Re: Digest Number 241

[Guest guest]

Hi , From my limited experience gum chewing is good exercise! It can

help align the bite and works the muscles around the mouth. We have started

doing a little gum chewing with our speech/language pathologist. Feel free

to e-mail her with any questions, her name is Lori Overland and her e-mail

address is oromotorlo@...

love debbi and Logan 5 1/2, Eli (DS) and Milo 3 1/2

[Guest guest]

Good luck to Nick and , I'm thinking about you and your families, hoping

for hospital stays that end soon so you can get back to the business of

playing!

Love and prayers from debbi and Logan 5 1/2, Eli (DS) and Milo 3 1/2

[Guest guest]

Hi Everyone,

Ruth, I know what you mean about being told .....CMT doesn't relate to

tremors,etc

I have been told not just by different Doctors but physical therapists

as well that some of my symptoms do not relate to the CMT......well

guess what? After joining this list and CMT Int. and reading and doing

my own research....I can teach them a thing or two. This is where I

feel the need to put their " MONEY " where their " MOUTH " is. Just a

little opinion there!!

CSCluv**

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

[Guest guest]

How wonderful that your district even offers an ABA classroom! Where are

you located, and how many/what ages will this classroom be serving? I have

much experience within the ABA school-setting, as I was the Behavior Analyst

for a small school for children with Autism and related disabilities. Our

classroom served 14 children, ages 4 through 13, and was based on applied

behavioral analytic principles. It was very challenging to work in this

setting, but extremely rewarding. What's nice, is that typically in such

classrooms, you have a 1:1 student to teacher ratio for individualized

intensive training, yet there are still many opportunities throughout the

day for these same children to participate and benefit from small group

instruction, either on a 1:1 or 2:1 student to teacher ratio. Each child of

course will have his or her own curriculum according to needs across all

educational domains. I highly recommend this setting, and hope that more

districts will move towards this treatment approach. Last question, what

type of training does the classroom teacher have, and who will be the

behavior analyst serving the programming needs? Make sure that it is an

individual with sufficient training to run such a program! Do you know what

assessment tools the classroom will utilize to determine individual goals?

GOOD LUCK, if it is done correctly by individuals with proper background and

training,it should be an invaluable and rewarding experience!

Debi Rausch-

[ ] Digest Number 241

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[Guest guest]

Dear Ruth,

Stonehouse is in Gloucestershire. I don't know that I would call what I am

doing research - it's a pilot study, supported by the PCG, looking at a

comprehensive and multi agency health needs assessment and then appraising

the community health service provision - where are the gaps? how should

these be filled and by which agency? what are we doing that's a waste of

time? etc etc. However, the project has not yet got off the ground because

we are waiting to hear if the PCG is prepared to fund bank cover for me to

lead this work (!) so at the moment I'm plugging the gaps left by

inadequate social service provision, to quote a recent Senate member,

reading, asking lots of questions and visiting HVs who are doing similar

things.

Digest Number 241

[Guest guest]

Dear Gill Newell,

Many thanks for the information and good luck with what sounds a mammoth task.

Regards

Ruth Grant

Gill Newell wrote:

> Dear Ruth,

>

> Stonehouse is in Gloucestershire. I don't know that I would call what I am

> doing research - it's a pilot study, supported by the PCG, looking at a

> comprehensive and multi agency health needs assessment and then appraising

> the community health service provision - where are the gaps? how should

> these be filled and by which agency? what are we doing that's a waste of

> time? etc etc. However, the project has not yet got off the ground because

> we are waiting to hear if the PCG is prepared to fund bank cover for me to

> lead this work (!) so at the moment I'm plugging the gaps left by

> inadequate social service provision, to quote a recent Senate member,

> reading, asking lots of questions and visiting HVs who are doing similar

> things.

> Digest Number 241

>

>

[Guest guest]

>Have you tried the No-Phenol enzymes for salicylate foods? I have

>been trying them out. Can't say that I have seen a difference yet but

>have been a chicken to try a higher salicylate food. I want to get

>somewhat controlled before I try them. Feingold didn't work for me

>either.

>Warm Regards,

I haven't heard of No-Phenol enzymes - could you give me more details? On

another list people are extolling the virtues of vitamin A supplements in

the form of codliver oil for asthma... has anyone had success with this?

I'm taking omega3 fish oil capsules at the moment, but a month without

medication late last year proved that I really need those drugs or I can't

breathe at all. And that's with desensitisation (taking aspirin daily).

