Re: (unknown)

[Guest guest]

Welcome . I had my trial put in on 8/13, yesterday. If you would

like to talk, e-mail me. I am too sore to sit here and type it all twice = )

In a message dated 8/13/2008 11:36:22 P.M. Eastern Daylight Time,

shaninpain@... writes:

Hi all! Im new to the group. My name is and I have been diagnosed

with Rsd/Crps following a knee meniscus surgery earlier this year. Needless to

say, I have been going downhill and I cant find any treatments that will

last. My ins co, work comp, finally approved the spinal cord stimulator trial

for

next Tuesday, Aug 19th at 2pm. Im very excited and nervous at the same time.

Im scared of the pain, but excited for the thought of limited pain.

Can anyone share their trial experiences? Did you have pain? Did you have

alot of restrictions? Did it work well? How long until the permanent, etc.

Really if you can just share your experiences, that will be good enough.

I look forward to getting to know everyone and I will post throughout my

trial to keep you updated.

[Non-text portions of this message have been removed]

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

[Guest guest]

Hi Bobby. That stinks that you have to be sick. I have taken Ativan, &  Compazine

before too and the Ativan knocked me out.  The Compazine made me jittery and

very uneasy.  It was hard to stand in place long enough to wash dishes. Very

strange feeling.  That was when I was in the gleevec/zarnestra trial.  Maybe it

was the combination of all the drugs together, who knows.

 

The hht doesn't have any side effects other than some nausea during the 3rd &

4th day of injections.

 

Im glad the drug is working for you!! Wonderful.

 

God Bless,

Jackie

From: Matt Maynor <mtmaynoraol (DOT) com>

Subject: RE: [ ] (unknown)

groups (DOT) com

Date: Monday, August 4, 2008, 2:45 PM

:

Why do you take an

Ativan for the infusion,

Is it uncomfortable? As

Uncomfortable as th BMB?

With warm regards,

Matt Maynor

8132 Hollyridge Road

ville, FL 32256

mtmaynoraol (DOT) com

904-219-9108

[ ] (unknown)

Hi everyone, had quite the visit yesterday.  First the poor tech doing the bma

could not get a piece of bone for the bmb.  She tried a couple of times, no

success, but she did manage to get a good marrow sample for the bms.  Whew! 

that one took a long time, but was really painless, as she does an excellant job

of numbing the area.  That was about my 46th one, and I guess there is so much

scar tissue there, it is hard to get a good sample.

Anyway, on the the infusion, which did not take place, again, second week in a

row.  last week it was becaue I had an angioplasty , so they said no to the

infusion.  This week the labs were to low:  wbc - 2,7;  hgb - 9.6;  pltl - 138; 

anc - 1.4

This is really a good sign, as it's been two weeks and nothing went up. they all

dropped or stayed the same. So this drug is working for me real well=

[Guest guest]

 

Welcome to the group. You are going to like it here.

 

I also have RSD. I've had it for over 9 years now. I have 2 SCSs and a pain

pump. The RSD is throughout my body. It started in my right shoulder and then

spread. Before the implants, I had very little use of my right arm and hand and

was ready to go into a wheelchair. I couldn't walk up and down the steps into my

house. I was a prisoner in my own house.TheSCS changed my life. I now have

mobility of my arm, and I walk. I do walk with a cane, but I'm walking!!!!!!!

 

My trials were very uneventful. I didn't have any problems with them. It was

uncomfortable, but I don't remember being in any real pain with the trials. You

do have to be careful, you don't want to pull the lead from the spine. The pain

relief was instant and I know I wanted the implant immediately.

 

I had my lumbar implanted in 2004, my cervical in 2005, and pain pump in 2006

 

There was more pain with the implants than the trial. I couldn't find a

comfortable place for myself, especially sleeping. The first 6 weeks or so was

pure hell, but it was so worth it. The pain relief is worth it. Once the healing

process is over and you get the relief you are looking for, you will be glad you

did it. If you have any more question, please let me know.

Good Luck to you.

