked Questions section on that website details the therapy.

Ethel

rheumatic New to the group

> My wife has just recently found out that she has CREST with secondary

> fibromyalgia. We were told that joining this group would be a

> positive thing and could possibly help us with any questions that we

> may have. we were wondering if anyone had seen or heard of any books

> out there to help us understand more about htis disease and how to

> cope with it. Anyone who has any information about this disease

> please help us out. We are worried and scared about her health and

> what to do about her aches and pains.

>

>

>

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

[Guest guest]

Oops! I meant to recommend both books by Henry Scammell - the other one

being " The New Arthritis Breakthrough. "

Ethel.

rheumatic New to the group

>

>

>> My wife has just recently found out that she has CREST with secondary

>> fibromyalgia. We were told that joining this group would be a

>> positive thing and could possibly help us with any questions that we

>> may have. we were wondering if anyone had seen or heard of any books

>> out there to help us understand more about htis disease and how to

>> cope with it. Anyone who has any information about this disease

>> please help us out. We are worried and scared about her health and

>> what to do about her aches and pains.

>>

>>

>>

>>

>>

>>

>> To unsubscribe, email: rheumatic-unsubscribeegroups

>>

>>

[Guest guest]

Welcome to this support group. Are you, perhaps, the husband of the lovely

woman with SD who contacted me this past weekend? If so, I am glad you made

it to the site. If not, then still welcome. As you have probably read, SD

is in the rheumatic family along with a multitude of health problems. There

is a wealth of information to read at this site and taking control of your

health is a grand first step.

If I have already spoken with you by phone, I welcome phone calls again

should you have further questions. The point where your wife is at now did

not occur over night; returning to wellness or a full life lived with disease

is a slow, slow process which requires patience and discipline on both her

part and that of yours, her partner. Diet becomes such an overwhelming problem

if the family fights the new, healthier lifestyle.

The first recommendations I gave were as Ethel suggested: purchase the

two latest of the three books written by Henry Scammell and McPhearson

Brown, M.D.. Read them like bibles as they will give both of you help and

focus. READ, READ, READ the stories and medical therapies and diets given at

this site. Understand that with the antibiotic protocol, she will need to

take a good probiotic to keep down yeast infections. What my story, which is

not updated, did not illuminate is that not only did I do and continue to do

the antibiotic protocol (AP) but I also did full series of chelations offered

me. I did any and all that I had offered me to rid my body of toxins.

I meantioned Digestinol, OMEGAs, COQ 10, a really good multiple vitamin,

pure ascorbic acid powder and some other supplements for her to begin. I

also swear by Tony Robbins green veggie powder which I drink twice daily. I

am sure there are other really good ones available at other sites or health

food stores but I began with this one as my doctor liked it and I do, too.

I take Vitamin K daily to keep from spotting which may or may not come

with the antibiotic. Should this become a problem, I would continue this

treatment as SD is a life and death fight and spotting becomes a nonissue in

this light. For hands which want to curl, take one Vitamin B6 and one

Molybedeum daily. Be patient. I am told hands are the final thing in this

fight to

turn around. My mentor's hands remained damaged to an extent; mine are

straight.

As I said - if you are of the family to whom I recently spoke - make

sure - and I am being very BLUNT here - that you take care of the constipation

problem. Drinking enough water, maintaining the diet, using the Digestinal

and the omega capsules should take care of this problem which goes with SD. My

doctor described my problem very succinctly. 1. Watch what foods you

purchase in the grocery store. If they have a shelf life, you don't. This

eliminates entire isles. If you cannot purchase organic, run a sink of water

and

soak them for a minimum of 20 minutes in apple cider vinegar. 2. Make your

you have three bowel movements per day. He said, " If you don't poop (his

words), you don't urinate properly, and then your lungs don't work properly. I

have watched and believe this to be so true.

I do hope that some other SDers will write as support to your family.

There have been numerous of us here but when lives were put on hold for such a

journey and then that life is given back, a lot leave here to go live them.

I don't blame them a bit.

Best of luck to you and yours, Fain SD l992

[Guest guest]

Donna, All your symptoms are the same as mine. I was even told by a neurologist that the only doctor I needed was a psychiatrist. I had saline implants put in 6 years ago. I just started having noticable symptoms a year ago. Like you, not a single doctor has linked my implants as the cause. I was told from the beginning that saline is safe. I became my own advocate and found a few websites from girls who are in this support group, stories all matching mine. I decided on my own to find a surgeon who believed me and would take care of me. I live in Michigan and will be taking a 6 hour car trip next week to see Dr. Lu-Feng, who will remove my implants "en-bloc". According to her website she does wonderful reconstruction surgeries after explant. I don't need one, because I didnt go that much bigger than what I am naturally. By the way, now that I have more stories like mine, my own

