Re: (unknown)

November 13, 2001

So, you say that you have a selenium deficiency???? Excuse me, but does Prozac now cure a selenium deficiency along with the co-called propaganda that it fixes a serotonin deficiency??? Did your doctor administer tests to determine that you had this deficiency? Or was his dx purely subjective? You had to minimize your contact with other people whilst in the midst of Prozac withdrawal? Hmmmmm, what about all the people who did NOT do this and then massacred their co-workers or their families. You clearly know nothing about the way in which this drug affects your brain. I will pray for you because one day this drug will stop "working" -- if in fact it "works" at all, and you will be in a hell on earth that you could never have imagined. Psychiatry and its arsenal of drugs is the beating heart of evil in our society. A drug such as Prozac was the dream of the Third Reich, to create a complacent and compliant society open to the suggestions of its totalitarian dictators. Prozac and its kissing cousins are the "Soma" of our society. Good luck to you. You're going to need it.

November 13, 2001

So, you say that you have a selenium deficiency???? Excuse me, but does Prozac now cure a selenium deficiency along with the co-called propaganda that it fixes a serotonin deficiency??? Did your doctor administer tests to determine that you had this deficiency? Or was his dx purely subjective? You had to minimize your contact with other people whilst in the midst of Prozac withdrawal? Hmmmmm, what about all the people who did NOT do this and then massacred their co-workers or their families. You clearly know nothing about the way in which this drug affects your brain. I will pray for you because one day this drug will stop "working" -- if in fact it "works" at all, and you will be in a hell on earth that you could never have imagined. Psychiatry and its arsenal of drugs is the beating heart of evil in our society. A drug such as Prozac was the dream of the Third Reich, to create a complacent and compliant society open to the suggestions of its totalitarian dictators. Prozac and its kissing cousins are the "Soma" of our society. Good luck to you. You're going to need it.

November 13, 2001

I can not disagree more, I only took prozac 15 days,

it would have not mattered if i was watched monitored

etc.... it was too late, only 15 days and I have been

damaged permanently, I understand the illness and

there are several alternatives, your on the

medication and this is what people ON the meds say,

but then when they stop and look at the destruction

that these drugs caused they Hate prozac and Hate Eli

Lilly, I wish you the best, O by the way, how long

did you stop taking prozac, do you know that 6

months after I stopped taking it they still had traces

of it in my blood, and 18 months later i still have

problems from it...... remember i only took it for 15

days and i have permanent damage, they could have

monitored me all they want, THE DAMAGE IS DONE AND IS

IRREVERSIBLE, and eli lilly never said in their

package insert that irreversible damage is

possible.... BUT All the Law suites pending on them

will make them change, it only takes time

best wishes

cynthia garcia

--- Owl Dancer <owldancer1955@...> wrote:

<HR>

<P>I am number 3264 on your petition, please read my

comments. I am NOT in favor of disposing of all

medications of this kind. Nor am I in favor of doing

completely away with Prozak. However, I feel that --

as with ALL necessary medication such as thyroid,

blood pressure etc -- that every patient is different

in their bio-chemical makeup. If a patient is to be

put on Prozak -- or anything of the same catagory --

the patient should be watched, monitored and counseled

weekly for a few months. I have been on it for 6 years

and I truely am better able to function. However, it

is not ONLY the medication that works, I have had to

adjust my behavior, drinking of alchohol had to be

stopped, and I do not take over the counter drugs with

out first asking the pharmacist if it affects prozak

in anyway. </P>

<P>And yes, I have taken a break from prozak and let

it clear my system. I did experience increased

irratability and many other things. I limited my

exposer to other people during this period. My doctor

and I both felt I did much better while taking Prozak,

I am back on it and refuse to give it up. Some of us

just NEED a little extra chemical assistance to be

able to function in society better. I have a

defiecency in selenium production. Some other person

may have a defiecency in their thyroid or blood

pressure which needs medication.</P>

<P>Do you understand the need? Do you understand the

" illness? " </P>

<P>Have you looked at the percentage of people like

myself who actually benefit from Prozak? maybe you

should. <BR><BR></P></DIV></div><br clear=all><hr>Get

your FREE download of MSN Explorer at <a

href='http://go.msn.com/bql/hmtag_itl_EN.asp'>http://explorer.msn.com</a><br>

<br>

<td align=center><font size= " -1 "