 

Sue C

Moderator

From: McClelland <shaninpain@...>

Subject: (unknown)

Stimulator

Date: Thursday, August 14, 2008, 3:24 AM

Hi all! Im new to the group. My name is and I have been diagnosed with

Rsd/Crps following a knee meniscus surgery earlier this year. Needless to say, I

have been going downhill and I cant find any treatments that will last. My ins

co, work comp, finally approved the spinal cord stimulator trial for next

Tuesday, Aug 19th at 2pm. Im very excited and nervous at the same time. Im

scared of the pain, but excited for the thought of limited pain.

Can anyone share their trial experiences? Did you have pain? Did you have alot

of restrictions? Did it work well? How long until the permanent, etc. Really if

you can just share your experiences, that will be good enough.

I look forward to getting to know everyone and I will post throughout my trial

to keep you updated.

[Guest guest]

Nope, I haven't needed a pill all day but I have to take some of them so I

don't have withdrawals because of the high dose I am on.

In a message dated 8/14/2008 4:52:03 P.M. Eastern Daylight Time,

shaninpain@... writes:

Oh awesome! How is your pain level? Is the procedure pain bad enough

to require more pain meds?

Thanks,

--- In _Stimulator@groStimula_ (mailto:Stimulator ) ,

UCJAM1977@.., UC

>

> Welcome . I had my trial put in on 8/13, yesterday. If

you would

> like to talk, e-mail me. I am too sore to sit here and type it

all twice = )

>

>

> In a message dated 8/13/2008 11:36:22 P.M. Eastern Daylight Time,

> shaninpain@. shani

>

>

>

>

> Hi all! Im new to the group. My name is and I have been

diagnosed

> with Rsd/Crps following a knee meniscus surgery earlier this year.

Needless to

> say, I have been going downhill and I cant find any treatments

that will

> last. My ins co, work comp, finally approved the spinal cord

stimulator trial for

> next Tuesday, Aug 19th at 2pm. Im very excited and nervous at the

same time.

> Im scared of the pain, but excited for the thought of limited

pain.

> Can anyone share their trial experiences? Did you have pain? Did

you have

> alot of restrictions? Did it work well? How long until the

permanent, etc.

> Really if you can just share your experiences, that will be good

enough.

> I look forward to getting to know everyone and I will post

throughout my

> trial to keep you updated.

>

>

>

[Guest guest]

yea i was able to go back till just recently when it spread i'm going to

try to go back again though i had to change carreers but i was still able to

work alill

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-Volkswagen-Jetta-2009/expert-review?ncid=aolaut000300\

00000007 )

[Guest guest]

Hi ! Thanks. Are you able to work with the stimulator?

>

> hi shannon i'm lisa i had the trial and then a perment put in

i'm gad i

> did there are still days with a lill break through pain but i

have about a

> 75 % taken away yea theres a few restrictions but they are

worth the

> limited pain days at least i think so i had some discomfort

after the surgery

> but not a lot

>

>

>

> **************Looking for a car that's sporty, fun and fits in your

budget?

> Read reviews on AOL Autos.

> (http://autos.aol.com/cars-BMW-128-2008/expert-review?

ncid=aolaut00050000000017 )

>

>

>

[Guest guest]

Kathy,

Thank you for sharing your experience. Im sorry to hear about the

painful surgery for your stimulator. My rsd began in my knee but now

it has gone to my foot and ankle and its causing me great pain. Im

hoping that the stim will help. We will see I guess, thanks again.

>

> Hi, !!!

>

> Welcome to our group!!! I am so very glad that you have

joined..you will

> see that we are a bunch of kind, friendly and very, very caring

folks...who are

> in the same boat.

>

> My name is Kathy G. I have had RSD now for 25 years. It is all

throughout

> my body. It started for me at the age of 14 when I was pitching

on the mound

> and got hit by a line drive ball on my knee cap.

>

> Since then, I have had 17 different areas of rsd. I have 2 stims

and had a

> pain pump...which is now removed due to malfunctions.