doctor believes me and supports my explant decision. I have only been a member here for about a month, I have found my "family". You are no longer alone, you will be encouraged and supported here. I for one am so glad you are here. star_angel_dee <DSMANDELKO@...> wrote: My name is Donna and I am so confused.I had my first surgery in 97 and have had 4 after that. I had the worst doctor for the first 2 surgeries. I trusted him. Then lost trust and went to another to get my breast a normal size. I was a DD. The 2nd doctor said I would have to have a full lift because I was so stretched out. He then told me silicone would be much better. That lasted about 6 months and I was back having saline put back in. The 5th surgery was in 2002. For the

last eight months I have been having episodes that can not be explained. I have had every test ran on my and they think I am crazy.I have the following symptoms: fatigue, cold hands and feet, numbness in my hands and arm, pain all around the implants to touch, heart palpitations, headaches, right sided pain in my rib area, dizziness, hot flush feeling that goes through my body, vomiting, low blood pressure, low pulse and so one. The doctors say I have anxiety and are treating me for that at this time. However the symptoms have not changed.Anytime I ask can this be related to my implants they ask "Are they saline?" I say yes then the answer is no way. I have ask to have a MRI next week. I do not know if that is the test to have for this type of thing but I am having it. I also want to ask if you do have them removed do they repair your natural breast in any way to make them look normal again? If anyone has any suggestions or

can help please let me know.Donna

Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars.

[Guest guest]

Hi Donna,

Welcome to our group. I'm sorry you've had to go through all of

this. I had my implants out on November 7, 2005 (after getting them

in May 2005). I've got many of the same symptoms as you, and I got

sick from them really quick, within weeks. I went downhill at a

rapid pace and am so glad that they are no longer in my body. It

seems like a similar theme is taking place - we have symptoms, but

tests show everything is normal, and the doctors think we've got

mental issues and put us on anti-depressants. We can help get you

through this, though, because we have all been there, and we believe

you!! This site is a blessing to us all, and we welcome you with

open arms.

Sis

>

> My name is Donna and I am so confused.I had my first surgery in 97

> and have had 4 after that. I had the worst doctor for the first 2

> surgeries. I trusted him. Then lost trust and went to another to

get

> my breast a normal size. I was a DD. The 2nd doctor said I would

have

> to have a full lift because I was so stretched out. He then told

me

> silicone would be much better. That lasted about 6 months and I

was

> back having saline put back in. The 5th surgery was in 2002. For

the

> last eight months I have been having episodes that can not be

> explained. I have had every test ran on my and they think I am

crazy.

> I have the following symptoms: fatigue, cold hands and feet,

numbness

> in my hands and arm, pain all around the implants to touch, heart

> palpitations, headaches, right sided pain in my rib area,

dizziness,

> hot flush feeling that goes through my body, vomiting, low blood

> pressure, low pulse and so one. The

> doctors say I have anxiety and are treating me for that at this

time.

> However the symptoms have not changed.

> Anytime I ask can this be related to my implants they ask " Are

they

> saline? " I say yes then the answer is no way. I have ask to have a

> MRI next week. I do not know if that is the test to have for this

> type of thing but I am having it. I also want to ask if you do

have

> them removed do they repair your natural breast in any way to make

> them look normal again? If anyone has any suggestions or can help

> please let me know.

> Donna

>

[Guest guest]

-

Hi Donna

I am so glad that you found our group. Your symptoms are extremely

similar to most of the people here. Saline implants definitely can

cause autoimmune illness. First they have a solid silicone shell.

And our bodies can react to the silicone. The shell can degrade and

bits of it can shed into the capsules and the body. The valve can

be defective allowing organisms to be able to travel in and out of

the implant. We have had several women whose saline implants were

contaminated with mold, fungi, and other organisms. The shell

itself has toxic chemicals used in its production. We have listed

ingredients in shells before and they can contain platinum, toulene,

benzene and other very toxic materials.

I would say that you definitely need to get your implants out. The

symptoms will only continue to escalate if they are left in. It is

important to find a ps that you trust that will take them out

properly. It is very important to remove all or almost all of the

capsule your body forms around the implant as well the implant. It

is important for the ps to use drains as that helps recovery and

helps prevent complications. It is really important to find someone

you trust to actually do what he says he will do. We have had a few

women

tell us that the surgeon told them he would take out the capsules

and after the surgery tell them he didn't take them out. Most women

are pretty happy with the

cosmetic outcome. If you are stretched, they can do a lift at the

same time. Most women find they look pretty much the same as they

did before they got implants. This group is a great group of women

and we are here to help support you and answer any questions that

you might have. The majority of women who get explanted will recover

a significant degree of health. The time in recovering health is

variable--some seeing immediate improvement and others seeing slower

improvement. Most of us also have helped our recovery by

detoxifying our bodies in a variety of ways. There is alot of good

info on this site on how to make diet changes, how to support your

immune system and how to detoxify your body and allow it to return

to a natural state of health. When I found this site four years

ago, I actually felt I was dying. I had twenty or more symptoms and

I just kept getting worse. Like you, they suggested it was stress

and anxiety. What baloney!! Then God led me to this site and I

knew I had to have them out! Immediately this drunkenlike dizziness

that I lived with constantly disappeared and I was able to actually

go out and stand up for hours. My heart rate dropped to normal over

a period of months and the palpatations stopped. Other symptoms

have taken longer to work on, but I also had fibromyalgia even

before I got implants. Now even my fibromyalgia symptoms are

disappearing! Be encouraged--you can get better!!