color=#003399><b>

November 13, 2001

I can not disagree more, I only took prozac 15 days,

it would have not mattered if i was watched monitored

etc.... it was too late, only 15 days and I have been

damaged permanently, I understand the illness and

there are several alternatives, your on the

medication and this is what people ON the meds say,

but then when they stop and look at the destruction

that these drugs caused they Hate prozac and Hate Eli

Lilly, I wish you the best, O by the way, how long

did you stop taking prozac, do you know that 6

months after I stopped taking it they still had traces

of it in my blood, and 18 months later i still have

problems from it...... remember i only took it for 15

days and i have permanent damage, they could have

monitored me all they want, THE DAMAGE IS DONE AND IS

IRREVERSIBLE, and eli lilly never said in their

package insert that irreversible damage is

possible.... BUT All the Law suites pending on them

will make them change, it only takes time

best wishes

cynthia garcia

--- Owl Dancer <owldancer1955@...> wrote:

<HR>

<P>I am number 3264 on your petition, please read my

comments. I am NOT in favor of disposing of all

medications of this kind. Nor am I in favor of doing

completely away with Prozak. However, I feel that --

as with ALL necessary medication such as thyroid,

blood pressure etc -- that every patient is different

in their bio-chemical makeup. If a patient is to be

put on Prozak -- or anything of the same catagory --

the patient should be watched, monitored and counseled

weekly for a few months. I have been on it for 6 years

and I truely am better able to function. However, it

is not ONLY the medication that works, I have had to

adjust my behavior, drinking of alchohol had to be

stopped, and I do not take over the counter drugs with

out first asking the pharmacist if it affects prozak

in anyway. </P>

<P>And yes, I have taken a break from prozak and let

it clear my system. I did experience increased

irratability and many other things. I limited my

exposer to other people during this period. My doctor

and I both felt I did much better while taking Prozak,

I am back on it and refuse to give it up. Some of us

just NEED a little extra chemical assistance to be

able to function in society better. I have a

defiecency in selenium production. Some other person

may have a defiecency in their thyroid or blood

pressure which needs medication.</P>

<P>Do you understand the need? Do you understand the

" illness? " </P>

<P>Have you looked at the percentage of people like

myself who actually benefit from Prozak? maybe you

should. <BR><BR></P></DIV></div><br clear=all><hr>Get

your FREE download of MSN Explorer at <a

href='http://go.msn.com/bql/hmtag_itl_EN.asp'>http://explorer.msn.com</a><br>

<br>

<td align=center><font size= " -1 "

color=#003399><b>

November 13, 2001

Oh my................you need to pay closer attention when you go back to

NYC........

You've missed a lot........I'm saddened for you.

You have been hardened, and for that I feel sorry for you............

November 14, 2001

--- greenpak <greenpak@...> wrote: >

im not sure where to start jamie, would be a

> loooonnng email if i wrote the many things weve

> doneover the years to get nathanup to this pint

> which is pretty great lately id have to say, knock

> on wood,lol. lets see, the compliance issue, have

> worked on greatly over the years, we have found

> starting for very short item of work then offer

> break, they may sign it, verbalize it or use a pic

> symbol, i remember just starting with each peice of

> clothing, for eg: nathan would finally put on a

> sock, and he would get the choice, play or more

> work, showing him the signs while saying it, he

> would always choose play, so he would get timed

> play, then when timer up, its time to work then play

> ok, then the power struggle to get him to work just

> for one small item, it can even be one answer on a

> page just start small and work up. But be

> consisitent, if are refusing to work, uuugh i

> remember when first started these sessions, it took

> an hour and a half just to get nathan to put a peg

> in the board, but he did catch on to the " play " or

> " break " immedialtely. We would put a pge in the

> board then it was nathan turn to work then play, he

> would toss it (ofcourse) so then we would have to

> walk him over to peg manually pick it up hand over

> hand then walk him back over to board hand over hand

> show him to put in in board then take ut and hand to

> him stating nahtan needs to put peg in board, then

> you can play, work then play. We had to even do a

> few sessions like this at home until he started

> complying and working for that play/break time---we

> still use it greatly even today with NO hassles from

> nathan at all, except he works for much longer

> periods of time and will occasionally sign or

> request a break in the middle but easily redirected

> to finish then break time and he does without

> complaint, then at break time he eagerly gets his

> transition toys he carries out and plays until the

> timer goes off(its just a few minutes anymore) then

> automatically puts his toys away and works again

> until next break time, and he has a pic schedule he

> can veiw at all times so this hleps him anticipate

> upcoming break times too. Just remember consistency,

> and patience are the huge biggies in this area.