>

> My first stim was the difference between night and day for me. My

pain was a

> 10, and the next day it was a 0. It was a miracle for me.

>

> That recuperation seemed to be nothing for me at all. I followed

the

> instructions, and if you do too, you should be fine. No lifting,

bending or

> twisting for 8 weeks. You have to let the stim " scar into place. "

>

> the pain was very manageable for me.

>

> My second stim was a different story...but that is due to the fact

that the

> RSD in my left foot is the worst that I have ever had in 25

years. The stim

> has helped the bottom of my foot, the top of my foot and the toes,

but has

> done nothing for my ankle...where I am in agony. I unfortunately

did not have

> a trial run....since I had the previous stimulator placed so many

years

> ago..the surgeon did not see the need for the trial...I really

regret not getting

> one done.

>

> The recuperation was different also for me this time as I am

considerably

> heavy....obese now and they needed to really get to the spine in a

different

> way for most folks...they needed to break three of my

vertabras...NOW...THAT

> WILL NOT HAPPEN FOR YOU...SO PLEASE, PLEASE, PLEASE DO NOT

PANIC!!!!!!!!

>

> My recuperation time for this stim was almost 4 months due to the

fractures

> and the scarring in.

>

> As you are having a trial...this is great thing...some doctors let

their

> patients talk them into just doing the surgery due to

desperation. This should

> never be done...since if it doesn't help you...you don't have to

go through

> the surgery to keep it in for good...you know?

>

> Even though I had all those issues with my second stim, I am

really

> considering getting a third and final one done by another

neurosurgeon. This doctor

> will do the trial and told me that the fractures never, ever had

to

> happen....and that he will not do that to any patient....so I

think that I will try it

> again...we will see.

>

> Regarding our group....we have a great bunch of members....very

caring,

> compassionate and funny folks...we have our moderators ...who

oversee the posts

> and make sure that they are not offensive to anyone....and then

there is

> mike...our group owner and myself...his co-owner.

>

> Mike is a real sweetheart. He has a heart of gold. He will go

out of his

> way to help his members...and so will I .

>

> I wish you all the luck and will keep you in my prayers and

thoughts for a

> successful trial!!!

>

> Once again, welcome, welcome welcome and good luck!!!

>

> Gentle hugs to all,

>

> Kathy g. pa

> co-owner

>

>

>

> **************Looking for a car that's sporty, fun and fits in your

budget?

> Read reviews on AOL Autos.

> (http://autos.aol.com/cars-BMW-128-2008/expert-review?

ncid=aolaut00050000000017 )

>

>

>

[Guest guest]

Oh awesome! How is your pain level? Is the procedure pain bad enough

to require more pain meds?

Thanks,

>

> Welcome . I had my trial put in on 8/13, yesterday. If

you would

> like to talk, e-mail me. I am too sore to sit here and type it

all twice = )

>

>

> In a message dated 8/13/2008 11:36:22 P.M. Eastern Daylight Time,

> shaninpain@... writes:

>

>

>

>

> Hi all! Im new to the group. My name is and I have been

diagnosed

> with Rsd/Crps following a knee meniscus surgery earlier this year.

Needless to

> say, I have been going downhill and I cant find any treatments

that will

> last. My ins co, work comp, finally approved the spinal cord

stimulator trial for

> next Tuesday, Aug 19th at 2pm. Im very excited and nervous at the

same time.

> Im scared of the pain, but excited for the thought of limited

pain.

> Can anyone share their trial experiences? Did you have pain? Did

you have

> alot of restrictions? Did it work well? How long until the

permanent, etc.

> Really if you can just share your experiences, that will be good

enough.

> I look forward to getting to know everyone and I will post

throughout my

> trial to keep you updated.

>

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

>

> **************Looking for a car that's sporty, fun and fits in your

budget?

> Read reviews on AOL Autos.