Hugs, Kathy

-- In , " star_angel_dee "

<DSMANDELKO@a...> wrote:

>

> My name is Donna and I am so confused.I had my first surgery in 97

> and have had 4 after that. I had the worst doctor for the first 2

> surgeries. I trusted him. Then lost trust and went to another to

get

> my breast a normal size. I was a DD. The 2nd doctor said I would

have

> to have a full lift because I was so stretched out. He then told

me

> silicone would be much better. That lasted about 6 months and I

was

> back having saline put back in. The 5th surgery was in 2002. For

the

> last eight months I have been having episodes that can not be

> explained. I have had every test ran on my and they think I am

crazy.

> I have the following symptoms: fatigue, cold hands and feet,

numbness

> in my hands and arm, pain all around the implants to touch, heart

> palpitations, headaches, right sided pain in my rib area,

dizziness,

> hot flush feeling that goes through my body, vomiting, low blood

> pressure, low pulse and so one. The

> doctors say I have anxiety and are treating me for that at this

time.

> However the symptoms have not changed.

> Anytime I ask can this be related to my implants they ask " Are

they

> saline? " I say yes then the answer is no way. I have ask to have a

> MRI next week. I do not know if that is the test to have for this

> type of thing but I am having it. I also want to ask if you do

have

> them removed do they repair your natural breast in any way to make

> them look normal again? If anyone has any suggestions or can help

> please let me know.

> Donna

>

[Guest guest]

Welcome to Saline Support Donna,

You're in the right place . . . You're not crazy,

you're sick and you have every reason to be depressed!

The good news is that, if you're like most the women

who come here, life is going to be good again!

We have some wonderful ladies who can help you find a

doctor, understand the surgery necessary and give you

ideas for detoxing so you can put this all behind you!

God Bless,

Rogene

[Guest guest]

Hi Donna: I'm so sorry about what you've been through with all the surgeries and now illness. You've come to the right place to get help--the ladies here are very helpful and supportive. There's lots of good links on the web site about diet, detoxing, and finding a good surgeon who will remove implants and capsules "enbloc" (together so the contents don't spill out). Most of us who were sick from implants had numerous tests that were negative and had doctors tell us it wasn't our implants. Our experiences have really disillusioned us about doctors. I've come to believe that most plastic surgeons just don't want to know and only read the literature that gets sent to them from the implant manufacturers. Their defense is "but the studies say..." (very flawed studies). I don't know how they can sleep at night. Other doctors are either ignorant on the subject or just stick

together. As you're probabaly aware, saline implants can breed organisms (specifically mold and fungus). They have faulty valves that pump out contaminated fluids and suck in body fluids. They're not as harmless as doctors will have us believe. I know it's got to be hard to be thinking about another surgery. Like you, I had silicone implants before having saline and had many surgeries. In the end I realized that getting them out was the only chance I had of getting better. My implants were removed a year ago and I'm about 90 percent better. Katetar_angel_dee <StarAngel1212D@...> wrote: I think I posted my info on the messages instead of the post. My name is Donna and at this time I have Saline Implants. My first surgery was

in 1997. After the first surgery my impants would slide under me arms. The Doc them says we need to go bigger by the time I was done I was a DD. I hated them so I continued my journey to have them fixed. The 2nd Doc said I would go smaller and that I needed silicone and a lift because I was so stretched out. So I did it. That last 6 months before i was back getting them removed and saline back in. A few years later I was under the knife again going smaller and to try to fix the scars. My journey ended in 2002. I still have them and for the last 8 months I have been sick. I have gone to MAyo and had every test ran on me for every kind of illness. They are all negative. My symptoms are as follows: headache, numbness in fingers and arm, cold hands and feet, low pulse (38-58) low blood pressure 80/60, vomiting, pain in my right side, all around my scaring and on the sides of my breast are tender to touch, stiff in the mornings,

palpitations, chest pains and so on. Everytime I ask a doctor could it be my implants they ask "Are they saline?" I say yes and their respone is no. I am having a MRI on Feb. 1st I do not know much about testing for implants but I am having it. If anyone can give my advice I would be very thankful.Donna

Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars.

[Guest guest]

Donna,

Welcome to ! . . . You've found the place

to get answers to your questions . . .

Something you should know is that Mayo was paid by DOW

to do studies " proving " implants are safe.

