update

[Guest guest]

Dear Jo Dee,

Was wondering if you could tell me what is the ingredient or content in Nioxin

vitamins are?

Thanks,Dory Doggie

________________________________

From: <jms30@...>

Sent: Wednesday, September 23, 2009 9:23:30 PM

Subject: Re: [ ] update

Thanks for the info. I will have to keep my eyes out for them.

Jen

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> From: <jms30@...>

> Subject: [ ] update

> groups (DOT) com

> Date: Wednesday, September 23, 2009, 4:21 PM

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> I had my visit with my new Dr.(at Northwestern in Chicago)

yesterday. I love Dr. Tallman. He was able to answer all of my questions right

away. He was surprised that my previous Dr. didn't do weekly bloodwork. He did a

full metabolic panel. My hemoglobin is 10.1, wbc is 3.0 and platelets are good.

One of the thyroid tests came back a little low so I need to follow up with my

primary for that. I started back on Gleevec on Monday. I see Dr. Tallman again

in a month. I feel so much relief after seeing him.

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> On another note, does anyone else have an issue with hair loss after going on

Gleevec? Has anyone tried the Nioxin shampoo or anything else to help it?

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> Jen

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[Guest guest]

Hi All

Well I am still waiting for the dr. office to call saying they got the xolair.

She told me last Mon she sent for it, I called today am waiting for her to call

back........geesh! I am so hoping this works for me. I am soooo miserable with

the constant coughing,sniffing,wheezing and drainage. I am really looking

forward to getting started.

I read all the FAQ and got some answers there, that was helpful, thank you. Do

you think that we will ever be able to get off the shots? I suppose now since it

blocks the toxins being released. Well it is a small thing to pay if it helps.

Is the weekend the only time we can talk off topic?

Jan

[Guest guest]

,

Just wondering are you feeling any differences with the slight

increase, and being off of Gleevec are you feeling better?

Dory Doggie

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From: dickie_64012 <dickie_64012@...>

Sent: Sat, January 23, 2010 9:30:23 PM

Subject: [ ] Update

I just received the results of my Dec. QT-PCR test. It shows that my BCR-ABL

counts continue to slowly rise. We are now trying to decide at what point I

will resume Gleevec. My ONC is treating other CML patients with various other

protocols. He is seeing good results with all and thinks that since I am on the

first protocol that we should have all the known side effects on the table to

work with. If my worst problems reappear then we will move to something else.

I have risen from .0001 to .0028 since Jan. 2009. He has set a maximum of .01

but is seriously considering lowering it. We will redo the QT-PCR in Apr and

re-evaluate at that time.

H.

dxd 2/03

400mg Gleevec 3/03

CCR 11/03

Zavies zero club #530

Transfusions Dec. 06-May 07

Gleevec Vacation 6/07-1/08

Gleevec 1/08-6/08

Transfusions 6/08-11/08

Gleevec Vacation 6/08-Present