> (http://autos.aol.com/cars-BMW-128-2008/expert-review?

ncid=aolaut00050000000017 )

>

>

>

[Guest guest]

Sue,

Thanks for sharing your experience. I have little mobitlity in my rsd

leg right now. In fact, I cant walk without a cane, and long

distances require a wheelchair. I have high hopes for the trial stim.

I will keep you posted.

>

> From: McClelland <shaninpain@...>

> Subject: (unknown)

> Stimulator

> Date: Thursday, August 14, 2008, 3:24 AM

>

>

>

>

>

>

> Hi all! Im new to the group. My name is and I have been

diagnosed with Rsd/Crps following a knee meniscus surgery earlier

this year. Needless to say, I have been going downhill and I cant

find any treatments that will last. My ins co, work comp, finally

approved the spinal cord stimulator trial for next Tuesday, Aug 19th

at 2pm. Im very excited and nervous at the same time. Im scared of

the pain, but excited for the thought of limited pain.

> Can anyone share their trial experiences? Did you have pain? Did

you have alot of restrictions? Did it work well? How long until the

permanent, etc. Really if you can just share your experiences, that

will be good enough.

> I look forward to getting to know everyone and I will post

throughout my trial to keep you updated.

>

>

>

[Guest guest]

 

You're so very welcome.

 

The SCS should hopeffully help with your mobility.  My mobility in my shoulder

is almost perfect. I can't overuse my arm though, or I experience great

pain. Just like everyone else in the group, you learn to live within your

limitations. The mobility in my legs isn't as good as I'd like them to be, but

they are much better than they were without the SCS.  The important thing is to

try to get as much mobility and pain relief as possible. Think positive.

 

Sue C

Moderator

From: shaninpain <shaninpain@...>

Subject: Re: (unknown)

Stimulator

Date: Thursday, August 14, 2008, 8:54 PM

Sue,

Thanks for sharing your experience. I have little mobitlity in my rsd

leg right now. In fact, I cant walk without a cane, and long

distances require a wheelchair. I have high hopes for the trial stim.

I will keep you posted.

>

> From: McClelland <shaninpain@ ...>

> Subject: (unknown)

> Stimulator@gro ups.com

> Date: Thursday, August 14, 2008, 3:24 AM

>

>

>

>

>

>

> Hi all! Im new to the group. My name is and I have been

diagnosed with Rsd/Crps following a knee meniscus surgery earlier

this year. Needless to say, I have been going downhill and I cant

find any treatments that will last. My ins co, work comp, finally

approved the spinal cord stimulator trial for next Tuesday, Aug 19th

at 2pm. Im very excited and nervous at the same time. Im scared of

the pain, but excited for the thought of limited pain.

> Can anyone share their trial experiences? Did you have pain? Did

you have alot of restrictions? Did it work well? How long until the

permanent, etc. Really if you can just share your experiences, that

will be good enough.

> I look forward to getting to know everyone and I will post

throughout my trial to keep you updated.

>

>

>

[Guest guest]



Hello

Can you first tell me what dose of Armour you were first started on in April and by how much have you increased your dose since then. How long after you started Armour was it before your first increase and how long is it since your last increase? All a bit muddled, but you should get what I mean.

It sounds to me as if you are now experiencing symptoms of overdosage. Stay off your Armour for 24 hours and then start again on the dose you were on before your last increase. It is the T3 (the active hormone) that is in Armour that will be making you feel like this. We recommend people start taking Armour using half a grain and after 7 days, if no adverse effects, increase by another half grain but you stay on that dose for 4 weeks. Again, if no adverse effects, increase again by another half grain and stay on that dose for another 4 weeks and keep increasing that way until you do start to get palpitations etc. You then go back to the dose you were on before your last increase. This is the only way to find out how much Armour your body requires. You should always take your Armour in a split dose. First dose before breakfast, and the second dose in the middle of the afternoon. This is because the T3 in Armour has such a short half life and it leaves your body after 6 to 8 hours and therefore, by the middle of the afternoon, you will probably suddenly feel quite tired.