Apparently most doctors think Saline implants are safe

because the FDA approved them. .. IMHO, the FDA

approved them because it put money in someone's pocket

.. . . not because they were in any way concerned about

the welfare of women and their unborn children.

Your next step is to find a doctor who will remove

your implants properly (en bloc) .. . You may need to

do some detoxing . . . you can get a head start now,

but you won't see major results until your implants

are out.

We have a wonderful group of women here who want to

help others get through this experience as they were

helped. . . If you have any questions, ask away!

You've got your whole life to look forward to LIVING!

Hugs and prayers,

Rogene

[Guest guest]

Hi Donna,

I am really sorry to hear about everything you are going thru. I am

hoping I can offer you some support. First of all let me tell you

that I DR at Mayo. I went to the DR's at Mayo with my findings. I

will tell you that I was told that they keep have reoccurring cases

of woman coming to get implants out. My family DR told me that

every night he goes home and reads journal's (family medicine) and

that there is nothing in them about implants. He has no other

patients like me or that has presented with the signs and symptoms I

am showing. I have been thru several of the clinics at Mayo (all in

the last few months) to be told that I have chronic fatigue,

fibromyelgia, Reynolds, etc. But the specialists I saw couldn't

tell me why I have a skin rash/inflamation on my joints, can't

explain my arthritis, nor my MRI and the inflamation, and the list

goes on. I asked about the possiblity that my implants were making

me sick -- I was told about all the studies that have been done. I

had a hard time accepting that my implants were making me sick and

the Mayo DR's didn't help. Having a husband that works in surgery

and knows a lot of the DR's doesn't help either. But I have

researched everything including the studies at Mayo. I have talked

to people that do research for Mayo -- my conclusion my implants are

making me sick. My advice is listen to yourself and your body, read

all the information available regarding implants, and you decide.

You find a DR you trust and that will listen to you. You have to be

your own advocate for your health. Had I not been an advocate for

myself, I would have never found the information about implants.

This group has been a blessing and real strength for me as I go thru

this journey.

Hugs, MK

>

> I think I posted my info on the messages instead of the post. My

name

> is Donna and at this time I have Saline Implants. My first surgery

> was in 1997. After the first surgery my impants would slide under

me

> arms. The Doc them says we need to go bigger by the time I was

done I

> was a DD. I hated them so I continued my journey to have them

fixed.

> The 2nd Doc said I would go smaller and that I needed silicone and

a

> lift because I was so stretched out. So I did it. That last 6

months

> before i was back getting them removed and saline back in. A few

> years later I was under the knife again going smaller and to try

to

> fix the scars. My journey ended in 2002. I still have them and for

> the last 8 months I have been sick. I have gone to MAyo and had

every

> test ran on me for every kind of illness. They are all negative.

My

> symptoms are as follows: headache, numbness in fingers and arm,

cold

> hands and feet, low pulse (38-58) low blood pressure 80/60,

vomiting,

> pain in my right side, all around my scaring and on the sides of

my

> breast are tender to touch, stiff in the mornings, palpitations,

> chest pains and so on. Everytime I ask a doctor could it be my

> implants they ask " Are they saline? " I say yes and their respone

is

> no. I am having a MRI on Feb. 1st I do not know much about testing

> for implants but I am having it. If anyone can give my advice I

would

> be very thankful.

>

> Donna

>

[Guest guest]

It is so odd to me that medical doctors keep telling patients that nothing

is coming through in medical journals and the patient is the only one they

have heard of with strange symptoms while my ND has several implanted

related patients and does have journals with information about implanted

related disease. Something doesn't add up.

Kenda

> Hi Donna,

> I am really sorry to hear about everything you are going thru. I am

> hoping I can offer you some support. First of all let me tell you

> that I DR at Mayo. I went to the DR's at Mayo with my findings. I

> will tell you that I was told that they keep have reoccurring cases

> of woman coming to get implants out. My family DR told me that

> every night he goes home and reads journal's (family medicine) and

> that there is nothing in them about implants. He has no other

> patients like me or that has presented with the signs and symptoms I

> am showing. I have been thru several of the clinics at Mayo (all in

> the last few months) to be told that I have chronic fatigue,

> fibromyelgia, Reynolds, etc. But the specialists I saw couldn't

> tell me why I have a skin rash/inflamation on my joints, can't

> explain my arthritis, nor my MRI and the inflamation, and the list

> goes on. I asked about the possiblity that my implants were making

> me sick -- I was told about all the studies that have been done. I

> had a hard time accepting that my implants were making me sick and

> the Mayo DR's didn't help. Having a husband that works in surgery

> and knows a lot of the DR's doesn't help either. But I have

> researched everything including the studies at Mayo. I have talked

> to people that do research for Mayo -- my conclusion my implants are

> making me sick. My advice is listen to yourself and your body, read

> all the information available regarding implants, and you decide.