> shawna.

> -----Hi a

I was interested to read this e- mail of yours. Can I

ask you or anyone else, Is non-compliance a sign of

autism?We are still fighting to have Rebekah diagnosed

and recently video'd her and showed the school the

problems we were having. They said that it was non

compliance rather than autism although that does not

explain her strange hand movements, eye movements,

head banging, aggression etc.Are there any websites on

non-compliance being related to autism that anyone

knows of that I could print off and send in to school?

- mum to Rebekah(3) U.K.

>

> --------------------------------------------------

> Checkout our homepage for information,

> bookmarks, and photos of our kids. Share favorite

> bookmarks, ideas, and other information by including

> them. Don't forget, messages are a permanent record

> of the archives for our list.

>

> --------------------------------------------

>

November 14, 2001

When went back for his re-evaluation he had the diagnosis of Autism, ADHD

and Oppositional Defiant Disorder (which is the non-compliance and inability to

recognize authority - but that's really simplified), the expert said that autism

includes ADHD and ODD, that it isn't a separate disorder. When he lowered the

diagnosis down to PDD-NOS, he said there could be a separate diagnosis of ADHD

and ODD. But, again, ODD (what you're calling non-compliance) doesn't include

the hand movements, repetitive behaviors or perseverative (or getting stuck on

something, like starting a routine and not being able to stop until the routine

is over). So if one just had ODD, they wouldn't have the hand movements and

other things. But if the child is fully autistic, it's not a separate

diagnosis.

Now, was that as clear as mud? Gotta excuse me, I've been homeschooling on a

day I expected to be at the dentist...he got called away on emergency leave (Air

Force). The kids handled it fine, for a change, but I had my mind set on NOT

teaching.....

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

November 15, 2001

--- Loriann <hsmyangels@...> wrote: > When

went back for his re-evaluation he had

> Dear Loriann

thank you for taking the time to reply to my query

even though you obviously have much more important

things on your mind at the moment.

It did actually make a lot of sense to me .

Once again many thanks

-mum to Rebekah(3) U.K.

>

> [Non-text portions of this message have been

> removed]

>

November 15, 2001

In a message dated 11/15/01 8:37:59 AM Eastern Standard Time,

hsmyangels@... writes:

> I just hope some of my experiences can help someone else, then it makes it

> worth while to have gone through it.

>

It has. Thank you. Diane

November 15, 2001

This list is very important to me, and the people on it. There are times that

I've been helped tremendously (especially when all this was new to me). I just

hope some of my experiences can help someone else, then it makes it worth while

to have gone through it.

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

November 15, 2001

---Hi, Cheryl

I'm new to this chat room. I thankyou for your letter on the biopsy

proceedure, and I'm wondering what the results have shown.

If you get a chance could you E-Mail me to let me know.

Sincerely, Diane (BigMama),

In Hepatitis C@y..., cheryl mccormick <coke_232001@y...> wrote:

> HI THERE, HOPE EVERYONE IS KEEPING WELL AS FOR MYSELF

> NOT BAD. I HAD A LIVER BIOPSY IN AUGUST AND THEY

> DIDNT GIVE ME ANY KIND OF SEDATIVE OR ANYTHING FOR

> PAIN. TO BE HONEST ITS AN UNPLEASANT PROCEDURE AND

> ITS WORST THAN A CERVICAL BIOPSY I'VE HAD THAT DONE

> TOO IM NOT TRYING TO SCARE YOU JUST BEING HONEST. BUT

> I DO SUGGEST YOU ASK THE DOCTOR TO PRESCRIBE A

> PAINKILLER OR SEDATIVE FOR DURING THE PROCEDURE TO

> RELAX YOU A LITTLE BIT THATS WHAT IM GOING TO DO WHEN

> I GO NEXT AUGUST. GOOD LUCK. IM SURE YOU WILL DO FINE.