The pathology laboratory should be testing your Free T3 because you are taking T3. How would your doctor know whether you are taking too much T3 or not? You should ask your GP to write on the blood form "Please test Free T3 because this patient is taking T3"

T4 is an inactive hormone, it has to convert through the liver to T3, the active hormone. I think in your case, you are taking too much T3 right now.

There are many reasons and conditions why thyroid hormone replacement cannot be absorbed. One is low adrenal reserve, and you should get a 24 hour salivary adrenal profile test done. This tests your DHEA and Cortisol levels at 4 specific times during the day. It sounds to me as if your cortisol levels are high at night because you are unable to sleep. If these hormones are shown to be low, we can help you with recommendations of supplements to boost your adrenals. However, you cannot get this done on the NHS - you have to get this done privately, and you can see the tests and the prices they charge in the FILES section in this forum website. Click on FILES and then scroll down until you see 'NPTech Services' and the information will be there. Also, while you are in the FILES section, click on 'Adrenal Questionnaire' and answer those questions to see how you score.

Other conditions that will stop your thyroid hormones from being absorbed are Candida Albicans, a low ferritin level (stored iron), low vitamin D and mercury poisoning caused through amalgam fillings. Get your GP to test if you have low ferritin and low vitamin D. If you do have any of these problems, once treated, you could find you need less thyroid hormone replacement as it will get properly absorbed.

Don't worry about missing a day on Armour, the T4 in Armour has a long half life and some is around in your body for up to 6 weeks.

Hope this helps.

luv - Sheila

PS - In the FILES section, you should also look at the FILE "How to use Natural Thyroid Extract". Perhaps your doctor has been increasing it too quickly for you.

I have been on Armour,very happily, since April and then a week ago I started developing all the hypo symptoms that I used to get on Thyroxine ( that is, palpitations,dizziness,nausea,disorientation and anxiety/jumping a sounds etc).

I am presently taking 1 1/2 grains a.m and p.m and my TSH level is now at 0.72.The hospital no longer gives me my T4 levels as they say I am now in the 'normal' range. My last test of T4 was at 16.60 in April (at that time my TSH was 5.73+). The hospital has also continued to refuse testing my T3 levels, even though my GP has sent me for a test three times now.

I am assuming that these symptoms are due to too much T4 ??? Can anyone suggest what I should do next please ....

I'm not sure if it is of any relevance, but I also have very dry eyes and mouth (especially at night) and I very rarely sleep for more than three hours per night.

Thank you,

juliaSend instant messages to your online friends http://uk.messenger. No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.6/1627 - Release Date: 22/08/2008 06:48

[Guest guest]

Hi Sheila, thank you for replying to my message so quickly. Here are the answers to your questions,I will try to keep them as concise as poss.

I started Armour on 23rd April at 1/4 grain a.m. After one week I increased to 1/2 grain a.m.On 12th May I increased to 1/2 grain a.m and 1/4 grain p.m. On 26th May I increased to 1/2 grain a.m and 1/2 grain p.m. I felt fab at this dose until the end of June when the old symptoms (fatigue,blurred vision,fuzzy brain,stomach acid etc) started to return. At that point I rang you because I was getting nowhere with my GP really.You suggested that I increase my dose (at that point my T4 was at 16.60 and my TSH at 5.64+) so I went up to 3/4 grain a.m and 3/4 grain p.m. As I said before,I felt o.k (not fab) on this dose until the weekend when I started to feel very uncomfortable.... palpitations,fluttery nervous stomach,low bloodsugar etc.I went to the doc (not my usual one) yesterday and she said that she didn't know what to do, mmm helpful.

My regular doctor has sent me for three T3 tests now and each time the lab has refused to do them with no explaination.My GP has written is big red pen "on Armour,therefore needs T3 levels" but nothing ....???? Is this hospital/NHS policy ?