> You find a DR you trust and that will listen to you. You have to be

> your own advocate for your health. Had I not been an advocate for

> myself, I would have never found the information about implants.

> This group has been a blessing and real strength for me as I go thru

> this journey.

> Hugs, MK

>

>

>>

>> I think I posted my info on the messages instead of the post. My

> name

>> is Donna and at this time I have Saline Implants. My first surgery

>> was in 1997. After the first surgery my impants would slide under

> me

>> arms. The Doc them says we need to go bigger by the time I was

> done I

>> was a DD. I hated them so I continued my journey to have them

> fixed.

>> The 2nd Doc said I would go smaller and that I needed silicone and

> a

>> lift because I was so stretched out. So I did it. That last 6

> months

>> before i was back getting them removed and saline back in. A few

>> years later I was under the knife again going smaller and to try

> to

>> fix the scars. My journey ended in 2002. I still have them and for

>> the last 8 months I have been sick. I have gone to MAyo and had

> every

>> test ran on me for every kind of illness. They are all negative.

> My

>> symptoms are as follows: headache, numbness in fingers and arm,

> cold

>> hands and feet, low pulse (38-58) low blood pressure 80/60,

> vomiting,

>> pain in my right side, all around my scaring and on the sides of

> my

>> breast are tender to touch, stiff in the mornings, palpitations,

>> chest pains and so on. Everytime I ask a doctor could it be my

>> implants they ask " Are they saline? " I say yes and their respone

> is

>> no. I am having a MRI on Feb. 1st I do not know much about testing

>> for implants but I am having it. If anyone can give my advice I

> would

>> be very thankful.

>>

>> Donna

>>

>

>

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given by licensed

> health care professionals. Consult your physician or licensed health care

> professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

> Find out what the facts are, and make your own decisions about how to live a

> happy life and how to work for a better world. " - Linus ing, two-time

> Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

> See our photos website! Enter " implants " for access at this link:

> http://.shutterfly.com/action/

>

>

[Guest guest]

There are a number of journal articles that do discuss

implant related problems! . . . Maybe not in family

medicine journals, but in rheumotology, plastic

surgery, etc. . . These are seldom studies (because

the refuse to study sick women and children), but

observations.

Rogene

--- Kenda Skaggs <skaggs@...> wrote:

> It is so odd to me that medical doctors keep telling

> patients that nothing

> is coming through in medical journals and the

> patient is the only one they

> have heard of with strange symptoms while my ND has

> several implanted

> related patients and does have journals with

> information about implanted

> related disease. Something doesn't add up.

>

> Kenda

>

>

> > Hi Donna,

> > I am really sorry to hear about everything you are

> going thru. I am

> > hoping I can offer you some support. First of all

> let me tell you

> > that I DR at Mayo. I went to the DR's at Mayo

> with my findings. I

> > will tell you that I was told that they keep have

> reoccurring cases

> > of woman coming to get implants out. My family DR

> told me that

> > every night he goes home and reads journal's

> (family medicine) and

> > that there is nothing in them about implants. He

> has no other

> > patients like me or that has presented with the

> signs and symptoms I

> > am showing. I have been thru several of the

> clinics at Mayo (all in

> > the last few months) to be told that I have

> chronic fatigue,

> > fibromyelgia, Reynolds, etc. But the specialists

> I saw couldn't

> > tell me why I have a skin rash/inflamation on my

> joints, can't

> > explain my arthritis, nor my MRI and the

> inflamation, and the list

> > goes on. I asked about the possiblity that my

> implants were making

> > me sick -- I was told about all the studies that

> have been done. I

> > had a hard time accepting that my implants were

> making me sick and

> > the Mayo DR's didn't help. Having a husband that

> works in surgery

> > and knows a lot of the DR's doesn't help either.

> But I have

> > researched everything including the studies at

> Mayo. I have talked

> > to people that do research for Mayo -- my

> conclusion my implants are

> > making me sick. My advice is listen to yourself

> and your body, read

> > all the information available regarding implants,

> and you decide.

> > You find a DR you trust and that will listen to

> you. You have to be

> > your own advocate for your health. Had I not been

> an advocate for

> > myself, I would have never found the information

> about implants.

> > This group has been a blessing and real strength

> for me as I go thru

> > this journey.

> > Hugs, MK

> >

> >

> >>

> >> I think I posted my info on the messages instead

> of the post. My

> > name

> >> is Donna and at this time I have Saline Implants.

> My first surgery

> >> was in 1997. After the first surgery my impants

> would slide under

> > me

> >> arms. The Doc them says we need to go bigger by

> the time I was

> > done I

> >> was a DD. I hated them so I continued my journey

> to have them

> > fixed.

> >> The 2nd Doc said I would go smaller and that I

> needed silicone and

> > a

> >> lift because I was so stretched out. So I did it.

> That last 6

> > months

> >> before i was back getting them removed and saline

> back in. A few

> >> years later I was under the knife again going

> smaller and to try

> > to

> >> fix the scars. My journey ended in 2002. I still

> have them and for

> >> the last 8 months I have been sick. I have gone

> to MAyo and had

> > every

> >> test ran on me for every kind of illness. They

> are all negative.

> > My

> >> symptoms are as follows: headache, numbness in

> fingers and arm,

> > cold

> >> hands and feet, low pulse (38-58) low blood

> pressure 80/60,

> > vomiting,

> >> pain in my right side, all around my scaring and

> on the sides of

> > my

> >> breast are tender to touch, stiff in the

> mornings, palpitations,

> >> chest pains and so on. Everytime I ask a doctor

> could it be my

> >> implants they ask " Are they saline? " I say yes

> and their respone

> > is

> >> no. I am having a MRI on Feb. 1st I do not know

> much about testing

> >> for implants but I am having it. If anyone can

> give my advice I

> > would

> >> be very thankful.

> >>

> >> Donna

> >>

> >

> >

> >

> >

> >

> >

> > Opinions expressed are NOT meant to take the place

> of advice given by licensed

> > health care professionals. Consult your physician

> or licensed health care

> > professional before commencing any medical

> treatment.

> >

> > " Do not let either the medical authorities or the

> politicians mislead you.

> > Find out what the facts are, and make your own

> decisions about how to live a

> > happy life and how to work for a better world. " -

> Linus ing, two-time

> > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >

> > See our photos website! Enter " implants " for

> access at this link:

> > http://.shutterfly.com/action/

> >

> >

[Guest guest]

I think what adds up is the profit the plastic surgeons and

manufacturers are making - it certainly doesn't add up from a common

sense perspective. The longer I'm a participant of this site, the

more women I see complaining of the same problems, and it's as plain

as the nose on my face that the implants are making us sick.

Sis

> >>

> >> I think I posted my info on the messages instead of the post. My

> > name

> >> is Donna and at this time I have Saline Implants. My first

surgery

> >> was in 1997. After the first surgery my impants would slide

under

> > me

> >> arms. The Doc them says we need to go bigger by the time I was

> > done I

> >> was a DD. I hated them so I continued my journey to have them

> > fixed.

> >> The 2nd Doc said I would go smaller and that I needed silicone

and

> > a

> >> lift because I was so stretched out. So I did it. That last 6

> > months

> >> before i was back getting them removed and saline back in. A few

> >> years later I was under the knife again going smaller and to try

> > to

> >> fix the scars. My journey ended in 2002. I still have them and

for

> >> the last 8 months I have been sick. I have gone to MAyo and had

> > every

> >> test ran on me for every kind of illness. They are all negative.

> > My

> >> symptoms are as follows: headache, numbness in fingers and arm,

> > cold

> >> hands and feet, low pulse (38-58) low blood pressure 80/60,

> > vomiting,

> >> pain in my right side, all around my scaring and on the sides of

> > my

> >> breast are tender to touch, stiff in the mornings, palpitations,

> >> chest pains and so on. Everytime I ask a doctor could it be my

> >> implants they ask " Are they saline? " I say yes and their respone

> > is

> >> no. I am having a MRI on Feb. 1st I do not know much about

testing

> >> for implants but I am having it. If anyone can give my advice I

> > would

> >> be very thankful.

> >>

> >> Donna

> >>

> >

> >

> >

> >

> >

> >

> > Opinions expressed are NOT meant to take the place of advice

given by licensed

> > health care professionals. Consult your physician or licensed

health care

> > professional before commencing any medical treatment.

> >

> > " Do not let either the medical authorities or the politicians

mislead you.

> > Find out what the facts are, and make your own decisions about

how to live a

> > happy life and how to work for a better world. " - Linus ing,

two-time

> > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >

> > See our photos website! Enter " implants " for access at this link:

> > http://.shutterfly.com/action/

> >

> >

[Guest guest]

You are right Sis...it's all about the money. They can continue to go home to their families at the end of the day because there are no studies to prove them wrong. They can continue to practice what is making us sick, because we don't have scientific proof. As long as no studies are done, they will never have the proof. This morning, I saw on the Today Show a segment stating that plastic surgery (including breast augmentation) enhances your sex life. They play on our poor body images, now they are trying to get to our husbands. They wont stop until people start to die in large quantities. Look how long it took for celebrex and vioxx.auntsisnj <auntsisnj@...> wrote: I think what adds up is the profit the plastic surgeons and manufacturers are making - it certainly doesn't add up from a

common sense perspective. The longer I'm a participant of this site, the more women I see complaining of the same problems, and it's as plain as the nose on my face that the implants are making us sick. Sis> >> > >> I think I posted my info on the messages instead of the post. My> > name > >> is Donna and at this time I have Saline Implants. My first surgery> >> was in 1997. After the first surgery my impants would slide under> > me > >> arms. The Doc them says we need to go bigger by the time I was> > done I > >> was a DD. I hated them so I continued my journey to have them> > fixed. > >> The 2nd Doc said I would go smaller and that I needed silicone and> > a > >> lift because I was so stretched out. So I did it. That last 6> > months > >> before i was back getting