>

> _______________________________________________________

>

November 15, 2001

I think i would have to ask irma on the web sites, she is the best at obtaining

those. I think non compliance can accompany most any child , just more

noticable (?) in a child with disabilities. I know noncompliance is one of the

identifying factors of autism(inward self thinking) in my psych text, but

remember many docs differ as do each of our kids. prayers for solutions. shawna.

Re: (unknown)

--- greenpak <greenpak@...> wrote: >

im not sure where to start jamie, would be a

> loooonnng email if i wrote the many things weve

> doneover the years to get nathanup to this pint

> which is pretty great lately id have to say, knock

> on wood,lol. lets see, the compliance issue, have

> worked on greatly over the years, we have found

> starting for very short item of work then offer

> break, they may sign it, verbalize it or use a pic

> symbol, i remember just starting with each peice of

> clothing, for eg: nathan would finally put on a

> sock, and he would get the choice, play or more

> work, showing him the signs while saying it, he

> would always choose play, so he would get timed

> play, then when timer up, its time to work then play

> ok, then the power struggle to get him to work just

> for one small item, it can even be one answer on a

> page just start small and work up. But be

> consisitent, if are refusing to work, uuugh i

> remember when first started these sessions, it took

> an hour and a half just to get nathan to put a peg

> in the board, but he did catch on to the " play " or

> " break " immedialtely. We would put a pge in the

> board then it was nathan turn to work then play, he

> would toss it (ofcourse) so then we would have to

> walk him over to peg manually pick it up hand over

> hand then walk him back over to board hand over hand

> show him to put in in board then take ut and hand to

> him stating nahtan needs to put peg in board, then

> you can play, work then play. We had to even do a

> few sessions like this at home until he started

> complying and working for that play/break time---we

> still use it greatly even today with NO hassles from

> nathan at all, except he works for much longer

> periods of time and will occasionally sign or

> request a break in the middle but easily redirected

> to finish then break time and he does without

> complaint, then at break time he eagerly gets his

> transition toys he carries out and plays until the

> timer goes off(its just a few minutes anymore) then

> automatically puts his toys away and works again

> until next break time, and he has a pic schedule he

> can veiw at all times so this hleps him anticipate

> upcoming break times too. Just remember consistency,

> and patience are the huge biggies in this area.

> shawna.

> -----Hi a

I was interested to read this e- mail of yours. Can I

ask you or anyone else, Is non-compliance a sign of

autism?We are still fighting to have Rebekah diagnosed

and recently video'd her and showed the school the

problems we were having. They said that it was non

compliance rather than autism although that does not

explain her strange hand movements, eye movements,

head banging, aggression etc.Are there any websites on

non-compliance being related to autism that anyone

knows of that I could print off and send in to school?

- mum to Rebekah(3) U.K.

>

> --------------------------------------------------

> Checkout our homepage for information,

> bookmarks, and photos of our kids. Share favorite

> bookmarks, ideas, and other information by including

> them. Don't forget, messages are a permanent record

> of the archives for our list.

>

> --------------------------------------------

>

November 16, 2001

> I think i would have to ask irma on the web sites, she is the best

at obtaining those. I think non compliance can accompany most any

child , just more noticable (?) in a child with disabilities. I know

noncompliance is one of the identifying factors of autism(inward self

thinking) in my psych text, but remember many docs differ as do each

of our kids. prayers for solutions. shawna.

Thanks a ,

But you know , you've all been the one that provides a ton of support

in my direction and as always very motivational and overwhelming . I

understand the information we share is not a cure but its remarkable

to know we are not alone anymore . Yes, Prayers always for

solutions .

Irma, 13,DS/ASD.