I had my adrenals tested (saliva test) last Oct and it came back within normal limits.I have thought about systemic candida, especially as I often crave cider and sugar (I resist temptation). On the whole I stick to an alkalising diet and I take Seagreens (I assume this keeps my stored iron o.k ?) Lysine, Omega 3-6-9, multi flora Pro Bio and Sporegone supplements. I also have frequent attacks of cystitis and a dry mouth and very dry eyes (I have to put drops in my eyes through the day and night ) which also makes me think of possible candida .

All my troubles seem to have started after having viral meningitis eight years ago.Obviously they threw every anti-bi they had at me which must have had an effect on my whole system. I did also reluctantly have two filling removed a year after aswell....a double whammy.

Well that's my story,if you can make any sense of it.I'm still new to the wonderful world of the thyroid and keep getting confused by my doc,who means well but often says the opposite to the tpa.

I'll lay off the Armour today and see if my body can calm down a bit. It would be a most wonderous thing to be able to sleep again .... any help with that would be fab. How do I navigate to the "files" section ? (I'm new to computers aswell).

With all my gratitude as always,

julia

Re: (unknown)

 Hello

Can you first tell me what dose of Armour you were first started on in April and by how much have you increased your dose since then. How long after you started Armour was it before your first increase and how long is it since your last increase? All a bit muddled, but you should get what I mean.

It sounds to me as if you are now experiencing symptoms of overdosage. Stay off your Armour for 24 hours and then start again on the dose you were on before your last increase. It is the T3 (the active hormone) that is in Armour that will be making you feel like this. We recommend people start taking Armour using half a grain and after 7 days, if no adverse effects, increase by another half grain but you stay on that dose for 4 weeks. Again, if no adverse effects, increase again by another half grain and stay on that dose for another 4 weeks and keep increasing that way until you do start to get palpitations etc. You then go back to the dose you were on before your last increase. This is the only way to find out how much Armour your body requires. You should always take your Armour in a split dose. First dose before breakfast, and the second dose in the middle of the afternoon. This is because the T3 in Armour has such a

short half life and it leaves your body after 6 to 8 hours and therefore, by the middle of the afternoon, you will probably suddenly feel quite tired..

The pathology laboratory should be testing your Free T3 because you are taking T3. How would your doctor know whether you are taking too much T3 or not? You should ask your GP to write on the blood form "Please test Free T3 because this patient is taking T3"

T4 is an inactive hormone, it has to convert through the liver to T3, the active hormone. I think in your case, you are taking too much T3 right now.

There are many reasons and conditions why thyroid hormone replacement cannot be absorbed. One is low adrenal reserve, and you should get a 24 hour salivary adrenal profile test done. This tests your DHEA and Cortisol levels at 4 specific times during the day. It sounds to me as if your cortisol levels are high at night because you are unable to sleep. If these hormones are shown to be low, we can help you with recommendations of supplements to boost your adrenals. However, you cannot get this done on the NHS - you have to get this done privately, and you can see the tests and the prices they charge in the FILES section in this forum website. Click on FILES and then scroll down until you see 'NPTech Services' and the information will be there. Also, while you are in the FILES section, click on 'Adrenal Questionnaire' and answer those questions to see how you score.

Other conditions that will stop your thyroid hormones from being absorbed are Candida Albicans, a low ferritin level (stored iron), low vitamin D and mercury poisoning caused through amalgam fillings. Get your GP to test if you have low ferritin and low vitamin D. If you do have any of these problems, once treated, you could find you need less thyroid hormone replacement as it will get properly absorbed.

Don't worry about missing a day on Armour, the T4 in Armour has a long half life and some is around in your body for up to 6 weeks.

Hope this helps.

luv - Sheila

PS - In the FILES section, you should also look at the FILE "How to use Natural Thyroid Extract". Perhaps your doctor has been increasing it too quickly for you.

I have been on Armour,very happily, since April and then a week ago I started developing all the hypo symptoms that I used to get on Thyroxine ( that is, palpitations, dizziness, nausea,disorient ation and anxiety/jumping a sounds etc).