It's been over nine months since the last op and six since desense and I'm

not sure the aspirin is doing much at all, but at least the polyps haven't

grown since the desense. They grew rapidly after the op and I needed

prednisolone to shrink 'em back.

all the best,

Beverley

http://members.ozemail.com.au/~beverleypaine

Homeschool Australia & FAQ

Unschool~Kidz!

Children's Author

Bungala Ridge Permaculture Gardens & FAQ

**Submissions for the Autumn Issue of UNSCHOOL~KIDZ now open**

- contributions from homeschooling and unschooling children required

Send a stamped self addressed envelope for

HOMESCHOOL TODAY!

information on beginning homeschooling:

B Paine, PO Box 371 Yankalilla SA 5203

" War never decides who is right, only who is left. "

[Guest guest]

Beverley,

No-Phenol enzymes were made for those with autism by Dr. Devine

Houston. These children do not process phenols (salicylates are a

class of phenols) just as we don't. When taking these enzymes, these

people are able to ingest foods that have phenols. I felt like there

might be a possibility that these enzymes would help to detoxify

salicylates, so I thought I would give them a try since Samter's

patients do not detoxify salicylates properly. Figured they wouldn't

hurt since they don't have salicylates. Here is the Dr. Houston's

website and where you can find out information about the No-Phenol:

http://216.114.78.114/webcenter/sites/hni/

There are a lot of articles on the No-Phenol but the best place to

read about No-Phenol is at the following list. You use to be able to

access the public files without joining but lately I haven't been

able to. There is a whole string on the enzymes but you may have to

join to read about them:

/

Some scientists say that No_Phenol is dangerous but I read the

information and figured that aspirin and prednisone are more toxic

than these enzymes but that is just my opinion.

I have heard that fish oils help with the inflammation process and

with asthma. They work in that they help to produce the anti-

inflammatory eicosanoids/prostaglandins in our bodies. From what I

have read, some get really good results with them and others don't. I

have taken them off and on over the years. I took them for about a 6

month period about 5 years ago and I do think that I did better but I

was following the Zone proportions for eating and taking fish oils or

eating fish is part of the program. I do believe that I was doing

better but I don't think just taking them is a cure all. At least it

wasn't for me. Couldn't hurt unless you are allergic to fish.

--- In samters , Beverley Paine <beverleypaine@o...>

> I haven't heard of No-Phenol enzymes - could you give me more

details? On

> another list people are extolling the virtues of vitamin A

supplements in

> the form of codliver oil for asthma... has anyone had success with

this?

> I'm taking omega3 fish oil capsules at the moment, but a month

without

> medication late last year proved that I really need those drugs or

I can't

> breathe at all. And that's with desensitisation (taking aspirin

daily).

> It's been over nine months since the last op and six since desense

and I'm

> not sure the aspirin is doing much at all, but at least the polyps

haven't

> grown since the desense. They grew rapidly after the op and I needed

> prednisolone to shrink 'em back.

>

>

> all the best,

> Beverley

> http://members.ozemail.com.au/~beverleypaine

> B Paine, PO Box 371 Yankalilla SA 5203

>

>

> " War never decides who is right, only who is left. "

[Guest guest]

Hi Frannie,

I hear ya. I've gone the route of Prozac, Zoloft and now Lexapro (and

Remeron some where in there). A rough journey.

Our lives can be so rough. So complex. Just hang on there. And keep telling

us how you feel.

Victor

At 11:10 AM 4/24/2003 -0400, you wrote:

>Hi everyone,

>

>I have experienced depression most of my life and am a counselor. I have

>been on even 30 mg of Lexapro which was too much. Am now on 10 and am

>living and doing things but cannot seem to feel any excitement about

>life. I hate to go on another regimen because I think after awhile we

>build tolerance. I know I did to Prozac and Zoloft. Just need your support.

>

>Thanks,

>

>bulefrannie

>Lexapro wrote:

snip

[Guest guest]

IMO, if your outlook on life is sucky then no anti-depressant is going to

work in the long run. IMO, medication (aside from a psychotropic) is only

going to allow you to regain focus on the positives of your life. SSRIs in

combination with therapy is the ideal. For myself, I can't afford to go to

both therapy and take meds without insurance. So, until then, I only do

meds and grind away at my mental maladies with books on psychology.

Victor

At 05:26 PM 4/24/2003 -0400, you wrote:

>Hi, do you think the non excitement about life is from the depression, or

>the medication? I'd love to have everybodys input on this. I am really

>almost ready to take the Lex, but I still want to feel some happiness and

>excitement in my life... I'd appreciate it to hear from lots of you.

>Thanks so much!!

>

>Crystal

>

>

>I have experienced depression most of my life and am a counselor. I have

>been on even 30 mg of Lexapro which was too much. Am now on 10 and am

>living and doing things but cannot seem to feel any excitement about

>life. I hate to go on another regimen because I think after awhile we

>build tolerance. I know I did to Prozac and Zoloft. Just need your support.

>

>Thanks,

>

>bulefrannie

>Lexapro wrote:

snip

[Guest guest]

The other two are Adriamicin and Cytoxan. It caused me to feel less well,

mostly loss of appetite, than previous regimens. The Adriamicin also,

probably, caused Atrial Fibrilation; it is a known consequence.

Re: LRF education forum

>

>

> >

> > Sybil,

> > The very best to you when you go to the doctor on

> > the 3rd and then again on the 10th. Please tell

> > me what is CHOP?

> > Madeline

> >

> >

> > =====

> > Enjoy This Journey That We Call Life

> >

> > __________________________________________________

> >

[Guest guest]

Has anyone here seen the new Merck ads on TV? They really catch your attention. Sunday was the first time I caught them. They have three kids. The first taking about measles (and thinking it is a game). With each child they have the name of the disease on the screen in big letters. The second child says, " MUMPS..that is what camels have. Some camels have one mump and some have two." The third child says something like...." CHICKEN POX? Oh that is where chicks go to have fun."

Then something about how we don't even remember these disease because of the vaccines that Merck has developed and what good work they are doing on other diseases....." Merck..where people come first!" Yeah, right!

H. Cale

Vice President

Unlocking Autism

770.463.4475-home office

1.866.366.3361-toll free

www.UnlockingAutism.org

NanCale@...

[Guest guest]

In a message dated 6/13/2005 6:44:29 AM Central Daylight Time, bmanning83@... writes:

and guess who will get the blame.

Should be people like Offit who keep insisting that this crap is safe instead of making it safer so people wouldn't be afraid to stick it in their kids.

[Guest guest]

,

I have seen those ads too. I think this is a new PR campaign that pharma has decided to roll out.

It serves to illustrate that many parents have started questioning vaccine safety and they need to

counter that by reminding them of these dangerous, deadly (?) diseases.

Parents aren't as dumb. They have witnessed themselves what has happened to their friends,

neighbors, or relatives children who were perfectly 'normal' and then disappeared after vaccination.

Seeing is believing and there are now so many children with developmental disorders, new parents

can see for themselves what 'autism' is and can put 2 and 2 together...even if the pediatrician can

not.

CDC conducts a survey to follow public opinion on vaccination. One of my friends has been a

participant for years. She has told me that over the past two years they have doubled the number

of times they have sent the survey out and among other things the questions ask if you have

confidence in what physicians, CDC, and the government tells you about immunizations. She

gave me a copy of the survey and you can clearly see that this is in direct response to parents

concerns about vaccine safety.

I think you will start to see more of these ads and more reporting of cluster cases of chicken pox,

etc. Be prepared for the isolated case of a death due to measles or mumps that will get all kinds

of attention...and guess who will get the blame.

Bobbie

Re: Digest Number 241

Has anyone here seen the new Merck ads on TV? They really catch your attention. Sunday was the first time I caught them. They have three kids. The first taking about measles (and thinking it is a game). With each child they have the name of the disease on the screen in big letters. The second child says, " MUMPS..that is what camels have. Some camels have one mump and some have two." The third child says something like...." CHICKEN POX? Oh that is where chicks go to have fun."Then something about how we don't even remember these disease because of the vaccines that Merck has developed and what good work they are doing on other diseases....." Merck..where people come first!" Yeah, right!

H. CaleVice PresidentUnlocking Autism770.463.4475-home office1.866.366.3361-toll freewww.UnlockingAutism.orgNanCale@...

[Guest guest]

Hi . As I am educating my Congressional leaders and others that

need it....I have brought up the current flu shot stats for next

season, which has been very helpful...details/facts. My question is

what else is still " out there " in the way of thimerosal--vaccines? Is

there a link to current info? Also, are the Calif. numbers down, and

if so, where is that so I can pass that on too. Thanks...

>

>

> In a message dated 6/13/2005 6:44:29 AM Central Daylight Time,

> bmanning83@a... writes:

>

> and guess who will get the blame.

>

>

> Should be people like Offit who keep insisting that this crap

is safe

> instead of making it safer so people wouldn't be afraid to stick it

in their

> kids.

>

>