November 16, 2001

Hi Janette! I am Shar, and I have a son, , who is 5, with DS.. I also have

2 other kids who are 9 and 8. Welcome to the group!!!

hugs,

Shar

My name is Janette and I'm a new member. Just wanted

to introduce myself. I have a daughter with Down

Syndrome. Sierra is 5 years old and doing great! She

attends preschool and loves it. She does have a heart

condition that needs to be checked yearly. She also

loves videos. I try to do puzzles and other activities

with her too. I'm glad to be in this group.

November 16, 2001

Hi Janette! I am Shar, and I have a son, , who is 5, with DS.. I also have

2 other kids who are 9 and 8. Welcome to the group!!!

hugs,

Shar

My name is Janette and I'm a new member. Just wanted

to introduce myself. I have a daughter with Down

Syndrome. Sierra is 5 years old and doing great! She

attends preschool and loves it. She does have a heart

condition that needs to be checked yearly. She also

loves videos. I try to do puzzles and other activities

with her too. I'm glad to be in this group.

November 18, 2001

Karac has had preferences for clothes since he was three. If his mother or I put something on him that he didn't like, he would take it off and go get what he wanted to wear. That is the way he learned to dress and undress himself. If he disliked something, he would work as long as it took to get it off. Also, he would work his head off to put on what he did like. Since I usually didn't like his choice, I decided that if he wanted it bad enough to work at putting it on; he could wear it. Now, we pretty much like the same thing. When I take him to the store with me, he will indicate what he wants by pulling on it. I am Karac's grandmother, and I buy most of his clothes. I have also been in charge of his program since he was three. My guess is your son is happy with your choices or he would find a way to let you know. God bless, Pat K

November 20, 2001

HI, HOW IS EVERYONE DOING? MY BIOPSY SHOWED THAT

THERE WAS ONLY A LITTLE BIT OF SCARRING TO MY LIVER SO

I DONT THINK THE DOCTOR IS GOING TO TREAT ME FOR IT.

SORRY IT TOOK SO LONG TO GET BACK TO YOU I DID U HAVE

THE BIOPSY DONE YET? IF SO HOW'D IT GO?

P.S. HAS ANYONE HEARD THAT THEIR IS A CURE FOR HEP C?

I READ IN THE PAPER THAT THERE IS CAN SOMEBODY GET

BACK TO ME ON THAT? THANKS

_______________________________________________________

Build your own website in minutes and for free at http://ca.geocities.com

November 21, 2001

As far as I know there is no cure wish there was. I am surprised your

doctor is not going to treat you what is he going to do wait until your

bad to decide to treat you? I got awful sick from the treatment so

stopped and won't do it again but I am surprised your doctor is not

going to do anything now mabe you should get a second opinion it seems

to me that it would be good to treat you now while your not that bad.

But that is just my opinion what do the rest of you think?

Pamm

November 21, 2001

I agree Pamm she should get treatment now, my liver wasn't that bad either but my Dr. felt I was a good candidate for possible remission due to early detection. Of course I didn't respond, but am trying again because I want to get well. If she waits the liver just gets worse, wish you well but would check out someone elses oppinion. Teri

November 21, 2001

HI EVERYONE. THANKS FOR RESPONDING TO ME PAM AND YES

I HAVE THOUGHT ABOUT GETTING A SECOND OPINION BECAUSE

I TOO THINK IT SHOULD BE TREATED BEFORE IT GETS WORST

SO I THINK I WILL DO THAT THANX AGAIN. TAKE CARE.

CHERYL

_______________________________________________________

Build your own website in minutes and for free at http://ca.geocities.com

November 22, 2001

The doctor I use to have told me my liver is not real bad on a scale of

1 to 4 he said I was a 2 1/2 but I am not sure how bad I am now. My

biopsy report says my biopsy of liver demonstrate portal areas to

contain a mild to moderate chronic inflammatory infiltrate composed

predominantly of small lymphocytes with occasional plasma cells with

extension of the inflammatory infltrate focally into the limiting plate

and focal bridging necrosis identified in which there is a loss of

hepatocytes and a bridging pattern within a reticular framework fo the

hepatic parenchyma. The trichrome stain fails to reveal any fibrosis

however, the reticulin stain demonstrates bridging collapse of reticulin

fibers associated with this bridging necrosis. The hemosiderin stain

fails to reveal any parenchymal iron deposition. There is no evidence of

sirrhosis.