I am presently taking 1 1/2 grains a.m and p.m and my TSH level is now at 0.72.The hospital no longer gives me my T4 levels as they say I am now in the 'normal' range. My last test of T4 was at 16.60 in April (at that time my TSH was 5.73+). The hospital has also continued to refuse testing my T3 levels, even though my GP has sent me for a test three times now.

I am assuming that these symptoms are due to too much T4 ??? Can anyone suggest what I should do next please ....

I'm not sure if it is of any relevance, but I also have very dry eyes and mouth (especially at night) and I very rarely sleep for more than three hours per night.

Thank you,

juliaSend instant messages to your online friends http://uk.messenger . No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8..0.138 / Virus Database: 270.6.6/1627 - Release Date: 22/08/2008 06:48 Send instant messages to your online friends http://uk.messenger.

[Guest guest]



HI

First you can navigate the FILES, LINKS, PHOTO'S ect by going to the Home Page of this forum website thyroid treatment and in the Menu on the left, click on FILES. The page that opens has a long list of very useful information, so scroll down there until you find what you need. Anything you don't understand, just shout. I do feel you have increased your dose far too quickly, and that you are now feeling the effects of over-dosing and you are getting the toxic effect caused through the build up of too much thyroid hormone. I hope by now, you are beginning to feel better.

Once you have read the information in the FILES I mentioned in my previous message. Have a stab at answering the questions in the 'Adrenal Questionnaire' and the 'Candida Questionnaire' to see if either of these could be your problem and also read about the thyroid/adrenal connection on our website. Go to www.tpa-uk.org.uk and click on 'Hypothyroidism' and then in the drop down Menu, click on 'Associated Conditions' and then click on 'Adrenals'. On the page that opens, read that paper by Dr Durrant Peatfield. That should help explain a lot about what might be happening.

I would be tempted to telephone the laboratory and speak to the head and ask them outright why, when your doctor has especially requested a Free T3 for you because you are taking a product containing T3, that they keep refusing to test it. You need to know the result of such a test. Sadly, many doctors are telling their patients different things to what TPA is telling them - it is precisely because of what doctors are telling their patients that I decided to open an Internet support forum for sufferers of hypothyroidism in the first place. Doctors are not taught the facts regarding this disease and they cause great confusion because of a lack of training.

Second, before you click SEND to a message you are posting to the forum, please can you remember to delete the messages you are responding to and leave just a small portion that is relevant to your response.

Luv - Sheila

Well that's my story,if you can make any sense of it.I'm still new to the wonderful world of the thyroid and keep getting confused by my doc,who means well but often says the opposite to the tpa.

I'll lay off the Armour today and see if my body can calm down a bit. It would be a most wonderous thing to be able to sleep again .... any help with that would be fab. How do I navigate to the "files" section ? (I'm new to computers aswell).

With all my gratitude as always,

julia

.. No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.7/1628 - Release Date: 22/08/2008 18:32

[Guest guest]

hey sue

I just wanted to thank you for letting everyone know about mike's computer

gitta go..feling reaaly bad sugar is now 22...i have to est something

now...

love

katjy

co-owber

soorry for bad typing..feel horrible

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

Kathy

 

Don't worry about the typing, I'm worried about you! Sugar of 22 is much too

 low. When my friend's sugar gets very low she puts regular sugar under her

tongue and that brings the sugar up faster than eating.  Feel better.

 

Sue C

Moderator

From: KGAVI@... <KGAVI@...>

Subject: Re: (unknown)

Stimulator

Date: Sunday, August 24, 2008, 2:50 AM

hey sue

I just wanted to thank you for letting everyone know about mike's computer

gitta go..feling reaaly bad sugar is now 22...i have to est something

now...

love

katjy

co-owber

soorry for bad typing..feel horrible

************ **It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047)

[Guest guest]

hey sue..

mcuh bertter now...used the glucagon injection and ate like mad...sugar is

now at 70.

I hate when it drops so damned low...you really feel like a dish rag!