them removed and saline back in. A few> >> years later I was under the knife again going smaller and to try> > to > >> fix the scars. My journey ended in 2002. I still have them and for> >> the last 8 months I have been sick. I have gone to MAyo and had> > every > >> test ran on me for every kind of illness. They are all negative.> > My > >> symptoms are as follows: headache, numbness in fingers and arm,> > cold > >> hands and feet, low pulse (38-58) low blood pressure 80/60,> > vomiting, > >> pain in my right side, all around my scaring and on the sides of> > my > >> breast are tender to touch, stiff in the mornings, palpitations,> >> chest pains and so on. Everytime I ask a doctor could it be my> >> implants they ask "Are they saline?" I say yes and their respone> > is >

>> no. I am having a MRI on Feb. 1st I do not know much about testing> >> for implants but I am having it. If anyone can give my advice I> > would > >> be very thankful.> >> > >> Donna> >> > > > > > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed> > health care professionals. Consult your physician or licensed health care> > professional before commencing any medical treatment.> > > > "Do not let either the medical authorities or the politicians mislead you.> > Find out what the facts are, and make your own decisions about how to live a> > happy life and how to work for a better world." - Linus ing, two-time> > Nobel Prize Winner (1954, Chemistry; 1963, Peace)> > > > See

our photos website! Enter "implants" for access at this link:> > http://.shutterfly.com/action/> > > >

[Guest guest]

Just think of the tens of thousands of women who aren't on this site and

have problems and have complained to doctors. How can any doctor claim he

hasn't heard of implant-related illness!

Kenda

> I think what adds up is the profit the plastic surgeons and

> manufacturers are making - it certainly doesn't add up from a common

> sense perspective. The longer I'm a participant of this site, the

> more women I see complaining of the same problems, and it's as plain

> as the nose on my face that the implants are making us sick.

>

> Sis

>

>

>>>>

>>>> I think I posted my info on the messages instead of the post. My

>>> name

>>>> is Donna and at this time I have Saline Implants. My first

> surgery

>>>> was in 1997. After the first surgery my impants would slide

> under

>>> me

>>>> arms. The Doc them says we need to go bigger by the time I was

>>> done I

>>>> was a DD. I hated them so I continued my journey to have them

>>> fixed.

>>>> The 2nd Doc said I would go smaller and that I needed silicone

> and

>>> a

>>>> lift because I was so stretched out. So I did it. That last 6

>>> months

>>>> before i was back getting them removed and saline back in. A few

>>>> years later I was under the knife again going smaller and to try

>>> to

>>>> fix the scars. My journey ended in 2002. I still have them and

> for

>>>> the last 8 months I have been sick. I have gone to MAyo and had

>>> every

>>>> test ran on me for every kind of illness. They are all negative.

>>> My

>>>> symptoms are as follows: headache, numbness in fingers and arm,

>>> cold

>>>> hands and feet, low pulse (38-58) low blood pressure 80/60,

>>> vomiting,

>>>> pain in my right side, all around my scaring and on the sides of

>>> my

>>>> breast are tender to touch, stiff in the mornings, palpitations,

>>>> chest pains and so on. Everytime I ask a doctor could it be my

>>>> implants they ask " Are they saline? " I say yes and their respone

>>> is

>>>> no. I am having a MRI on Feb. 1st I do not know much about

> testing

>>>> for implants but I am having it. If anyone can give my advice I

>>> would

>>>> be very thankful.

>>>>

>>>> Donna

>>>>

>>>

>>>

>>>

>>>

>>>

>>>

>>> Opinions expressed are NOT meant to take the place of advice

> given by licensed

>>> health care professionals. Consult your physician or licensed

> health care

>>> professional before commencing any medical treatment.

>>>

>>> " Do not let either the medical authorities or the politicians

> mislead you.

>>> Find out what the facts are, and make your own decisions about

> how to live a

>>> happy life and how to work for a better world. " - Linus ing,

> two-time

>>> Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>>>

>>> See our photos website! Enter " implants " for access at this link:

>>> http://.shutterfly.com/action/

>>>

>>>

[Guest guest]

I have been wondering the same thing. I hope she is ok.

Kenda

> Honey, where is Molly? I have missed her....love you...Lea

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```

> Re: Re: New to the group

>

>

>> There are a number of journal articles that do discuss

>> implant related problems! . . . Maybe not in family

>> medicine journals, but in rheumotology, plastic

>> surgery, etc. . . These are seldom studies (because

>> the refuse to study sick women and children), but

>> observations.

>>

>> Rogene

>>

>>

>>

>> --- Kenda Skaggs <skaggs@...> wrote:

>>

>>> It is so odd to me that medical doctors keep telling

>>> patients that nothing

>>> is coming through in medical journals and the

>>> patient is the only one they

>>> have heard of with strange symptoms while my ND has

>>> several implanted

>>> related patients and does have journals with

>>> information about implanted

>>> related disease. Something doesn't add up.

>>>

>>> Kenda

>>>

>>>

>>>> Hi Donna,

>>>> I am really sorry to hear about everything you are

>>> going thru. I am

>>>> hoping I can offer you some support. First of all

>>> let me tell you

>>>> that I DR at Mayo. I went to the DR's at Mayo

>>> with my findings. I

>>>> will tell you that I was told that they keep have

>>> reoccurring cases

>>>> of woman coming to get implants out. My family DR

>>> told me that

>>>> every night he goes home and reads journal's

>>> (family medicine) and

>>>> that there is nothing in them about implants. He

>>> has no other

>>>> patients like me or that has presented with the

>>> signs and symptoms I

>>>> am showing. I have been thru several of the

>>> clinics at Mayo (all in

>>>> the last few months) to be told that I have

>>> chronic fatigue,

>>>> fibromyelgia, Reynolds, etc. But the specialists

>>> I saw couldn't

>>>> tell me why I have a skin rash/inflamation on my

>>> joints, can't

>>>> explain my arthritis, nor my MRI and the

>>> inflamation, and the list

>>>> goes on. I asked about the possiblity that my

>>> implants were making

>>>> me sick -- I was told about all the studies that

>>> have been done. I

>>>> had a hard time accepting that my implants were

>>> making me sick and

>>>> the Mayo DR's didn't help. Having a husband that

>>> works in surgery

>>>> and knows a lot of the DR's doesn't help either.

>>> But I have

>>>> researched everything including the studies at

>>> Mayo. I have talked

>>>> to people that do research for Mayo -- my

>>> conclusion my implants are

>>>> making me sick. My advice is listen to yourself

>>> and your body, read

>>>> all the information available regarding implants,

>>> and you decide.

>>>> You find a DR you trust and that will listen to

>>> you. You have to be

>>>> your own advocate for your health. Had I not been

>>> an advocate for

>>>> myself, I would have never found the information

>>> about implants.

>>>> This group has been a blessing and real strength

>>> for me as I go thru

>>>> this journey.

>>>> Hugs, MK

>>>>

>>>>

>>>>>

>>>>> I think I posted my info on the messages instead

>>> of the post. My

>>>> name

>>>>> is Donna and at this time I have Saline Implants.

>>> My first surgery

>>>>> was in 1997. After the first surgery my impants

>>> would slide under

>>>> me

>>>>> arms. The Doc them says we need to go bigger by

>>> the time I was

>>>> done I

>>>>> was a DD. I hated them so I continued my journey

>>> to have them

>>>> fixed.

>>>>> The 2nd Doc said I would go smaller and that I

>>> needed silicone and

>>>> a

>>>>> lift because I was so stretched out. So I did it.

>>> That last 6

>>>> months

>>>>> before i was back getting them removed and saline

>>> back in. A few

>>>>> years later I was under the knife again going

>>> smaller and to try

>>>> to

>>>>> fix the scars. My journey ended in 2002. I still

>>> have them and for

>>>>> the last 8 months I have been sick. I have gone

>>> to MAyo and had

>>>> every

>>>>> test ran on me for every kind of illness. They

>>> are all negative.

>>>> My

>>>>> symptoms are as follows: headache, numbness in

>>> fingers and arm,

>>>> cold

>>>>> hands and feet, low pulse (38-58) low blood

>>> pressure 80/60,

>>>> vomiting,

>>>>> pain in my right side, all around my scaring and

>>> on the sides of

>>>> my

>>>>> breast are tender to touch, stiff in the

>>> mornings, palpitations,

>>>>> chest pains and so on. Everytime I ask a doctor

>>> could it be my

>>>>> implants they ask " Are they saline? " I say yes

>>> and their respone

>>>> is

>>>>> no. I am having a MRI on Feb. 1st I do not know

>>> much about testing

>>>>> for implants but I am having it. If anyone can

>>> give my advice I

>>>> would

>>>>> be very thankful.

>>>>>

>>>>> Donna

>>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>> Opinions expressed are NOT meant to take the place

>>> of advice given by licensed

>>>> health care professionals. Consult your physician

>>> or licensed health care

>>>> professional before commencing any medical

>>> treatment.

>>>>

>>>> " Do not let either the medical authorities or the

>>> politicians mislead you.

>>>> Find out what the facts are, and make your own

>>> decisions about how to live a

>>>> happy life and how to work for a better world. " -

>>> Linus ing, two-time

>>>> Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>>>>

>>>> See our photos website! Enter " implants " for

>>> access at this link:

>>>> http://.shutterfly.com/action/

>>>>

>>>>