Anyway that is what my liver was like 2 years ago ( I have no idea what

it means) and the doctor put me on combo but I got really sick and he

did not seem to care that I was so sick I would have to lay down on the

floor when I was trying to walk from one room to the next so I finally

just threw the medication in the trash and never went back to the

doctor.

Now the internest I have now wants to do blood tests to see how my liver

is doing I already told him I will not consider treatment again because

I got so sick and the doctor did not even try to give me medication to

help with the side effects so I really don't see the use in any blood

tests.

If anyone can explain the biopsy results from my report to me I would

appricate it as the doctor I use to go to did not expalin it so I could

understand.

Pamm

November 22, 2001

Dear Pamm, Teri here I am of no help as far as what the liver biopsey had to say but I do know most Dr.s will not prescribe meds for your symptoms because your liver has to process all those drugs and your liver is already sick. I would contact the American Liver Foundation and see if they will explain what your liver biopsey says the no. is 1-800-465-4837 or Hep C connection at 1-800-522-4372. Surely one of those can help you out, let me know what you find out. Teri

November 27, 2001

Hi Katy. Welcome to the group! Were glad to be able

to give you some comfort in being that you are not

alone. I'm now 26. I've had achalasia for about 4

years or so. As far as spasms go, I thought at first

I was having heartburn and was treated for GERD, bed

up on blocks, no caffeine, etc. but to no avail. I

was on Prilosec and that did nothing for me either.

Finally, three doctors later, the gastro doctor

immediately diagnosed achalasia and began the testing.

It was then that my spasms started getting worse,

lasting longer, more painful, and I realized that it

wasn't heartburn. No matter how much bread, water,

milk, malox, etc. that I consumed trying to get rid of

the awful pain, nothing worked. After being in this

group for a while, I decided to mention to my doctor

that nitroglycerin was working for some people, and

she agreed to try it for me. It did work for a while,

but has since stopped working. Now I'm taking 5mg of

Valium when a spasm comes on. The little tablet

disolves quickly and releases the spasm. This

medication is the best thing that has worked for me.

I've also taken Vicodin for the spasms, which doesn't

really release the spasm, but just covers up the

problem... You do have options Katy. You need to

discuss these options with your doctor. Go through

the past postings and you will find a wealth of

information about peoples various techniques in

dealing with spasms. I am by no means a doctor or

have any medical training (have to put that little

disclaimer in there :-) but I would certainly say you

are having spasms and not heartburn. You sound just

like me! I know I speak for pretty much all of us

when I say we are here for you. If you have any more

questions, please don't hesitate to ask. You can post

to the board of email me directly! Take care of

yourself Katy.

--- kkoerber@... wrote:

> Hi everybody. I'm 22 and have been diagnosed with

> achalasia for about a

> year and a half. My symptoms started with what I

> thought was heartburn

> and quickly progressed to the point where I was on a

> totally liquid diet

> and was losing a lot of wieght. I had a myotomy in

> june and though it

> helped somewhat, my symptoms are getting worse

> again. my main problem

> now is that i wake up in the night with intense

> chest pain. Sometimes

> the pain is excruciating; sometimes milder.

> Sometimes it can last for

> six or eight hours; sometimes it goes away after a

> glass of warm water

> (or six or seven), a little food, or some time with

> a heating pad on my

> chest. Sometimes the pain is mild but i can tell

> that if i lie down it

> will get worse and keep me from sleeping. Antacids

> do nothing, putting

> my bed on blocks has done nothing....i'm out of

> ideas. my doc says the

> heartburn is caused by food fermenting in my

> esophagus and becoming

> acidic (not from reflux). i'm wondering if i'm

> having spasms -- how do i

> tell the difference? I can't handle this sleep

> deprivation -- i'm barely

> able to function in class and at work. any advice

> would be a great help.

>

> thanks much

> katy

>

________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for

> less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

>

__________________________________________________

November 27, 2001

Hey Katy,

Sorry to hear that you have been diagnosed with this curse. I too have it and I also had a weight loss before I finally learned to deal with it in my own redneck way. I was about 240lbs when I first started having trouble getting my food down, but then it got so bad that I could not even get water down and eventually lost down to 140lbs. Thats pretty drastic for a 50 year old long haired hippie like myself, but I am now back to 185lbs and trying not to gain any more, lol.