I swear it is from the increase in pain...any shock or change in the body

affects mysugars...so wi wil see

take care

kathy

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

Kathy,

I do not have diabetes and can't say for sure that pain levels effect blood

sugars but pain levels do definitely effect all other parts of our body so why

not. When my pain level is up, so is my blood pressure. At one point when my

pain was elevated my heart rate dropped so low that one cardiologist felt that I

needed a pace maker. Fortunately, for me, my own cardiologist knows enough about

RSD that he realized that it was because my pain was more intense than normal.

Maybe your doctor can tell you what steps to take when you realize your pain

level is going up to prevent your blood sugars going down.

Hope you are feeling better today.

Dorothy

[Guest guest]

You got the right address. You got the right surgery with the right Dr....so I think you're on the right track. How are you doing?????From: leslie pearson <itsleslie13@...>Subject: (unknown) Date: Sunday, August 24, 2008, 11:24 AM

I'm not sure how this work so I'm testing --new with lap band 8/19 Thank you

[Guest guest]

Hey Dorothy!

Thanks for the thoughts...I have contacted all the Drs....and they have

suggested keeping the glucagon on me at all times....which I really do

anyway.....

I agree with you..pain effects us in so many aspects...it is amazing that

you had your heart rate so low...I had the same thing when I go into PT...most

folks have a raised rate, or so I was told, due to the exercise and

movement...your rate usually goes up, but in severe pain patients, it makes

sense for

it to drop suddenly from the pain....I kept on passing out due to it during

pt, after pt...even hours afterwards....and then the rate would be

normal.....we are lucky enough to both have good cardiologists who know what RSD

pain

can do...hell just what RSD itself can do!!

It is just crazy, as the sugars are all over the map....some days I wake up

with a reading (fasting...prior to eating anything for the day) of 310, and

then before lunch....several hours afterwards...it is 22. WTH!!

Thanks again for your thoughts...as I really appreciate any and all ideas

from all the gang...as any person with chronic pain can really grasp my

situation.

Gentle hugs to you and all,

Kathy G.

Co-Owner

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

Oh Sue!!!

Oh no! I am so very sorry about your stomach pain!!!

Anything that I can do....just call me.

I will keep you in my prayers, my friend.

Love

Kathy G.

Co0owner

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

thanks, sue....same to you....I am here for you....hope your tummy is

feeling better!!!!

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

No, it is pesticide treated according to unfit for human consumption

standards.

Edgar

On Aug 25, 2008, at 2:38 PM, wrote:

> Can I sprout bird seed for personal consumption?

>

>

>

[Guest guest]

There is a directory of Drs that prescribe LDN ... I am sure that

someone here will direct you to it. Where do you live.

Yes, it is unfortunate that most GI doctors dismiss LDN. Just thank G-D

that you have found it yourself! ... I hope and pray that LDN helps

your son as well as it has my daughter. She suffered for years with

UC/Crohns and she is now so well - Thanks to LDN.

Take care and Best of Luck. ette

[low dose naltrexone] (unknown)

My 17 year old son is suffering with UC and has been on

remecade for 6

months. We want to try LDN, but we can't get our GI Dr. to even talk

about it. Any suggestions to convience him?

[Guest guest]

My own experience (with my daughter health) has been that I had to be

very " proactive " - it means nothing to me that a doctor says this or

that.

I have to know what's going on ... challenging his care of my if need

be. After all, this is my child not his/hers. I know ... It would be

wonderful to have doctors who really have the best interest of our

loved ones at heart - but then that's not reality.

[low dose naltrexone] (unknown)

We live in Athens Ga., but our GI is in Atlanta and is

supposed to be

very good. His name is Larry Saripkin with Children's center for

digestive health care. I really don't want to change Dr's unless we

have to, but I just want him to agree to LDN.

[Guest guest]

You can if its sunflower seeds. If its a mix, you'll have to check out

what other kind of seed there is and go from there.

ew

(unknown)

Date: Mon, 25 Aug 2008 11:38:23 -0700 (PDT)

Can I sprout bird seed for personal consumption?

Sunshine makes the flowers dance.

Anon.

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