I went through all the doctors and the exspense of having my spincher muscle dialated three times, each time less and less effective. I have since devised my own way of coping with this that gets me by very well. The only thing I still have trouble with is steak.

I'll tell you this crude method of mine and you can try it and see if it will help you.

I use a slightly chilled can coke to force the food down. Try eating just some crackers or something easy to get down at first, then down five or six big swallows of the coke and force the food through the spincher. You can feel it and hear the food when it goes through. I have found that the best cokes to use are Sams choice diet cokes from Wal Mart. They work best at the temperature when purchased from inside the store off the shelf not from the machine and cold.

I used to wake up with the chest pains and heartburn and all that but never anymore. I know that this sounds very crude but with the options that I had I had to try something. Please give this a try, it was a life saver for me. I still hope that one day that they will come up with some miracle drug to help but in the meantime its me and my cokes everywhere I go.

Good luck and best wishes to you,

tazcat50

>From: kkoerber@... >Reply-achalasia >achalasia >Subject: (unknown) >Date: Mon, 26 Nov 2001 21:32:37 -0600 > >Hi everybody. I'm 22 and have been diagnosed with achalasia for about a >year and a half. My symptoms started with what I thought was heartburn >and quickly progressed to the point where I was on a totally liquid diet >and was losing a lot of wieght. I had a myotomy in june and though it >helped somewhat, my symptoms are getting worse again. my main problem >now is that i wake up in the night with intense chest pain. Sometimes >the pain is excruciating; sometimes milder. Sometimes it can last for >six or eight hours; sometimes it goes away after a glass of warm water >(or six or seven), a little food, or some time with a heating pad on my >chest. Sometimes the pain is mild but i can tell that if i lie down it >will get worse and keep me from sleeping. Antacids do nothing, putting >my bed on blocks has done nothing....i'm out of ideas. my doc says the >heartburn is caused by food fermenting in my esophagus and becoming >acidic (not from reflux). i'm wondering if i'm having spasms -- how do i >tell the difference? I can't handle this sleep deprivation -- i'm barely >able to function in class and at work. any advice would be a great help. > >thanks much >katy >________________________________________________________________ >GET INTERNET ACCESS FROM JUNO! >Juno offers FREE or PREMIUM Internet access for less! >Join Juno today! For your FREE software, visit: >http://dl.www.juno.com/get/web/. Get your FREE download of MSN Explorer at http://explorer.msn.com

November 28, 2001

Yeah, I did this for years only I just used room temp. or warm water it either forced the food through or back up.

When I did this I always made sure I was close the bath or restroom

ED

(unknown) >Date: Mon, 26 Nov 2001 21:32:37 -0600 > >Hi everybody. I'm 22 and have been diagnosed with achalasia for about a >year and a half. My symptoms started with what I thought was heartburn >and quickly progressed to the point where I was on a totally liquid diet >and was losing a lot of wieght. I had a myotomy in june and though it >helped somewhat, my symptoms are getting worse again. my main problem >now is that i wake up in the night with intense chest pain. Sometimes >the pain is excruciating; sometimes milder. Sometimes it can last for >six or eight hours; sometimes it goes away after a glass of warm water >(or six or seven), a little food, or some time with a heating pad on my >chest. Sometimes the pain is mild but i can tell that if i lie down it >will get worse and keep me from sleeping. Antacids do nothing, putting >my bed on blocks has done nothing....i'm out of ideas. my doc says the >heartburn is caused by food fermenting in my esophagus and becoming >acidic (not from reflux). i'm wondering if i'm having spasms -- how do i >tell the difference? I can't handle this sleep deprivation -- i'm barely >able to function in class and at work. any advice would be a great help. > >thanks much >katy >________________________________________________________________ >GET INTERNET ACCESS FROM JUNO! >Juno offers FREE or PREMIUM Internet access for less! >Join Juno today! For your FREE software, visit: >http://dl.www.juno.com/get/web/.

Get your FREE download of MSN Explorer at http://explorer.msn.com

Sign In

Re: (unknown)

Recommended Posts

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest